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Topic: Any Michigan Ladies?

Forum: Member Matchup & Virtual Support Meetups —
A place for members, in similar geographic areas, to connect for support, local resources and referrals as well a place to meet up within the community virtually.

Posted on: Aug 21, 2013 12:10PM

IrishDancingMom wrote:

Hi...

I'm newly diagnoised and would love to not only talk with all ladies going through our breast cancer journey together but especially Michigan ladies.

Kirsty



Love is all you need..Beatles Dx 8/9/2013, DCIS, 3cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 8/22/2013 Lumpectomy: Left Radiation Therapy 9/29/2013 Breast
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Jul 28, 2014 04:15AM - edited Jul 28, 2014 04:17AM by Stix

This Post was deleted by Stix.
stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Jul 28, 2014 04:16AM - edited Jul 28, 2014 04:16AM by Stix

Day 4 post op- revision, too early to tell yet- but things are now looking better !

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Jul 28, 2014 07:54PM Jo6202 wrote:

Stix, that is good news. Prayers for continued good healing.

Someday your life will pass before your eyes. Be sure it's worth watching. Dx 8/8/2013, IDC, Left, 2cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 8/30/2013, DCIS/IDC, Left, <1cm, Stage 0, 0/1 nodes, ER+/PR+, HER2- Surgery 8/30/2013 Lumpectomy: Left Surgery 8/30/2013 Lymph node removal: Left, Sentinel Surgery 9/11/2013 Lumpectomy: Left Radiation Therapy 10/28/2013 Breast Hormonal Therapy 12/13/2013 Arimidex (anastrozole), Femara (letrozole)
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Jul 29, 2014 01:38AM Stix wrote:


thanks JO

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Jul 29, 2014 09:44AM Allydp wrote:

Great news, Stix! Sending you good thoughts and prayers for a full, speedy recovery. 

Alicia - Dx at 33, BRCA2+ Dx 1/30/2014, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 2/5/2014 Lymph node removal: Sentinel Chemotherapy 2/25/2014 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 8/16/2014 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/8/2014 Prophylactic ovary removal Surgery 1/20/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 29, 2014 10:14AM Stix wrote:

Thanks allydp....Headphones

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Jul 30, 2014 02:40PM Stix wrote:

Did anybody have alloderm during implant exchange?  Did you still get the drop and fluff with alloderm?  Mine has dropped in certain areas on the breast- but then it can look stuck upward on the chest (too high - not the same shape) when comparing to the other breast. I know  it still has time to change....also.

thanks

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Jul 30, 2014 05:24PM mmtagirl wrote:

congrats! stix! I have alloderm but you are ahead of me on exchange.  I am not scheduled until October 29.  I will be curious how you do!

Dx 12/26/2013, IDC, 1cm, Stage IIA, Grade 1, 1/9 nodes, ER+/PR+, HER2- Surgery 1/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/14/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Hormonal Therapy 10/5/2014 Radiation Therapy 11/2/2014 Breast
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Jul 31, 2014 04:53AM - edited Jul 31, 2014 04:56AM by Stix

Hi mmtagirl. ..i will keep you posted. I am so tired of looking at it that I am not going to look at it Again  till next week. I prob. Look at it once or maybe twice a day. I am only around 1 week postop. .. so I know a lot can change.  I thought it was dropping too much...but no it has a bit to go...keep u posted

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Jul 31, 2014 05:21AM BayouBabe wrote:

stix - I had alloderm, but at initial surgery, so a bit different than you.  I still got the drop and fluff.  

BRCA1+, IDC
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Jul 31, 2014 05:58AM Stix wrote:

thanks bayoubabe.  Thanks for answering everyone!  You put my mind at ease

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 8, 2014 04:36AM - edited Aug 8, 2014 10:14AM by Stix


Two weeks post op from revision- Revised by a new PS  The burn from the ice I put on postop is fading gradually with Silvadene.  The shape at this point of the new breast is quite different than the other mastectomy.  Will keep you posted.... I think its too early to tell- possibly also due to the addition of swelling from the ice burn.....

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 8, 2014 02:30PM BayouBabe wrote:

Stix - ice burn??? What happened?

BRCA1+, IDC
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Aug 8, 2014 03:46PM - edited Aug 8, 2014 03:47PM by Stix

oh, well. I had ice on my surgical site.... about 15  minutes- it was protected.. and I developed 1st and second degree burns.  It was crazy... Basically It was a frostbite... not sure if it was b/c my skin was so thin there or due to something with surgery with the addition of the cold ice. Either way I think it will resolve. Google Port wine spots on the face- look at the darkest port wine spot under images... you will see what my burn looked like. I started silvadene cream twice a day... last Monday. Made quite a difference. Hoping for no permanent skin color changes with this. The new implant looks funny- not like the other side.  I looked at my photos around 10 days postop from the other side- from a few years back... and it looked funny at two weeks also... so I hope it gains some form over the next few months and looks like the other. If not- I am not sure what I will do. Trying to take it day by day... will keep you posted.  How are you bayoubay?

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 8, 2014 04:48PM BayouBabe wrote:

Oh, Stix!  So sorry about this set back.  Ugh!  Hope all resolves soon.  Got my fingers crossed for you and sending healing hugs your way!  I am doing well - today was my colonoscopy, so the last two days have not been the most pleasant!Scared Good news - free and clear, no polyps!  My mom had colon cancer before her other cancer that took her life.  So they watch me closely for colon cancer as well, and lucky me got to start colonoscopies years before the rest of the population my age.  Joy.  

Hang in there Stix.  I know it is hard, but step away from the mirror.  Hopefully you will get the full benefit of the drop and fluff. 

BRCA1+, IDC
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Aug 8, 2014 05:23PM - edited Aug 11, 2014 11:48AM by Stix

This Post was deleted by Stix.
stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 10, 2014 07:18PM - edited Aug 10, 2014 07:20PM by Stix

Burns are definitely getting less noticeable. Would definitely recommend Silvidene cream for those that have burns. This cream was a miracle drug for me. :)- Having patience for that 3 month mark. It actually took about 5 month for mine to almost get to its shape now on the original mx. side. ....  :). Its looking better each day!!!

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 11, 2014 06:05PM BayouBabe wrote:

Yay, Stix!  Glad to hear it!

BRCA1+, IDC
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Aug 15, 2014 06:18AM Stix wrote:

Still an unusual shape. ... changing slightly. ..

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 15, 2014 08:49AM The1toC wrote:

Stix: hope the burn is healing well and you are recovering nicely.  Remember from your other surgeries that likely it is too soon to assess how things settle out in the long run. Be well!

Life: pretty much the best thing ever! Dx 7/2011, IDC, 6cm+, Stage IIIB, Grade 3, 3/14 nodes, ER+/PR-, HER2+ Surgery 8/16/2011 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 9/6/2011 Herceptin (trastuzumab) Chemotherapy 9/6/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 2/19/2012 3DCRT: Breast, Lymph nodes Hormonal Therapy 4/14/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/22/2012 Reconstruction (left); Reconstruction (right) Surgery 12/30/2012 Reconstruction (right): Tissue expander placement Surgery 5/6/2014 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 8/26/2014 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting
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Aug 15, 2014 12:00PM Allydp wrote:

Stix - thinking of you. Hope things start to settle into a nice shape soon. 

My BMX with TE's is this Monday. I'm nervous but ready to do this! 

Alicia - Dx at 33, BRCA2+ Dx 1/30/2014, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 2/5/2014 Lymph node removal: Sentinel Chemotherapy 2/25/2014 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 8/16/2014 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/8/2014 Prophylactic ovary removal Surgery 1/20/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 15, 2014 06:59PM Stix wrote:

Great ally.. good luck.  My revision with disappointments thus far... 3 weeks post op. Shape unlike other side.Planning on posting pictures in the next couple of weeks on the forum....will post on here when i post them. Do people have access to the picture forum?   

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 15, 2014 07:25PM Allydp wrote:

Thanks, Stix. I have access to the picture forum. 

Alicia - Dx at 33, BRCA2+ Dx 1/30/2014, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 2/5/2014 Lymph node removal: Sentinel Chemotherapy 2/25/2014 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 8/16/2014 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/8/2014 Prophylactic ovary removal Surgery 1/20/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 16, 2014 04:25AM mmtagirl wrote:

stix, sorry you aren't so happy with the implants. Hopefully they are still shifting. 

Ally, good luck with your BMX and TEs.  I think you will find that outside of the first few weeks if soreness it is easier on your body than the chemo. We will be thinking of you. 

I don't ha access to the picture forum. Haven't gotten around to asking. My exchange is October 29. I did get good news this week that I don't need to do the final cycle of 3 weekly taxol. Mo doesn't think it will provide any added benefit since I did one round of taxotere. So, only two more treatments of taxol and that chapter is closed!

Dx 12/26/2013, IDC, 1cm, Stage IIA, Grade 1, 1/9 nodes, ER+/PR+, HER2- Surgery 1/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/14/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Hormonal Therapy 10/5/2014 Radiation Therapy 11/2/2014 Breast
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Aug 16, 2014 11:20AM Stix wrote:

Great mmtagirl girl. I am hoping they are still shifting. I am going to stop comparing it for week.... and see what it looks like after that...    hoping th3 majority of it Is swelling

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 16, 2014 12:47PM BayouBabe wrote:

Good luck Ally and Yay mmtagirl!  Stix - it took quite a while for my swelling to go down.  Hang in there!  Let me know when you are on the picture forum, I have access.  Beautiful day here along Lake Michigan - hope all of you are enjoying some great weather as well!  

BRCA1+, IDC
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Aug 16, 2014 02:35PM Stix wrote:

where do you live exactly in michigan bayoubabe?  Sorry, I forgot....    I will let you know when i post.  Will wait a couple of weeks to post...

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 17, 2014 05:43AM BayouBabe wrote:

I am in the Grand Haven/Spring Lake/Muskegon area.  Beautiful here.  If anyone is ever on this side of the state - let me know and we will get together.Smile

BRCA1+, IDC
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Aug 17, 2014 11:03AM - edited Aug 21, 2014 04:27AM by Stix

This Post was deleted by Stix.
stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Aug 17, 2014 11:08AM - edited Aug 17, 2014 04:49PM by BayouBabe

This Post was deleted by BayouBabe.
BRCA1+, IDC

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