Join Us

We are 224,476 members in 83 forums discussing 163,572 topics.

Help with Abbreviations

Topic: Anyone in Dallas, TX or know of a local support group?

Forum: Member Matchup & Virtual Support Meetups —
A place for members, in similar geographic areas, to connect for support, local resources and referrals as well a place to meet up within the community virtually.

Posted on: Jan 16, 2016 12:31PM

ayr1016 wrote:

Just wondering if anyone lives in or near Dallas, TX and/or knows of a local support group. I was recently diagnosed (Dec 22nd 2015) and have yet to speak to another woman in person who has had or gone through breast cancer (besides 2 of my doctors, which was great, but that doesn't help on a daily basis ;) I definitely think a support group would help as well. Hoping I have some fellow sisters on here that are in my neck of the woods.

DX at age 41, Oncotype DX 15, Neoadjuvant Hormone Therapy: Lupron + Tamoxifen (then Arimidex) Dx 12/22/2015, IDC, Left, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Hormonal Therapy 2/4/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/8/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 9/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
Log in to post a reply

Page 1 of 2 (56 results)

Posts 1 - 30 (56 total)

Log in to post a reply

Jan 16, 2016 04:47PM mairew wrote:

Ayr, I am in east dallas.

Dx at 42. Oncotype 14 Dx 11/2015, ILC, Right, 3cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 2/22/2016 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 16, 2016 05:35PM MelissaDallas wrote:

I'm in Far East Dallas, but I'm just high risk. Not BC

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
Log in to post a reply

Jan 16, 2016 07:52PM luvmygoats wrote:

Ayr - Sorry I'm not on your side of the metroplex. I'm NW of Ft Worth.

Do you have a nurse navigator that might give you some more ideas? If you are having treatment at a major hospital especially one a part of the big networks I'd think a support group could be found. I was working full time my 1st year of treatment so was unable to attend any support meetings. Since then I use BCO for my major support.

If you have a place in mind hospital wise you can always cold call them.

What can we do here to support you? Read your question on Lump. Lounge. I did not realize they treat breast CA with proton therapy. You must mean the new Texas Oncology one in Irving.

I googled "breast cancer support Dallas TX" and found a bunch of hits. And the American Cancer Society too is a good resource.

I know that the nurse navigator at Baylor All Saints in Ft Worth is available to anyone regardless of where treatment is obtained - straight from their website. I would think this would be true system wide. Must admit I'm a bit biased - where I was treated.

Let us know what we can do to help!


SNB & Lumpectomy 2/21/12. Opted for no Oncotype due to very favorable pathology. 90% ER+. Rads finished 5/23/12. 28 + 5 boosts Dx 2/2012, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 2/21/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 4/9/2012 Breast Hormonal Therapy 6/8/2012 Femara (letrozole)
Log in to post a reply

Jan 16, 2016 09:26PM farmerlucy wrote:

You might be interested in getting an Immerman Angel mentor. It is an easy process. Just go to their website and sign up. They'll match you with someone about your age and stage who is farther down the recovery road.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/20/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/10/2012 Lymph node removal: Sentinel Surgery 7/21/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/9/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/13/2015 Prophylactic ovary removal
Log in to post a reply

Jan 17, 2016 03:19PM keepthefaith wrote:

ayr, The American Cancer Society has a "Reach to Recovery" program for BC patients. They match you up with a person who has a like DX and age, that has been through recovery. There is a group in Central Texas called the Breast Cancer Resource Center also, but not sure what areas they cover. Best wishes!

Dx 9/17/2013, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 12/3/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/26/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/16/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2014 Breast Hormonal Therapy 5/23/2014
Log in to post a reply

Jan 23, 2016 11:15PM ayr1016 wrote:

Thank you all for replying! I am checking out all suggestions mentioned. I am also going to contact the nurse navigator this next week and see how she can help.

DX at age 41, Oncotype DX 15, Neoadjuvant Hormone Therapy: Lupron + Tamoxifen (then Arimidex) Dx 12/22/2015, IDC, Left, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Hormonal Therapy 2/4/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/8/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 9/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
Log in to post a reply

Jan 26, 2016 05:59PM New-girl wrote:

Medical City Dallas has a very good one. I went to it for a year after my BMX in 2012. Wonderful sweet ladies some in all stages. They serve a lite dinner and meet once a month at the hospital on Forest and Central.

Dx 1/19/2012, DCIS, <1cm, Stage I, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, ILC, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Surgery 2/12/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 7/25/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 12/13/2012 Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction Dx 1/19/2016, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-
Log in to post a reply

Feb 3, 2016 09:39AM queenshark wrote:

I'm in Allen and haven't had much luck finding anything, let me know if these avenues help! Or Im always up for coffee, I'm scared to death of my upcoming surgery!

Kit

Left, 3cm, Stage IIA, Grade 2, ER+/PR+, HER2+
Log in to post a reply

Feb 3, 2016 01:17PM Lunderwood wrote:

I live 60 miles north of Dallas but am receiving medical care and neoadjuvant treatment in Dallas. I too have only discussed my breast cancer with my medical team. It might be helpful to talk to someone else who is actually undergoing treatment currently. I read the blogs and discussion boards but am reluctant to post since I am just finding my way through this diagnosis. Sometimes I feel very isolated especially since I live and work in a small community.

Laurie

Dx 11/19/2015, IDC, Right, 2cm, Stage IIA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 1/5/2016 Arimidex (anastrozole), Faslodex (fulvestrant) Surgery 6/15/2016 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement
Log in to post a reply

Feb 3, 2016 01:28PM ayr1016 wrote:

Maybe one day we can have a "Dallas area" meet up. :)

DX at age 41, Oncotype DX 15, Neoadjuvant Hormone Therapy: Lupron + Tamoxifen (then Arimidex) Dx 12/22/2015, IDC, Left, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Hormonal Therapy 2/4/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/8/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 9/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
Log in to post a reply

Feb 3, 2016 03:55PM Lunderwood wrote:

Yes! Great idea! I would definitely be interested. It would not have to be anything formal or highly organized.

Smile

Laurie

Dx 11/19/2015, IDC, Right, 2cm, Stage IIA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 1/5/2016 Arimidex (anastrozole), Faslodex (fulvestrant) Surgery 6/15/2016 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement
Log in to post a reply

Feb 3, 2016 04:22PM luvmygoats wrote:

After a whole lot of searching I found the old "Texas" thread. I don't think many in this neck of the woods are still active except for MelissaDallas. Last posting was almost 2 years ago. The ladies down near Austin have their own meetup thread.

https://community.breastcancer.org/forum/34/topics...

I'll put something on there and see if I get any takers.


SNB & Lumpectomy 2/21/12. Opted for no Oncotype due to very favorable pathology. 90% ER+. Rads finished 5/23/12. 28 + 5 boosts Dx 2/2012, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 2/21/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 4/9/2012 Breast Hormonal Therapy 6/8/2012 Femara (letrozole)
Log in to post a reply

Feb 3, 2016 04:26PM luvmygoats wrote:

OK it is posted on there and did show up in Active Topics. I know a few are around by searching their profiles but I think there were only 1 maybe 2 small meetups probably in 2013. We'll see what we get. And though I do live NW of Ft Worth I have no problem navigating Dallas. My DD lives in Euless so I can stay overnight there without driving all the way out here. Would love to meet up with some of you.

SNB & Lumpectomy 2/21/12. Opted for no Oncotype due to very favorable pathology. 90% ER+. Rads finished 5/23/12. 28 + 5 boosts Dx 2/2012, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 2/21/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 4/9/2012 Breast Hormonal Therapy 6/8/2012 Femara (letrozole)
Log in to post a reply

Feb 3, 2016 04:38PM tangandchris wrote:

I would love to do a meet up!!

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/23/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/13/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to other, ER+/PR-, HER2-
Log in to post a reply

Feb 3, 2016 06:36PM Lola10 wrote:

In the same building, but on the bottom floor, of Texas Oncology behind Presbyterian Dallas Hosital is a American Cancer Society office. Has a big red door. There are support groups and free activities for people that have been diagnoised with any type of cancer, as well as care givers. Big breast cancer group. The activities are free. I am personally looking for TNBC support group in Dallas. Because it is 'different' , I really want some help from those that are dealing with this type. Anyone know of group?

I have also heard that the JCC on Northaven in Dallas has a very good group and it is open to non members. It's a great facility and a woman I met getting chemo just recently told me about it.

Log in to post a reply

Feb 3, 2016 07:21PM queenshark wrote:

I'm in too, just let me know how I can help!

Kit


Left, 3cm, Stage IIA, Grade 2, ER+/PR+, HER2+
Log in to post a reply

Feb 4, 2016 11:30AM mairew wrote:

me too

Dx at 42. Oncotype 14 Dx 11/2015, ILC, Right, 3cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 2/22/2016 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Feb 4, 2016 11:48PM woodstock99 wrote:

I am in North Dallas and happy to talk to you privately and doing a meet-up. I am 3+ weeks post-BMX no recon & overwhelmed, frustrated & scared by not knowing what is normal healing process and because if this site feel I have become considered a "difficult" patient for asking questions and challenging some decisions. Weekends usually best for me. Thanks.

1/12/16 BMX. Stage 1/DCIS.
Log in to post a reply

Feb 5, 2016 12:25PM luvmygoats wrote:

I didn't have BMX but willing to listen to your questions. I would bet weekends would be best for most. I'm retired so my planning would more involve if DD has plans since I would most likely stay over there. I'm NW of Ft Worth. I re-negotiated Dallas around North Park in late fall. Been years since I've been there but DD had a flight out of Love Field to visit a friend. We lived for several years off Skillman (mid 70s) and then in Garland not far from where the tornado was.

ayr - we seem to have hijacked your thread. Any luck finding any formalized local support?

SNB & Lumpectomy 2/21/12. Opted for no Oncotype due to very favorable pathology. 90% ER+. Rads finished 5/23/12. 28 + 5 boosts Dx 2/2012, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 2/21/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 4/9/2012 Breast Hormonal Therapy 6/8/2012 Femara (letrozole)
Log in to post a reply

Feb 5, 2016 02:04PM woodstock99 wrote:

@ayr1016 feel free to PM me.

1/12/16 BMX. Stage 1/DCIS.
Log in to post a reply

Mar 7, 2016 05:05PM kellychameleon wrote:

Hey - it's a month later, but I'm another Dallasite. My office is in East Dallas, and I live in Lake Highlands. Sounds like there are a few of us in this general area. Ayr, I'm also 41 and was diagnosed in December. I would definitely be up for a meetup sometime!

Dx 12/15/2015, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2- Chemotherapy 1/12/2016 AC + T (Taxol) Surgery 6/1/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2016 Carboplatin (Paraplatin), Xeloda (capecitabine) Radiation Therapy 1/7/2017 Whole-breast Surgery 4/5/2017 Prophylactic ovary removal Surgery 8/28/2017 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Log in to post a reply

Mar 7, 2016 05:25PM woodstock99 wrote:

I also posted this in another thread and want to share here as well.

I already have a few appts on 3/26 but am going to try to reschedule to attend this. Free - register at thia link: BC Retreat

Join us for education support and celebration of healthy survivorship at our annual breast cancer survivors retreat. On-site registration opens at 8 a.m. Breakfast and lunch are provided.

The most commonly accepted description of a survivor refers to anyone who has been diagnosed with cancer from the day of that diagnosis.Bring your questions for an Ask-the-Expert panel discussion.

Breakout sessions covering topics such as: Early- and Long-Term Survivorship | Exercise | Genetics | Nutrition | Reiki | Sexuality

Parking is free.


1/12/16 BMX. Stage 1/DCIS.
Log in to post a reply

Mar 7, 2016 06:45PM MelissaDallas wrote:

kellychameleon, I live in Far East Dallas. I work at Central & Beltline in Richardson and come through Lake Highlands every day coming & going.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
Log in to post a reply

Mar 7, 2016 06:47PM woodstock99 wrote:

I live in North Dallas and work near the Galleria.

1/12/16 BMX. Stage 1/DCIS.
Log in to post a reply

Mar 7, 2016 07:15PM New-girl wrote:

I have just spent entire day at UTSW for my fourth opinion. Would love a full on discussion of options, fears, frustrations....I think my husband is on overload. Why don't we pick a Starbucks or La Madaleine and meet up? We could either do along LBJ or another major highway. I was in the original group under a different name but it was a great group of women. Would love to meet all of you.

Dx 1/19/2012, DCIS, <1cm, Stage I, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, ILC, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Surgery 2/12/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 7/25/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 12/13/2012 Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction Dx 1/19/2016, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-
Log in to post a reply

Mar 7, 2016 08:19PM woodstock99 wrote:

Happy to meet but during the week is tough for me so really prefer to do weekend as I am still doing PT 2x a week & getting to work late & a mindful meditation class one weeknight but of all weeknights Monday is the least crazy for me if that works.

There is La Madeline on Preston/Forest or Arapaho/BeltLine or Starbucks in multiple locations.

I can meet this Saturday or Sunday afternoon after 2 but not again until weekend of April 9th.

Going to visit my mom in Florida weekend of 3/18 (scared - first flight since surgery - flying alone), going to the event above on 3/26 & Sunday is Eatser Sunday, my husband turns 60 on 4/3 and I am throwing him a surprise party so have too much to do the day before.

8-week since surgery tomorrow!

Let me know.



1/12/16 BMX. Stage 1/DCIS.
Log in to post a reply

Mar 7, 2016 09:53PM ayr1016 wrote:

Yes, I would love to still meet up. I live in far East Dallas but work in Richardson (near Cottonwood Park). What times/Days work best for everyone? Balthus, I could do weekend and/or week days.

DX at age 41, Oncotype DX 15, Neoadjuvant Hormone Therapy: Lupron + Tamoxifen (then Arimidex) Dx 12/22/2015, IDC, Left, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Hormonal Therapy 2/4/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/8/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 9/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
Log in to post a reply

Mar 7, 2016 09:57PM warriorwannabe wrote:

I live in Rowlett, and work in Richardson on Renner and 75. Im in for any meet ups! Im a newbie with BMX scheduled for 3/30!!!

Dx 2/15/2016, LCIS/DCIS/ILC/IDC, Both breasts, 4cm, Stage IIB, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 3/30/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Log in to post a reply

Mar 8, 2016 06:39AM kellychameleon wrote:

Weekdays are easier for me, but if a weekend is the consensus, I can make it work. My office is much easier to escape than my 3 and 6 year olds!

Dx 12/15/2015, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2- Chemotherapy 1/12/2016 AC + T (Taxol) Surgery 6/1/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2016 Carboplatin (Paraplatin), Xeloda (capecitabine) Radiation Therapy 1/7/2017 Whole-breast Surgery 4/5/2017 Prophylactic ovary removal Surgery 8/28/2017 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Log in to post a reply

Mar 8, 2016 07:32AM woodstock99 wrote:

I can't meet during the week during the day and for now weeknights are tough but I could do a Monday night so as mentioned for me this Sat or Sun after 2 or next Monday night about 6-6:30 would work for me.

1/12/16 BMX. Stage 1/DCIS.

Page 1 of 2 (56 results)