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Topic: Anyone in Dallas, TX or know of a local support group?

Forum: Member Matchup & Virtual Support Meetups —
A place for members, in similar geographic areas, to connect for support, local resources and referrals as well a place to meet up within the community virtually.

Posted on: Jan 16, 2016 01:31PM

ayr1016 wrote:

Just wondering if anyone lives in or near Dallas, TX and/or knows of a local support group. I was recently diagnosed (Dec 22nd 2015) and have yet to speak to another woman in person who has had or gone through breast cancer (besides 2 of my doctors, which was great, but that doesn't help on a daily basis ;) I definitely think a support group would help as well. Hoping I have some fellow sisters on here that are in my neck of the woods.

DX at age 41, Oncotype DX 15, Neoadjuvant Hormone Therapy: Lupron + Tamoxifen (then Arimidex) Dx 12/22/2015, IDC, Left, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Hormonal Therapy 2/4/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/9/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 9/12/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Mar 8, 2016 10:55PM woodstock99 wrote:

A friend & BC survivor sent me this link today: www.facingourrisk.org/get-supp... as well as this FB group https://www.facebook.com/dallastexasforce/

1/12/16 BMX. Stage 1/DCIS.
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Mar 8, 2016 10:59PM warriorwannabe wrote:

thanks Balthus!!! I bookmarked both!!!

Dx 2/15/2016, LCIS/DCIS/ILC/IDC, Both breasts, 4cm, Stage IIB, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 3/30/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Mar 14, 2016 04:31PM - edited Mar 14, 2016 04:32PM by ayr1016

Anybody want to meet for lunch (or tea/coffee) this Thursday 17th near 75/Campbell or I could also meet somewhere near Firewheel mall.

For local meet ups/info/communcating, would anybody be interested in joining a dallas BC specific facebook group? Or even a TEXAS BC specific Facebook? I have family in Houston and near Austin, so I travel ever so often around the state ;)

DX at age 41, Oncotype DX 15, Neoadjuvant Hormone Therapy: Lupron + Tamoxifen (then Arimidex) Dx 12/22/2015, IDC, Left, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Hormonal Therapy 2/4/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/9/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 9/12/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Mar 14, 2016 07:51PM warriorwannabe wrote:

I work at 75 and Renner. But hard to get away at lunchtime most days (plus I dont think an hour would do it for us, do you? lol). I can meet any weekend day. I live in Rowlett so Firewheel is awesome too.

Dx 2/15/2016, LCIS/DCIS/ILC/IDC, Both breasts, 4cm, Stage IIB, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 3/30/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Mar 14, 2016 11:06PM woodstock99 wrote:

Would love to meet butI rarely get out for lunch and I work by the Galleria. Weekends are best for me. I am planning on attending the Presbyterian Retreat on 3/26 if anyone is going.

1/12/16 BMX. Stage 1/DCIS.
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Mar 15, 2016 10:00AM mairew wrote:

Angela I might be able to meet on Thursday.

Dx at 42. Oncotype 14 Dx 11/2015, ILC, Right, 3cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 2/22/2016 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 21, 2016 06:45PM woodstock99 wrote:

Just checking in to see if anyone is going to the Retreat at Presbyterian this Saturday that I posted about? Hope everyone is doing well.

1/12/16 BMX. Stage 1/DCIS.
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Jun 22, 2016 09:28AM woodstock99 wrote:

Ladies just wanted to post this link to free seminar coming up in Addison on 7/8. https://www.eventbrite.com/e/free-breast-cancer-survivors-expo-tickets-22075039036

The American Association of Breast Care Professionals at this year's 2016 AABCP Mastectomy Summit & Expo will be opening up the Exhibition Hall to Breast Cancer Survivors on Friday morning, July 8th.

Raising awareness about the mastectomy fitter profession and foster a greater understanding of the products that are available to breast cancer survivors post mastectomy is a core mission of the AABCP

Come see breast cancer garments, lingerie, hair replacement options, cancer care items, lymphdema sleeve options and breast prosthetics for all levels of surgery and throughout treatment timelines.

Come visit AnaOno, Tara Dunsmore of Pink Ink Tatoos, Noggins, Wrapped in Love, BlushLife Apparel, Anita International, Nearly Me, Bandeau Distributors and many many, more...

Tickets are FREE but registration is requestion and available online and at the Door. While not required, all donated proceeds will be given to a local post mastectomy charity.

WHEN

Friday, July 8, 2016 from 8:00 AM to 12:00 PM (CDT) - Add to Calendar
WHERE
AABCP Mastectomy Summit & Expo - Intercotinental Hotel 15201 Dallas Pkwy, Addison, TX 75001 - View Map


1/12/16 BMX. Stage 1/DCIS.
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Jul 13, 2016 09:20AM woodstock99 wrote:

Wanted to pass this along. I met Dr. Nguyen for a consult and he's excellent. I hope you never need him but this is a great opportunity for Q&A on LE next Tuesday night. Hope to possibly meet some of my BCO friends.


1/12/16 BMX. Stage 1/DCIS.
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Jul 13, 2016 11:22AM RMlulu wrote:

Hi y'all!

Just wanted you to know - TX Hill Country BC Warriors meets up frequently during the year and we would love to meet y'all.

Sunday, October 23, 2016 a group of ladies from all over the BC boards will be joining us in San Antonio. There are 8 out of state ladies staying at the Wyndham RiverWalk and want to meet up with us TX gals.

PM me for details...a fun weekend get away.

Hope you will join us

Cindy

Dx 12/18/2012, IDC, <1cm, Stage IB, Grade 2, 0/7 nodes, ER+/PR+, HER2- Surgery 1/23/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 3/14/2013 Hormonal Therapy 6/1/2013 Aromasin (exemestane)
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Jul 13, 2016 12:03PM woodstock99 wrote:

Thanks RMlulu - I know of the group that is coming to SA and have it on my calendar to see if I can come down for the day that Sunday if you are getting together for lunch. It;'s budget time at work so I can't get away longer. Thanks for reaching out.

1/12/16 BMX. Stage 1/DCIS.
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Jul 13, 2016 04:42PM kellychameleon wrote:

Oh, I might be interested in that! I have a lot of friends down in that area and am always looking for an excuse to make a road trip down that way. I'll PM you, RMlulu.

Dx 12/15/2015, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2- Chemotherapy 1/12/2016 AC + T (Taxol) Surgery 6/1/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2016 Carboplatin (Paraplatin), Xeloda (capecitabine) Radiation Therapy 1/7/2017 Whole-breast Surgery 4/5/2017 Prophylactic ovary removal Surgery 8/28/2017 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Dec 8, 2016 01:24PM - edited Jan 28, 2018 07:17PM by woodstock99

This Post was deleted by woodstock99.
1/12/16 BMX. Stage 1/DCIS.
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Dec 8, 2016 08:21PM Lunderwood wrote:

Hi Balthus - It's nice to hear from you. I too am dealing with my first post surgery winter. I have been so sluggish since my exchange surgery at the end of September- trying to lose the 8lbs I gained and get motivated to exercise on these cold dark mornings. I am also being treated by UTSW in Dallas - I am insured by Horizon BCBS out of New Jersey (where my parent company is located). How did you find out that they will be out of network in 2017? Did your insurance company notify you or did the medical facility? I am having a outpatient surgery on 12-29 for the nipple reconstruction. (I am trying to get through as much of this reconstruction in 2016 as possible since I have met all my insurance out of pocket for year) but obviously I will have follow up and still oncology appointments in 2017. I truly don't want to change doctors at this point.

Thanks for the link to article about Laura Miller. Isn't it amazing how many women are dealing with breast cancer?

Take care! Stay warm!

Dx 11/19/2015, IDC, Right, 2cm, Stage IIA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Hormonal Therapy 1/4/2016 Arimidex (anastrozole), Faslodex (fulvestrant) Surgery 6/14/2016 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement
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Dec 9, 2016 12:53AM - edited Jan 28, 2018 07:16PM by woodstock99

This Post was deleted by woodstock99.
1/12/16 BMX. Stage 1/DCIS.
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Dec 9, 2016 10:56AM tangandchris wrote:

Thanks for sharing this information...I had no idea. I have BCBS and had most of my surgery and care done thru Presby Rockwall. I love the hospital and this is very disappointing. I'll be honest, not too savvy about what insurance coverage means here though. If they are out of network then I suppose I cannot use this facility any longer?

Also, thanks for sharing the article about Laura Miller. I didn't know she had dealt with BC once before, and now it is back after 18 years! I enjoyed her writing and her honesty. I told dh and he said "what happened to the 5 year thing" and I told him that the 5 year thing doesn't really apply to BC patients. *sigh*

Stay warm ya'll!

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/22/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/12/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to bone/other, ER+/PR-, HER2-
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Dec 11, 2016 01:04PM kellychameleon wrote:

Balthus, thanks for posting the article on Laura Miller. I didn't realize that she had had breast cancer before. I didn't care for her as mayor, but I thought that the article was well written, and I wish her the best! We have the same MO (Dr. O'Shaughnessy), so maybe I'll run into her over at Baylor. :)

I'm sorry for everyone dealing with health insurance issues. When I get frustrated with Aetna, I need to remind myself that I'm lucky to have the coverage, and the amount that they've paid out this year is jaw dropping. My mom had breast cancer 12 years ago, and had really bad individual insurance through Unicare (which isn't around anymore, at least in Texas). They tried to deny just about every claim, and she spent half of her time fighting with them when she was in the throes of chemo. It was so infuriating.

Dx 12/15/2015, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2- Chemotherapy 1/12/2016 AC + T (Taxol) Surgery 6/1/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2016 Carboplatin (Paraplatin), Xeloda (capecitabine) Radiation Therapy 1/7/2017 Whole-breast Surgery 4/5/2017 Prophylactic ovary removal Surgery 8/28/2017 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Dec 11, 2016 01:20PM Warrior4sararyan wrote:

Hi I am looking for a second opinion from a oncologist. I live in Irving and am right now going to Baylor and Texas oncology. I just would like to cover all bases and get another opinion as I am having really bad side effects from my hormone therapy Arimidex.

Diane

Dx 8/2/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 9/6/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 10/11/2016 Arimidex (anastrozole)
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Dec 12, 2016 10:54AM tangandchris wrote:

So I received a card in the mail regarding my coverage with BCBS and Texas Health. Indicated that they were working on the contract, but it's not looking good.

I called BCBS this morning and the rep I had said they had just been in a meeting and we're told this information was not true....just rumors.

I told her the mailing I had was from BCBS.....so she is looking into it and someone is supposed to call me back.

Strange

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/22/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/12/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to bone/other, ER+/PR-, HER2-
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Dec 12, 2016 07:52PM - edited Jan 28, 2018 07:16PM by woodstock99

This Post was deleted by woodstock99.
1/12/16 BMX. Stage 1/DCIS.
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Dec 13, 2016 01:50PM Warrior4sararyan wrote:

What contract are they working on? Baylor? I did talk to a nurse at BCBS and she said that they have not come to agreement with UTSW but she did not say anything about Baylor healthcare.

Diane

Dx 8/2/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 9/6/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 10/11/2016 Arimidex (anastrozole)
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Dec 15, 2016 05:23PM RMlulu wrote:

Hi y'all

Interesting on BCBS hmm.

Warrior considered contacting Jwoo or keepthefaith both had chemo MO in area.

Please consider join us Hill Country ladies for a meet up in January 2017.

Merry Christmas and Happy New Year!

Ci d

Dx 12/18/2012, IDC, <1cm, Stage IB, Grade 2, 0/7 nodes, ER+/PR+, HER2- Surgery 1/23/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 3/14/2013 Hormonal Therapy 6/1/2013 Aromasin (exemestane)
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Dec 16, 2016 12:16AM - edited Jan 28, 2018 07:16PM by woodstock99

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1/12/16 BMX. Stage 1/DCIS.
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Dec 18, 2016 09:37PM ayr1016 wrote:

kellychameleon, Dr. O is my MO as well.

Diane, Have you considered getting a 2nd opinion within the Texas Oncology team?

DX at age 41, Oncotype DX 15, Neoadjuvant Hormone Therapy: Lupron + Tamoxifen (then Arimidex) Dx 12/22/2015, IDC, Left, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Hormonal Therapy 2/4/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/9/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 9/12/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Dec 19, 2016 12:04PM Warrior4sararyan wrote:

Yes, I tried for a second opinion and the doctor at Texas Oncology declined. I heard they don't like you to switch doctors. I guess I will look around and try to find one on my own.


Dx 8/2/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 9/6/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 10/11/2016 Arimidex (anastrozole)
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Sep 18, 2021 12:14PM - edited Sep 18, 2021 12:16PM by Lakshmi108

Am in Frisco tx, Married but much alone.. looking forward to any meet ups in dfw area

2019: stage 1 lumpectomy and one week radiation. One tamoxifen per day. Life and work are too busy to worry about bc. Occasionally freak out on the unknown.

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