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Topic: Ohio Sisters

Forum: Member Matchup & Local Support Groups —
A place for members to request and respond to requests from women looking for a one-on-one mentor, or to connect with others living in similar geographic areas.

Posted on: Nov 19, 2016 01:12PM

SusieM49 wrote:

Hello there. I am hoping to form a group of those who live in the surrounding area. Perhaps to get together at some time but also simply to understand more of what the other's are going through. Perhaps some of us have treatments at the same facilities. Some of us may suffer with the same symptoms during seasonal changes.

I am in SW Ohio. Hoping to get to know many of you.

~Susie

Dx 1/10/2016, IBC, Right, Stage IIIB, ER-/PR-, HER2- Surgery 10/16/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Sep 12, 2017 10:17PM SusieM49 wrote:

Thank you for the reminder. I am not on Facebook but that is a wonderful resource for many woman. Good to know!

Dx 1/10/2016, IBC, Right, Stage IIIB, ER-/PR-, HER2- Surgery 10/16/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 18, 2017 09:33AM jenw1201 wrote:

Hello, fellow Ohioans. I'm new to the board and newly diagnosed. I have decided to be treated at the Stefanie Spielman Center at OSU/James. Team consists of: Drs. Farrar, Cabiling and Ramaswamy. Looking for feedback on any of them. We have been very pleased with Spielman and each of the doctors thus far.

Waiting for genetic testing results before making final decision regarding surgery. Right now tentative plan is unilateral mastectomy of left breast with DIEP flap reconstruction, hopefully skin and nipple sparing. If test come back BRCA+ I may opt for bilateral, but am torn between DIEP flap or extenders followed by gummies. I'd love to hear from anyone who has decided to go with either option and why.

Thanks!

Dx 10/12/2017, ILC, Left, 3cm, Stage IIA, Grade 1, ER+/PR+, HER2-
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Nov 18, 2017 01:36PM Countrygirl80 wrote:

Hi jenw1201...! You have selected a powerhouse of doctors at the Spielman. Dr. Farrar is my surgical oncologist and Dr. Cabiling and his team did min DIEP flap recon. I am a year out from surgery and couldn't be happier with the result. Would be happy to tell you more and answer specific ?s you have. PM me if you like

Dx 6/2016, IDC, Right, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Surgery Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): DIEP flap
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Nov 18, 2017 01:43PM - edited Nov 18, 2017 01:43PM by Countrygirl80

This Post was deleted by Countrygirl80.
Dx 6/2016, IDC, Right, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Surgery Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): DIEP flap
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Nov 18, 2017 01:46PM Countrygirl80 wrote:

I'm not sure of your age, but am guessing you're on the young side given the genetic testing...but I have three young kids. The youngest was 8 months old when I had surgery. That was the HARDEST part of recovery by far - not being able to pick him up and such. Not sure your circumstance. I'm glad I did the recon when I did - but it was rough. If I did it over again, I wouldn't make a different decision.

Dx 6/2016, IDC, Right, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Surgery Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): DIEP flap
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Nov 22, 2017 10:26AM SusieM49 wrote:

Jenw, welcome! I'm not in the area so not knowledgeable of those doctors. Glad you found this sight though, as they have much to offer.



Dx 1/10/2016, IBC, Right, Stage IIIB, ER-/PR-, HER2- Surgery 10/16/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 28, 2017 09:30PM Logang wrote:

Hi Jenw. I also get treatment at the Stephanie Spielman Comprehensive Breast Center. I have a different team of doctors though. My only option for reconstruction was expanders to implants. I have mentor Silicone gel and I'm happy with the results.

Married mother of 2 boys (16 & 20). Diagnosed at age 39, Oncotype- 57, extensive family history, no genetic mutations found. Dx 1/8/2016, IDC, Right, 3cm, Stage IIA, Grade 3, 0/31 nodes, ER+/PR-, HER2- Surgery 1/24/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right Chemotherapy 3/10/2016 AC + T (Taxol) Hormonal Therapy 7/26/2016 Zoladex (goserelin) Hormonal Therapy 9/18/2016 Aromasin (exemestane) Surgery 11/2/2016 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/8/2017 Reconstruction (left): Nipple tattoo, Silicone implant; Reconstruction (right): Nipple tattoo, Silicone implant Surgery 9/5/2017 Prophylactic ovary removal
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Nov 29, 2017 06:00AM Batesburg wrote:

Hello!

I completed all my treatment at Stephanie Spielman. I was very happy with my team of doctors. My oncologist, MaryAm Lustberg, is incredibly gifted at individualized care- she is just a text away- answers all my questions, addresses all my fears, all the while using her expertise to guide me toward the best decisions possible for me.

My radiation oncologist, Dr. Young, is no longer with OSU- unfortunately. She was very smart and caring. A unique combination, for sure.

Dr. Skoracki is a wonderful plastic surgeon and to round out my team, I was so lucky to have Dr. Terando as my surgical oncologist- she has a wonderful NP- Ann Mangino.

Life is good! I hear U of M is an excellent center as well.

Dx 6/19/2015, IDC, Left, <1cm, Stage IIA, Grade 3, 2/21 nodes, ER-/PR-, HER2-
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Nov 29, 2017 09:41AM Denise-G wrote:

Just chiming in - I live in Toledo area. I know lots of women who have gone to Stephanie Spielman and all have great things to say.

I chose Univ of Michigan and am their biggest cheerleader as they treated me, my mom and sister. Our team of physicians are incredible!

We've been there over 200 times collectively.

I call it my "vacation home" - heckuva vacation but I take what I can get - LOL! Have to have my other breast removed in the Spring (had a UMX in Nov. 2011) because I am high risk and my sister and I have the Chek 2 delc gene.

All my best to those just starting this wild ride! You can get through it. I was the biggest medical sissy before BC. Couldn't even stand a blood test.

www.denise4health.info my BC Blog with over 200 informative posts - stop by and say hello! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 11/23/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/27/2011 AC + T (Taxol) Targeted Therapy 2/28/2012 Herceptin (trastuzumab) Hormonal Therapy 10/11/2012 Arimidex (anastrozole)
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Nov 30, 2017 06:28AM jenw1201 wrote:

Thanks everyone for the great information. Pre-op tests and final appointments with surgeons today. Genetic tests came back negative. Surgery scheduled Dec 11. Need to decide today about doing unilateral or bilateral. Still on the fence.

Dx 10/12/2017, ILC, Left, 3cm, Stage IIA, Grade 1, ER+/PR+, HER2-
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Dec 6, 2017 11:08AM Soorya wrote:

Hi All


I am diagnosed with recurrence and currently going to Stephanie breast center

I think getting appointments is a challenge.I have to wait for 1 week since my doctors will see patients only 1 day per week


Is it common for all doctors in Stephanie breast center?

Any ideas are highly appreciated

Thanks

Dx 2016 TNBC Grade 3 (0 to 3 nodes +ive) Dx 2017 stage yet to be determined
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Dec 8, 2017 06:49AM Batesburg wrote:

Hi Soorya,

I was able to get in right away (within a few days from diagnosis) but I am not certain if that was unusual or not. Dr. Maryam Lustberg is my MO and she is off the charts - wonderful clinician and supportive/caring. I know she sees patients on Tuesdays and Fridays.

Who is your appt currently with?

Janet

Dx 6/19/2015, IDC, Left, <1cm, Stage IIA, Grade 3, 2/21 nodes, ER-/PR-, HER2-
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Dec 10, 2017 09:49AM Logang wrote:

My doctors are in several days a week, but also have PAs and NPs to help cover when they can't be in the clinic...

Married mother of 2 boys (16 & 20). Diagnosed at age 39, Oncotype- 57, extensive family history, no genetic mutations found. Dx 1/8/2016, IDC, Right, 3cm, Stage IIA, Grade 3, 0/31 nodes, ER+/PR-, HER2- Surgery 1/24/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right Chemotherapy 3/10/2016 AC + T (Taxol) Hormonal Therapy 7/26/2016 Zoladex (goserelin) Hormonal Therapy 9/18/2016 Aromasin (exemestane) Surgery 11/2/2016 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/8/2017 Reconstruction (left): Nipple tattoo, Silicone implant; Reconstruction (right): Nipple tattoo, Silicone implant Surgery 9/5/2017 Prophylactic ovary removal
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Feb 20, 2018 07:26PM Debsmisto wrote:

Hi all, I just found this thread and am going to the Spielman Center myself, I love my surgeon and all of the PAs etc but not sure about my MO, I won't mention a name here but am thinking of changing, who would you all recommend? Glad I found this thread!

Dx 1/4/2018, IDC, Right, 1cm, Stage IIIB, Grade 2, ER+/PR-, HER2+ (FISH) Targeted Therapy 2/7/2018 Herceptin (trastuzumab) Chemotherapy 2/8/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Feb 20, 2018 10:11PM Countrygirl80 wrote:

I doctor at the Spielman and my MO is Nicole Williams. She's a HER2 specialist. Very compassionate, always encouraging...

Good luck with treatment - you're in the best hands

Dx 6/2016, IDC, Right, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Surgery Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): DIEP flap
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Feb 21, 2018 06:50AM Batesburg wrote:

My MO was Dr. MaryAm Lustberg- she really met my needs and continues to do so!

Dx 6/19/2015, IDC, Left, <1cm, Stage IIA, Grade 3, 2/21 nodes, ER-/PR-, HER2-
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Feb 23, 2018 07:57PM Jcoll4 wrote:

I live in SE Ohio and was recently diagnosed at the OSU breast center. I met this past week with the MO who explained my pathology report “changed” and that the FISH test came back positive. I had initially been told that I was TN. My tumor is about 1cm and I was encouraged to treat with a lumpectomy but I want a bilateral mastectomy. I go to cleveland clinic on Wednesday for a second opinion. I have 2 young boys, ages 12 & 11, and a husband of 14 years. I am happy to have found this page and grateful for the support

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Mar 2, 2018 11:12AM Soorya wrote:

Hi all

Can anybody recommend good place to get prosthetics in columbus ohio?

Thanks

Soorya


Dx 2016 TNBC Grade 3 (0 to 3 nodes +ive) Dx 2017 stage yet to be determined
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Mar 13, 2018 05:45PM Logang wrote:

My oncologist is Raquel Rinebolt. Hopes Boutique at the Stephanie Spielman Comprehensive Breast Center is where I got my wig, prosthetic, and mastectomy bras.

Facebook ladies look for my Ohio group: https://www.facebook.com/groups/374096329612724/

Married mother of 2 boys (16 & 20). Diagnosed at age 39, Oncotype- 57, extensive family history, no genetic mutations found. Dx 1/8/2016, IDC, Right, 3cm, Stage IIA, Grade 3, 0/31 nodes, ER+/PR-, HER2- Surgery 1/24/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right Chemotherapy 3/10/2016 AC + T (Taxol) Hormonal Therapy 7/26/2016 Zoladex (goserelin) Hormonal Therapy 9/18/2016 Aromasin (exemestane) Surgery 11/2/2016 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/8/2017 Reconstruction (left): Nipple tattoo, Silicone implant; Reconstruction (right): Nipple tattoo, Silicone implant Surgery 9/5/2017 Prophylactic ovary removal
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Apr 24, 2018 02:17PM Fixyourdog wrote:

i have just been diagnosed with IDC at OSU's Stefanie Spielman. I took the 1st available appointment on April 27 with Dr. Valerie Grignol, surgeon. If I wait til the following Tuesday, I could see Dr. Farrar, who removed my benign cyst in 1996. Very kind man then.

Dr. Farrar is nearing retirement and also serves as interim CEO of the James, so tho' he is still the breast cancer star, I did begin to wonder if it would be better to find someone in mid career. Therefore I said ok today to an appt with Dr. Grignol, especially because I want to get this train moving asap. Of the OSU Stefanie Spielman's surgeons, she is the only one NOT in Castle Connelly (Columbus Monthly) top doctor's database. I am not sure if that means anything or not.

If anyone has any thoughts on the above, I'd apppreciate them.

I will likely need radiation and am considering going closer to home (Hocking county), for example Fairfield Medical (Lancaster) or Adena (Chillicothe).

Has anyone been treated at either of these?

Diagnosed at 65; Still playing the Pollyanna glad game Dx 4/20/2018, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR-, HER2- (FISH) Surgery 5/22/2018 Lumpectomy: Left; Lymph node removal: Sentinel

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