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Topic: Calling All Healthcare Workers

Forum: Member Matchup & Local Support Groups —
A place for members to request and respond to requests from women looking for a one-on-one mentor, or to connect with others living in similar geographic areas.

Posted on: Apr 21, 2017 01:03AM

Brneyegrl6608 wrote:

Hello Everyone! I thought it would be nice to have a place where healthcare workers who have/had breast cancer or those who work in the healthcare field with cancer patients could have a place to talk about workplace issues, becoming the "patient", etc.

My experience so far: I was recently diagnosed at the age of 41 with tnbc. I am a nurse on Labor and Delivery with previous experience working in the Emergency Department. I am receiving treatment at my workplace, which is comforting in a way, but also feel a need to keep vigilant about keeping medical privacy.

I find myself researching this disease as if it was a school project. Keeping to the facts and finding good sources helps to keep the emotions in check a little better. I'm driving my doctors a little nuts with my page of written questions at appointments and right now trying to be a good advocate for myself and still not being that annoying nurse.

My oncologist says I will be off work for a year. Hard to digest that information. I love what I do and the financial burden of losing my income is hard on my family. Trying not to stress about where the money is going to come from.

What's your experience? Did you return to your previous position or have to change jobs/careers due to your treatment?

"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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Apr 21, 2017 02:12PM gb2115 wrote:

Hello! I also work in healthcare, and was able to keep working through treatment. I took a little over a week off after my lumpectomy (and in hindsight wish I had taken more), but was able to work through radiation though my work days were a little chopped up. I have a supportive clinic-type environment with a flexible work schedule, so that helped me a lot. If I had ended up getting chemo, I would have taken FMLA leave.

I found it hard being the patient. I think we're trained to notice certain things. This became a problem for me when I'd notice something that wasn't quite as it should be. There were certain situations where my patient care (or cleanliness of the facility) wasn't quite up to par, and that was awkward for me.

I also go to doctor's appointments with a written list. You have to...no questions no answers. And they charge insurance a LOT of money for those appointments. The least they can do is give you adequate time!


Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen.
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Apr 21, 2017 03:26PM Brneyegrl6608 wrote:

  • gb2115 I am taking FMLA and short term disability. I'm looking at 6 months of chemo. I'm hoping that I can go back sooner during radiation treatments. I think I'm looking at 35 treatments but we are still working out those details. I'm not doing reconstruction so I can go back sooner. I'm worried about 12 hour shifts in the floor and what kind of shape I will be in after everything is done. I'm exercising now so hopefully I can keep doing that during treatments. I'm so happy for you that they are working around your schedule!
"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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Apr 21, 2017 04:39PM melmcbee wrote:

I was iriginally diagnosed about 5 years ago and took fmla through surgeries and some chemo. I worked during radiation. It was the sickest i ever been. Now 5 years later Im trying to work after met duagnosis with taken intermittent fmla and only out for treatment or dr appointments. Its very stressful trying to balance my job responsibilities with taking care of myself. I also get a little ill when patients come to ER for issues that have been going on for a month that they should see there primary doctor for and they complain about how long it takes. Emergencies such as stroke or heart attacks come first. Its also hard when you are sicker then the patient. I hate when people demand you move them from stretcher to table and then an hour later they walk out of Er happy for their pain meds. So I pray that Im a good payient caregiver today and pray for understanding

Melanie. mentor smooth round high profile gel 700 rt 550 lt with fat grafting 5/30/2013 Dx 6/24/2012, ILC, 2cm, Stage IIIA, Grade 2, 8/15 nodes, ER+/PR+, HER2- Surgery 7/8/2012 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Surgery 8/8/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 8/22/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/8/2013 Breast, Lymph nodes Surgery 5/29/2013 Reconstruction (left); Reconstruction (right) Surgery 12/3/2013 Reconstruction (right) Dx 3/29/2017, ILC, Stage IV, metastasized to bone, ER+/PR- Targeted Therapy 5/15/2017 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Apr 21, 2017 05:46PM Brneyegrl6608 wrote:

Melmcb- I can't imagine how frustrating that must be for you. I would be frustrated with those same type of pts when I worked in the ED and that was before I had cancer. My thoughts are with you and I hope you are granted the patience to do your job.

"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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Apr 24, 2017 09:41AM gb2115 wrote:

Brneyegrl66--Working through radiation was completely do-able, physically. I almost went out on FMLA, but that's because I ended up getting an allergic reaction to the radiation lotion they had me using---I was completely miserable for a couple of weeks to the point of asking for sedatives, but an emergency dermatology appointment quickly took care of it. Had my skin not decided to go bonkers with allergy, the radiation side effects would have been minimal. I had minor nausea like morning sickness, and a scratchy throat. Fatigue by most Fridays but it got better quickly over the weekend. I did go bra-less under my scrubs at work for a couple of weeks, but that was ok even though it was weird. I couldn't stand my bra straps rubbing against my allergic skin.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen.
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Apr 24, 2017 10:37AM ksusan wrote:

Greetings, all. I'm primarily faculty these days, but occasionally a psychotherapist.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 24, 2017 11:04AM vlnrph wrote:

I'm retired now but keeping up my license in case I want to pick up a few hours behind an Rx counter again sometime. I took 4 months of FMLA during treatment then went back to work for a year and a half.

The worst problem I had was after lymphedema started. Could not figure out how to performing proper hand washing while wearing compression garments - tried a cotton glove over a gauntlet to minimize 'contamination' but then my fingers would swell. Also carried a pocket UV sanitizer designed to use on grocery cart handles, etc. however was never sure it was doing an adequate job on soft surfaces.

Thanks to all you nurses who soldier on!

IDC too! Rt MX/DIEP 4-2011; ALND 5-2011 d/t micromets; TC X 4; tamoxifen; lymphedema as of 9-18-11; switch to letrozole 3-15-14; Discovery made during chemo=I'm a human BEING, not a human DOING Dx 3/7/2011, ILC, 2cm, Stage IIA, Grade 2, 1/25 nodes, ER+/PR+, HER2-
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Apr 24, 2017 11:29AM MTwoman wrote:

I am a therapist and was working at a community mental health center during my bc treatment. I worked, except for some weeks when I was out of town for specialty diagnostics or consultations (at the time, our small hospital didn't do breast mri or have a comprehensive cancer treatment center). I didn't end up needing chemo or rads, but did have 5 surgeries. I found it really helpful to take my mind off of myself and focus on my patients. I was even on the crisis response team and was on call a couple of days after one of my surgeries.

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Apr 24, 2017 07:57PM Brneyegrl6608 wrote:

Gb2115 I would be extremely happy if I can go back during radiation. I guess I will see how I am after chemotherapy is done.

Ksusan - greetings:)

Vlnrph - I am very nervous about developing lymphedema. I am doing arm exercises religiously and hope I can avoid it. The amount of hand washing I do at work plus having to possibly scrub for c-sections would be impossible with compression garments.

Mtwoman - I admire you're ability to keep working! Plus looking at your dx gives me a lot of hope:)


"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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Apr 25, 2017 12:33PM NotVeryBrave wrote:

I'm an RN and was doing PRN home care visits (high risk OB education and evaluation) before my diagnosis. I haven't worked since practically as soon as I found out I had BC. First it was all the appointments and then it was the port placement and chemo.

If I'd had a different job, I probably could have worked the week before the next round of chemo. I was usually feeling mostly okay by then. But having a regular allotment of patients to see each week made it hard to give them up for two weeks and then want them back for one week. And having to see patients in their homes - it's not like I could just reschedule if I wasn't feeling well or ask to use their bathroom or something.

I miss the good parts about working - helping people, being useful, having a paycheck. I'll be having surgery next month so feel like there's no point in heading back now. Maybe after recovery and during radiation? Not sure ...

TCHP x 6 rounds - Complete Pathological Response! Still have to finish the year of Herceptin ... Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/18/2016 Herceptin (trastuzumab) Chemotherapy 12/18/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 12/18/2016 Perjeta (pertuzumab) Surgery 5/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 25, 2017 01:37PM lidabit wrote:

Hello! I am sorry to hear you have joined the club. I am 36 years old and was diagnosed with triple positive cancer in September 2016. I have had fertility preservation, TCHP chemo, surgery and I have now started radiation. I am a nurse in an outpatient facility and work everywhere from primary care, peds, OB/gyn, and have a background in gyn Onc. I really wanted to work throughout treatment, but my oncologist highly recommended that I not work. Not because of the physical aspects of the job, but due to the emotional fatigue. As much as I love my job, caring for patients can take a lot. Looking back, I am glad I didn't work though chemo. It allowed me to focus on taking care of myself. I did work through fertility preservation and that was tough. I have been off work since October. I do desperately miss working, but radiation is about an hour away in no traffic and I think I have just accepted that I won't return until treatment is done.

I also struggle with the privacy portion. I have to get labs at the facility where I work and every time I go in, I see at least 5 people I know. I used to feel obligated to greet everyone. Overtime, I learned to let that go. The building where I work has about 100 employees. They all know me very well since I float to different departments. When I was first diagnosed I wanted to keep it a secret, but it was too exhausting to try and keep that up. Everyone always asked why I wasn't working. I ended up telling everyone. They have been really supportive. Now I don't know what I would have done without the support of my work family. They even started a fund that really helped ease the financial burden.

As far as the research goes, I completely understand. For me, the technical information is far easier to digest and I agree it allows me to separate my emotions. I was the same way with my questions. When I was first diagnosed, I created a spread sheet and coded each question by who I needed to ask it to (MO, PS, BS etc). I think it helped to feel like I was doing something. Now I make a list of a few questions, but I wait until the doctor is done and then ask if my questions weren't answered. I also record every appointment so I can be present in the appointment and not worry about having to remember everything.

I do feel lucky that I have this background. I have people that I know and trust to recommend good providers. I also have people to ask when I want to make sure I am getting the right treatment.

The hardest part in all of this is remembering I am the patient. It is hard to turn off the caregiving portion of myself.

Okay, long rant done. Know you will get through this. Allow yourself to be taken care of.


Dx 9/2016, IDC, Right, 2cm, Stage IIB, Grade 2, 0/9 nodes, ER+/PR+, HER2+ (IHC) Dx 9/2016, DCIS, Right, 4cm, Stage 0, Grade 2, ER+/PR+, HER2+ Chemotherapy 10/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 10/19/2016 Perjeta (pertuzumab) Targeted Therapy 10/19/2016 Herceptin (trastuzumab) Dx 3/2/2017, IDC, Right, <1cm, Stage IIB, Grade 2, 0/9 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/2/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/15/2017 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast, Chest wall
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Apr 25, 2017 02:54PM Brneyegrl6608 wrote:

I also struggled with telling people at work, but once I knew I was going to be off for such a long period of time, I decided it would be easier to tell everyone. I have a lot of great support from my work family as well. I set it up that two people ( one day/night shift) would receive updates from me to tell everyone else in my unit so I wouldn't have to repeat information and could control what was being told to everyone. They threw me a "ta ta to the ta-ta" dinner party before my surgery and have set-up meals three times a week for my family and I. It's a huge help and even more so I imagine when chemotherapy starts in a few weeks.

I feel lucky to have my background as well and to have the treatment at my facility. I knew which surgeon and oncologist I wanted and I know the layout of the hospital so no getting lost trying to find the different areas like radiology and the cancer center.

"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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Apr 26, 2017 10:37PM Tpralph wrote:

I am a NP working in a community health centre, so not overly active. Have about 700 patients, caring from birth to death.

 I like everyone else had difficulty telling my coworkers, hell everyone I know. Would cry as I told them, then got to a point where I asked some of them to tell everyone else as I no longer could face doing it. Even had hard time telling my sister- texted her and told her I couldn't talk to her that day but then I did the next day. found it easier to write it to people then to face to face tell them.  Hardest thing I ever had to do ; not to mention handling this cancer thing...I am working right up until surgery may 18, then will be off for at least 6 months (hoping all goes well and therefore wont be longer) Have told some of my patients but keep it very light, telling them "i have a bit of breast cancer and going to get them hacked off and upgraded) find they take it well when I make light of it.  Hate anyone giving me the sympathy look. Many are wondering when they can be booked back to see me!  Glad they are saying things like this  ....

Nice to meet up with other health care professionals, we are a class on our own. In fact, we are not supposed to be here, this was not to happen to us! (in my crazy mind)  Good to know the lingo bu also So hard knowing too much and what can happen, almost wish I was ignorant to it all.....blissfully.....sigh

Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/17/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol)
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Apr 27, 2017 07:21AM Brneyegrl6608 wrote:

Tpralph - knowing too much is the hard part, but it also can help with decision making and being your own patient advocate. I insisted on an MRI before surgery because the surgeon wanted to do a lumpectomy and I wanted better images before I made that decision. MRI showed more than one area of cancer and I got a masectomy. Also, I ask the doctors to not sugarcoat any information - just give it to me straight. I didn't know a lot about breast cancer before this, but I'm catching up:) This forum helps a lot too. Reading and posting with other people going through this has taken me down from the ledge and kept my fear and emotions in check.

I type in a text message the updates info I want people to know at work and send it to the two coworkers. it helps me emotionally to do it that way. Also find ways to find the humor in things.

"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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Apr 27, 2017 10:41AM gb2115 wrote:

I made sure everyone in my clinic knew, though had some of my closer coworkers pass it on because I didn't have the emotional energy. I realized it was easier for everyone to know so if I was walking around with a miserable face at least people would know it had nothing to do with them.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen.
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Apr 29, 2017 10:05PM - edited Apr 29, 2017 10:10PM by Cricket610

My cancer was found by diagnostic mammogram and ultrasound 2 years ago today. During the ultrasound, the radiologist told me straight out that the area they were targeting looked like a small cancer. Being a radiation oncology nurse, I knew full well what could be ahead, although of course, I would not know the details until I knew pathology. Even though it only took a few days, it was amazingly hard to wait for the results! I went on the have a biopsy, lumpectomy and 2 re-excisions for positive margins- ILC with LCIS, Grade 2, 1.4 cm, 2 negative sentinel lymph nodes, ER/PR positive, Her-2 neu negative, Oncotype 7. I went on to have radiation with my own group, which was weird and wonderful. I truly work with the best oncology group ever and with their love and expertise, they carried me through my experience. Right at the beginning I told the whole group via email- I wanted them all to know, since they would each find out soon enough as I went through treatement! I am also thankful to Lord for the strength He gave me during that time and for the special insight I now have for my patients. Time and again I tell certain patients that I can relate, that I have actually gone through it, share my story, and it gives them hope. I am excited about this thread! Thanks for all who have shared!

Dx 5/2015, ILC, Stage I, Grade II, ER/PR positive, Her-2 neu negative, Lumpectomy, Radiation and Tamoxifen
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Apr 29, 2017 11:33PM Brneyegrl6608 wrote:

Welcome cricket! I also believe this experience will make me a better nurse. I don't know where this journey is going to lead, but I already feel profound changes in my overall outlook on things.

"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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Apr 30, 2017 10:07AM Herculesmulligan wrote:

I'm a 47 year old optometrist who works in a big multi sub eye specialty practice. My coworkers have been just great. What seems tough for me is , in a small town, running into my patients while I'm a patient. At physical therapy, or while I'm in the waiting room at the cancer center, I might run into a patient, and can see them wondering , " why is she here?". That's a perfectly legitimate question, but one that gets exhausting to answer over and over.

Another thing I have discovered is that I have to be careful about over sharing, especially because it's my nature to do just that. Most of my colleagues are surgeons, and they're honestly interested in what's being done to me, and that I get the best care available, but they're still my breasts. It woykdnt seem so sensitive if my arm or my food were being treated. But I've several times gotten into conversations and thought " oh god you're discussing your nipples with Steve! How did I get here?

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Apr 30, 2017 12:44PM Brneyegrl6608 wrote:

Hercules - I almost snorted my coffee through my nose! I try to keep things private but I have a few friends ( doctors and nurses) who want to know every detail. One person wanted to see my mastectomy scar! Who would ask that in a normal conversation???

"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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Apr 30, 2017 07:06PM ksusan wrote:

:) I told my students, "If this were my knee, I'd tell you it was knee cancer. I had breast cancer. That's all I'm going to tell you, but I think it's important to give it its name."

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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May 1, 2017 11:01AM MTwoman wrote:

Since I worked at a community mental health center as a therapist and crisis worker, I did not tell any of my patients that I had breast cancer. I did tell them that I had to deal with some health issues when I was out of the office the first time, and just reiterated that on subsequent times OOO. They were worried about me, but actually respected my boundary (I didn't share really anything personal with patients) and were relieved and satisfied when I told them I would be fine. They really were there to work on their own issues/problems and needed to have that space be about them. It helped me as well, in that I could focus very intently and exclusively on their problems for an hour, instead of my own :) The staff knew, and I had amazing support from them, but we were used to keeping personal info to ourselves.

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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May 1, 2017 11:04AM Brneyegrl6608 wrote:

Just had my port placement and as I was lying on the surgery table looking up at the lights and everyone getting me ready, I suddenly felt overwhelmed with the feeling that I'm now the patient. I can't count how many times I was that nurse hovering over the patient with my mask and hat hiding most of my features. Everyone almost looks like aliens from another world when you're lying there looking up. Just trying to get use to being on the other side.

"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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May 1, 2017 11:33AM ksusan wrote:

And then there's this person:

https://www.theguardian.com/uk-news/2017/apr/29/ca...

The scandal surrounding the rogue surgeon Ian Paterson is likely to widen after lawyers revealed on Saturday that they are receiving allegations implicating other hospitals and specialists.

On Friday, Paterson, 59, a consultant surgeon, was found guilty of carrying out needless breast operations in a scandal that has forced the NHS to pay almost £10m in compensation to more than 250 of his patients, though the true number of victims could eventually run into the thousands.

Paterson was convicted of 17 counts of wounding with intent, relating to nine women and one man in the West Midlands, with the jury at Nottingham crown court deciding the surgeon carried out "extensive, life-changing operations for no medically justifiable reason" on them between 1997 and 2011.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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May 3, 2017 03:49PM lidabit wrote:

https://herecomesthesun927.com/2016/11/14/dear-eve...


THis article really spoke to me

Dx 9/2016, IDC, Right, 2cm, Stage IIB, Grade 2, 0/9 nodes, ER+/PR+, HER2+ (IHC) Dx 9/2016, DCIS, Right, 4cm, Stage 0, Grade 2, ER+/PR+, HER2+ Chemotherapy 10/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 10/19/2016 Perjeta (pertuzumab) Targeted Therapy 10/19/2016 Herceptin (trastuzumab) Dx 3/2/2017, IDC, Right, <1cm, Stage IIB, Grade 2, 0/9 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/2/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/15/2017 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast, Chest wall
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May 3, 2017 07:51PM Brneyegrl6608 wrote:

Lidabit - a wonderful blog post. Sharing this!

"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol)
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Jun 21, 2017 09:50PM Tpralph wrote:

Is anyone like me and am sooooo anxious because they know too much what could go wrong or high scanxiety? I'm getting hypotension and veey occasionap bilateeal ear fullness ( like it is underwater) but clears with pulling lobe or leaning to that side. I do suffer from allergies from time to time.


Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/17/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol)
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Jun 22, 2017 10:28AM gb2115 wrote:

Hi Tpralph,

Yes, definitely. Knowing to much and being aware of all the worst case scenarios just makes it worse. That combined with Google...yes, the anxiety is real. There is an anxiety thread in one of the other forums that is really good. There are a lot of us out there I think. :-)

I go back for scans in October, already dreading it...

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen.
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Jun 22, 2017 10:32AM MTwoman wrote:

Hi Tpralph, the anxiety thread is mine. I would be happy if you'd swing by and see if anything could be helpful for you. It is here:

https://community.breastcancer.org/forum/83/topics/855477?page=2#idx_50

Anxiety is awful!

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right

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