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Topic: Twin Cities/Minnesota. Anyone around?

Forum: Member Matchup & Virtual Support Meetups —
A place for members, in similar geographic areas, to connect for support, local resources and referrals as well a place to meet up within the community virtually.

Posted on: Feb 17, 2018 03:04PM

frozentoes wrote:

Anyone else waiting for the thaw? What are your favorite places to get out of the house during the winter?

Dx 10/11/2017, DCIS/IDC, Right, 3cm, Stage IIIC, Grade 2, ER+/PR+, HER2- (FISH) Chemotherapy 11/13/2017 Taxol (paclitaxel) Chemotherapy 2/13/2018 AC
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Jul 13, 2018 08:32PM Cria wrote:

THAW?!?!?! It's a friggen' jungle here now! Surprised that I'm the first one to reply in 5 months, doesn't seem very "Minnesota Nice". As far as getting out of the house, depends on how cold it is. I'll still go on walks to/around the nearest lake. If you need warm temps, the tropics area at the MN Zoo is nice. I'd love to hear how you are doing now that you are all done with chemo and how it went. I'm starting the same regimen in 3 days...

Dx 5/8/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 5/29/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy TAC
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Jan 1, 2019 06:55PM MLAnne wrote:

Not a very active group, I see. Just stopped in one the eve of my first chemo to wave hello.

Dx 9/2018, IDC/IDC: Papillary, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 1/8/2019 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 29, 2019 03:01AM Spoonie77 wrote:

Are there any ladies going through or recently finished with their active treatment?

MLAnne - how is your chemo going? Hope as well as can be.

Finished RADs in Oct. Been dealing with LE and SE ever since. Le Sigh. Started Tamoxifen 5 mg in March. Waiting on a CAT Scan this week due to severely low WBCs.

Would be nice to connect with some who are in the area. Sending hugs and healing.

"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left,  Diet & Exercise. PS: Not a dr, just a Googler. Dx 7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 8/29/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel Dx 8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2 Radiation Therapy 9/30/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/29/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/1/2019 Zoladex (goserelin)
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May 27, 2019 10:32AM MLAnne wrote:

Sorry, since I've finished Chemo in March I haven't been around much. Finished RADs the end of April and have pretty much resumed life as normal. Just anxiously waiting for the day I have enough hair to stop wearing my wig.

Sorry to hear about your SEs, Spoonie77. Sending positive thoughts your way.


Dx 9/2018, IDC/IDC: Papillary, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 1/8/2019 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 24, 2019 02:11PM Spoonie77 wrote:

Just thought I'd check again to see if anyone else is in my "neck of the woods".

MLAnne - hope your hair has grown leaps and bounds in the past few months. Glad to hear your life has resumed a more normal timeline. :)

"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left,  Diet & Exercise. PS: Not a dr, just a Googler. Dx 7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 8/29/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel Dx 8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2 Radiation Therapy 9/30/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/29/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/1/2019 Zoladex (goserelin)
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Sep 19, 2019 09:12PM Sunflower86 wrote:

I’m in the twin cities area!

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Sep 24, 2019 03:23PM Tinkthetonk wrote:

I'm in the Twin Cities area too. I've gone through chemo, BMX and rads over the last year. I started taking Letrozole this past spring and other than weight gain (or it could be the food), I'm doing pretty good with it.

Dx 7/17/2018, ILC, Left, 6cm+, Stage IA, Grade 1, ER+/PR+, HER2+ Chemotherapy 7/30/2018 Other Surgery 1/31/2019 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 3/12/2019 Whole-breast: Chest wall Hormonal Therapy 5/13/2019 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 24, 2019 04:23PM Spoonie77 wrote:

Lol they do exist! I've been going to hear from some "neighbors" for quite awhile. Very flag to heart from you both, Sunflower and TinkTheTonk. :)

"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left,  Diet & Exercise. PS: Not a dr, just a Googler. Dx 7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 8/29/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel Dx 8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2 Radiation Therapy 9/30/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/29/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/1/2019 Zoladex (goserelin)
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Dec 27, 2019 12:21PM ajminn3 wrote:

Newbie here. Hello my fellow Minnesotans :) I’m from the St. Paul suburbs. Just diagnosed this month (12/2019)and still trying to take it all in and learn this new language.

Dx 12/2019, DCIS, Left, 6cm+, Stage 0, Grade 2 Dx 1/2020, IDC, Left, <1cm, Stage IIA, 1/3 nodes, ER+/PR+, HER2+ Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Feb 3, 2020 01:43PM MNSusan wrote:

Hi, I didn’t realize there was a Twin Cities group here! I grew up in White Bear Lake, spent nearly 30 years in Shoreview before moving back to WBL. We spend winters in Vero Beach FL. I’ll be starting treatment in FL and continuing in MN.

Allergan Natrelle Style 45-700 ccs Dx 10/2005, DCIS, <1cm, Stage 0, Grade 2 Surgery 12/2/2005 Lumpectomy: Left Hormonal Therapy 1/1/2006 Dx 10/2012, DCIS, 6cm+, Stage 0, Grade 3, ER-/PR- Dx 11/7/2012, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 5/16/2013 Reconstruction (left); Reconstruction (right) Dx 1/2020, Stage IV, metastasized to lungs, ER-/PR-, HER2+ (IHC) Chemotherapy Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Feb 3, 2020 02:32PM ajminn3 wrote:

Small world! I grew up in White Bear Lake and currently live there. Such a great city!!

Dx 12/2019, DCIS, Left, 6cm+, Stage 0, Grade 2 Dx 1/2020, IDC, Left, <1cm, Stage IIA, 1/3 nodes, ER+/PR+, HER2+ Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Feb 7, 2020 06:31AM MNSusan wrote:

Hi! We're usually back in WBL by Memorial Day but I think we'll need to stay in FL until my first six chemo sessions are complete. Then back to MN for every three weeks Herceptin & Perjeta. May I ask who your oncologist is? I'll need someone there to coordinate care.

Allergan Natrelle Style 45-700 ccs Dx 10/2005, DCIS, <1cm, Stage 0, Grade 2 Surgery 12/2/2005 Lumpectomy: Left Hormonal Therapy 1/1/2006 Dx 10/2012, DCIS, 6cm+, Stage 0, Grade 3, ER-/PR- Dx 11/7/2012, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 5/16/2013 Reconstruction (left); Reconstruction (right) Dx 1/2020, Stage IV, metastasized to lungs, ER-/PR-, HER2+ (IHC) Chemotherapy Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Feb 7, 2020 07:01AM ajminn3 wrote:

My oncologist is Dr. Nambudiri at Healtheast St. John’s. I’ve met him once so far and like him. My Step-grandma also saw him and liked him. I had an aunt see Dr. Cheema at the same location and he comes highly recommended. So far I’ve really liked my treatment team at the Maplewood Breast Center. Dr. Ogren (breast surgeon) is my absolute favorite if you ever need one. She is amazing

Dx 12/2019, DCIS, Left, 6cm+, Stage 0, Grade 2 Dx 1/2020, IDC, Left, <1cm, Stage IIA, 1/3 nodes, ER+/PR+, HER2+ Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Feb 7, 2020 08:03AM MNSusan wrote:

Dr Ogren did my lumpectomy in 2005 and my bilat mast in 2012. lol Actually, when I found the lumps in my armpit a few weeks back, I called her office and talked to her nurse to ask what to do. Love that practice. I saw Dr Murphy at the Maplewood Center back then, but she's no longer in practice. I'll check out those docs and see if my insurance will cover them. Thank you so much! Love this forum!

Allergan Natrelle Style 45-700 ccs Dx 10/2005, DCIS, <1cm, Stage 0, Grade 2 Surgery 12/2/2005 Lumpectomy: Left Hormonal Therapy 1/1/2006 Dx 10/2012, DCIS, 6cm+, Stage 0, Grade 3, ER-/PR- Dx 11/7/2012, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 5/16/2013 Reconstruction (left); Reconstruction (right) Dx 1/2020, Stage IV, metastasized to lungs, ER-/PR-, HER2+ (IHC) Chemotherapy Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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May 13, 2020 12:18AM ipenelope wrote:

Hello MN ladies! Didn't realize there was a Minnesota board! I live south of the cities in Faribault.

I hope everyone is staying safe during this interesting time.

~Katie💗

Katie💗 Diagnosed stage IIB at 42, diagnosed stage 4 mets to left lung age 44 Dx 9/12/2018, IDC, Left, 4cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR-, HER2- (IHC) Surgery 11/15/2018 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/20/2018 AC + T (Taxol) Surgery 6/13/2019 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Hormonal Therapy 6/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/21/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 2/24/2020, IDC, Left, 1cm, Stage IV, metastasized to lungs, ER-/PR-, HER2- Surgery 3/18/2020 Chemotherapy 4/20/2020 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/12/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 8/24/2021 Xeloda (capecitabine)

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