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Topic: Lupron suggestions?

Forum: Family and Family Planning Matters —

A comforting place to discuss planning a family, fertility concerns, parenting children, or relationship issues with partners, siblings, or parents following a diagnosis.

Posted on: Feb 1, 2019 08:15AM

Ksantizo wrote:

I am 29 years old, recently had a bilateral mastectomy with stage 1a IDC on the left breast, with prophylactic removal of the right breast. I am on 12 dose, weekly Taxol with Herceptin. My onc recently discussed the issue of fertility while being on the Taxol and gave me options to either freeze my eggs (which I can’t afford) or to take Lupron (which I can’t find any good or bad data on). I’m waiting for approval from my insurance for the Lupron but now I’m a second guessing myself. Any one havwe any experience with it?

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Feb 1, 2019 01:52PM Tresjoli2 wrote:

I took Lupron for a year. The side effects for me were severe. I felt like I was 100 years old, migraines, etc. I eventually stopped, but I was done having my family.

There are.organizations for cancer patients that help cover.the cost.of freezing your eggs. Have you talked with the social worker at your hospital?

Tres...

Diagnosed at age 40 after going for my baseline mammogram. Dx 4/21/2015, IDC, Left, <1cm, Stage IA, 0/2 nodes, ER+/PR+, HER2+ (FISH) Dx 4/21/2015, DCIS, Left, 4cm, Stage 0, Grade 3 Surgery 5/18/2015 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 6/19/2015 Herceptin (trastuzumab) Chemotherapy 6/19/2015 Taxol (paclitaxel) Chemotherapy 8/7/2015 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 9/24/2015 Whole-breast: Breast Hormonal Therapy 10/11/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 2, 2019 06:29PM Kiso20 wrote:

Ksantizo I am in the process of freezing my eggs. It is very costly but my doctor suggested some programs (for which I’ve applied) and the pharmacy gave coupons (which I’ve sent out). I started last week so I haven’t gotten any discounts yet but I’m hoping I’ll be able to get some. I did some research and there are a lot of programs that help financially. One of them is fertilitylifelines.com. I do not have any experience with Lupron yet but I have done some research and may need to take it along withTamoxifen.

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