Topic: Gettting human milk to infant after bilateral mastectomy

Forum: Family and Family Planning Matters — A comforting place to discuss planning a family, fertility concerns, parenting children, or relationship issues with partners, siblings, or parents following a diagnosis.

Posted on: Mar 18, 2021 04:08PM

Posted on: Mar 18, 2021 04:08PM

grateful2balive wrote:

Hi, I am happy that some women are able to succesfully become moms (or add to their family) after a breast cancer dx. Those of you who became moms after bilateral mastectomy (I'm sure this applies to at least one person reading this), did you feed with formula alone, or were you able to buy breast milk from a milk bank? I know hospitals will sometimes provide donated breast milk to premature infants in the NICU but, what if your child was born at term with healthy delivery? Is there any place one can buy safe human milk, or is formula the only option? Thank you

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Mar 18, 2021 04:14PM - edited Mar 18, 2021 04:14PM by ShetlandPony

I do not know, but La Leche League International would be a good source of information. Here is a link for the USA LLL.

https://lllusa.org/milkdonation/


2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast Surgery Lumpectomy
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Mar 18, 2021 04:32PM bcincolorado wrote:

If you have a local children's hospital check with them as well. When I had my children (pre-cancer) I donated breast milk to someone who could not nurse for medical reasons like that. It was done through the hospital system and easy to do and do not think they charged them either since it was done by donation.

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/1/2010 Mastectomy (Left): Nipple Sparing; Reconstruction (Left): Tissue Expander Surgery 1/7/2010 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left) Hormonal Therapy 1/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/30/2016 Femara (letrozole) Hormonal Therapy 1/1/2020
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Mar 18, 2021 04:36PM moth wrote:

Hello, I'm a lactation consultant. You may be able to access the milk bank but it really depends on your community & availability. Many milk banks are short of milk and have to prioritize clinically vulnerable infants. However, in some communities it is possible to get milk for full term stable babies.

You can find a milk bank through this link https://www.hmbana.org/find-a-milk-bank/

best wishes

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy)
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Mar 19, 2021 02:36PM - edited Mar 19, 2021 02:43PM by grateful2balive

Thank you to all for these helpful links and information. I send you a big hug and wishes for a peaceful weekend.

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