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Apr 5, 2016 08:43PM
Lori's Husband officially filled out the paperwork yesterday to start hospice. Husband told me an aide was coming, and he wanted the aide to give Lori a shower.
Today was a big day.
The hospice nurse came for the first time during my time with Lori. Nurse checked vitals and pain level. Lori was not able to communicate much to the nurse. Nurse gave me some phone numbers and instructions. I made copious notes for Husband.
Health aide came as nurse was leaving. Also her first time with Lori. I told her Husband's instructions. She asked Lori if she wanted a shower. No, she wanted to stay in her chair (recliner). Aide told me we must follow Lori's wishes. We gave her a sponge bath in her recliner, using towels to keep Lori warm. We got her into fresh clothes and also used the commode. Lori was exhausted by the time we finished the sponge bath. Aide gave me more instructions including a shopping list, a list of supplies to request from the nurse, and advice on what services are available. Again, I made copious notes for Husband.
Also the high school guidance called to check in on the family. I know her because my daughter has the same guidance counselor. Our girls are BFF, although they hardly see each other now because they don't have any classes together. At least they have the bus ride home together.
Well, ShetlandPony, Husband arrived home after the aide left. I gave him all the notes. He seemed in the mood to talk a bit, and I took your advice. I explained all the services that were available through hospice, including social worker and chaplain. I told him my experiences with hospice, and when we told the children that our beloved Nana was dying. I asked what his children knew, as I only have said to my children that Lori "was very sick," since our daughters are so close. He asked that we leave it at that. He did say he was very interested in working with the social worker and chaplain.
I told him that as one of my final gifts to Lori, I would play flute at her funeral, if he wished.
The hospital bed and other equipment were being moved in as I was leaving.
I am so relieved now that these services are coming into place.
I'm on again tomorrow.
Mominator, BRCA2+, STK-11 VUS. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, passed 5/25/16.
11/10/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
6/29/2017 Reconstruction (left): Silicone implant