Join Us

We are 218,032 members in 84 forums discussing 160,858 topics.

Help with Abbreviations

Topic: What not to say to people with MBC

Forum: Caring for Someone with Breast cancer —

A place to share your struggles and concerns about supporting and caring for a person you love diagnosed with breast cancer with others who understand.

Posted on: Jul 17, 2017 12:49PM

Artista928 wrote:

Great read I think. I think this goes for all stages though. Nothing more maddening to me than people who just don't get, don't try to get it and say stupid stuff. The they don't know and are trying to be nice doesn't fly with me. I'd rather hear 0 or just say I wish you well.

https://www.verywell.com/what-not-to-say-to-someone-with-metastatic-breast-cancer-4115517

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Page 1 of 1 (5 results)

Posts 1 - 5 (5 total)

Log in to post a reply

Oct 1, 2017 10:01PM unicornhorns wrote:

Great advice and agree that it applies to any stage. Thank you for sharing, Artista. My mom has heard many of those well-meaning but just plain bad comments :)

Daughter of 76 yr old with ILC. This is her diagnosis. Thank you all for helping me help her. Dx 8/30/2017, ILC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Oct 1, 2017 11:28PM Freya wrote:

It is frustrating that so many people believe that BC can be cured now. That is the danger in all the "Pink positivity" advertising.

No, I'm not cured, No, I'm not going to get better, that is what terminal means!

Dx 2009, ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone/liver, Grade 3, 14/22 nodes, ER+/PR+, HER2-
Log in to post a reply

Oct 1, 2017 11:33PM Artista928 wrote:

This came up in my fb feed, as we enter pukey pinktober..

http://www.goodhousekeeping.com/health/a44380/things-not-to-say-cancer/

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Oct 1, 2017 11:49PM Freya wrote:

Artista, on your second list, I'm surprised that "Well at least you will get a free boob job" wasn't on the there. Yes, that has been said more than once.

Dx 2009, ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone/liver, Grade 3, 14/22 nodes, ER+/PR+, HER2-
Log in to post a reply

Oct 2, 2017 12:28AM Artista928 wrote:

Ha. Yeah, I've gotten that one. What a way to get a free boob job. I've been infected 3 times, had a leak in my radiated breast that took 5 wks to take care of finally with stitches, and just had another revision to them-- all caused by the radiated breast rebelling. So yeah, great, free boob job. stupids.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant

Page 1 of 1 (5 results)