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All TopicsForum: For Caregivers, Family, Friends and Supporters → Topic: Why does everything take so long??

Topic: Why does everything take so long??

Forum: For Caregivers, Family, Friends and Supporters —

A place to share your struggles and concerns about supporting and caring for a person you love diagnosed with breast cancer with others who understand.

Posted on: Nov 6, 2017 03:59PM

Katty1895 wrote:

My mom was diagnosed with Invasive Pleomorphic Lobular Carcinoma last Friday. She was told later in the day and it was then too late to get in touch with the surgeon. I spent my weekend researching and being scared. This type (for those that don't know) is more aggressive. I have been on her to follow up today on getting in with the surgeon. Finally she called after lunch as she had not heard from them. They didn't even have her paperwork yet and said to call her other doctor and have it faxed. They said they would then call her by Thursday of this week to set up her appointment with them. So, who knows when she will actually get in! Is this normal?? I know that typically a couple of weeks or so is not a big delay, but with this specific type I can't help but worry.

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Nov 6, 2017 08:04PM Icietla wrote:

Welcome to BCO. We are so sorry about your mom's diagnosis, but we are glad you found us, and glad for her that she has you helping her along.

The waits seem always to take so long, and they are always anxious times. When your mom has a treatment plan, both of you will feel less anxious, and things will probably move along readily. Remember, for now, you are doing all you can (practically) do to get her treatment started.

In the ILC forum section, you will find many discussion threads from which you can learn a great deal about ILC, including characteristics that she may want to take into account in her deciding on surgery. ILC has more tendency than IDC to bilateral occurrence. In addition, it has been known to be capable of evading detection by mammography, sometimes by ultrasound too, sometimes even by MRI too. Take the time to read through at least some of the longer discussion threads, such as these __

https://community.breastcancer.org/forum/71/topics/747515?page=1

https://community.breastcancer.org/forum/71/topics/835060?page=1

https://community.breastcancer.org/forum/71/topics/800630?page=1

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Sep 1, 2017 10:20AM - edited Sep 1, 2017 10:31AM by Icietla

Another ILC-er here. By my calculations, the little-to-no-statistical-difference-in-outcomes so often used to argue against our mastectomy and CPM choices is roughly 93% weighted by IDC and DCIS cases. Somebody tell me if I am wrong about that, huh?

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"Bilateral involvement is reported to be 20–29% in lobular carcinoma [10, 12, 16, 41, 42]. In our dataset the incidence of contralateral breast cancer in women with ILC was nearly double that in women with IDC."

Source: https://breast-cancer-research.biomedcentral.com/articles/10.1186/bcr767

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More to consider__

https://community.breastcancer.org/forum/113/topics/820712?page=1

https://community.breastcancer.org/forum/113/topics/805330?page=1

https://community.breastcancer.org/forum/113/topics/844617?page=1

Dx 2/12/2016, ILC, Right, 2cm, Stage IIA, Grade 1, 0/13 nodes, ER+/PR+, HER2- Surgery 2/19/2016 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 4/1/2016 Femara (letrozole) Surgery 4/25/2016 Prophylactic ovary removal
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Nov 6, 2017 08:19PM Katty1895 wrote:

Thank you! I will check these out.

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