Jun 13, 2019 04:45PM Ingerp wrote:
1. It seems most ER+/PR+ percentages I see are really high--like >90%. BUT PLEASE DO NOT HESITATE TO POST ON THE TRIPLE NEGATIVE FORUMS. The lovely ladies there will be happy to answer any questions you have.
2. To make it easier in general--take on her home responsibilities (shopping/cooking/cleaning). Exercise--let her energy level be her guide. Fatigue is not something you can muscle, like simply being tired/low energy. Diet--PROTEIN. I have beat this drum often, but I *know* it helped me greatly through chemo. I ate red meat 5-6 times a week, plus eggs every day, plus a protein shake every day. My blood levels stayed really good throughout. My MO told me I was the only patient she'd seen who was actually making blood on chemo. Also, many things will taste funny to her through chemo. For better or worse, it seems like sweets still taste the same. I ate ice cream every day, and it's not normally even in the house. Conventional wisdom is she should treat herself through this process food-wise. Other than the protein, I wouldn't worry too much about what she eats. (Between the sweets and steroids many of us get as part of the pre-meds, it's common to gain weight on chemo. There's time to worry about weight when she's finished.)
3. I told my <older> kids after I knew the dx/tx plan, and I always said this was just a blip that I'd get through and then I'd be fine. As with everything you talk to your kids about, if you treat it like a tragedy, they'll view it as that. If you say hey this isn't going to be fun for a while but we're going to get through it, they'll likely be okay. It's not a bad thing for them to pitch in and take care of mom a bit.
4. Does she want you to? Would she see it as support? Or bluffing your way through something you don't really believe in? Again, let her be the guide.
My personal feelings--optimism always. Absolutely no reason to assume the worst outcome.