We are 211,213 members in 82 forums discussing 151,373 topics.

Help with Abbreviations

Topic: Graduate student researching mental adjustment to cancer

Forum: Survey, Interview and Participant Requests: Need your Help! —

Research proposals and/or requests posted here by members have been reviewed and approved by the Moderator Team, but not associated with Breastcancer.org.

Posted on: Aug 16, 2018 12:14PM - edited Aug 16, 2018 01:59PM by Moderators

mg04veri wrote:

My name is Michael Verile. I am a counseling psychology student at the University at Albany, and the principal investigator on a study titled Illness Self Concept and Mental Adjustment to Cancer. I am posting on this forum in the hope that you would be able to assist by serving as a participant in my study by taking this 20-25 minute survey. The only criterion is that the participants have carried a diagnosis for one or more of the following five forms of cancers (Breast cancer, Lung cancer, Prostate cancer, Colon cancer or Rectal cancer) within the past 3 years.

Attached is a link to the survey as well as the informed consent for our study ( psychdata.com/s.asp?SID=180430 ). [Clickable hot link in thread below!] The study has been approved by the University at Albany Institutional Review Board [protocol number: 18-E-050-01].

If you have questions about this research study, you may contact the principal investigator Michael Verile at: mverile@albany.edu or my faculty advisor Hung-Bin Sheu at: hsheu@albany.edu.

Thank you for considering assisting me in this research. If you need any more information I will be happy to get it to you.

Edited by Mods to add info on hot link in thread below.

Log in to post a reply

Page 1 of 1 (13 results)

Posts 1 - 13 (13 total)

Log in to post a reply

Aug 16, 2018 01:27PM moth wrote:

Done! Good luck with your study :)

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
Log in to post a reply

Aug 16, 2018 01:58PM Moderators wrote:

Hot link here: https://www.psychdata.com/s.asp?SID=180430

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Aug 16, 2018 02:34PM DebAL wrote:

done!

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Aug 16, 2018 05:02PM LoriCA wrote:

Always happy to help a student with a research project. Trying to get enough valid responses to a survey was one of my most frustrating challenges in grad school.

If I might make one comment - there didn't appear to be any consideration for the difference in emotional challenges facing someone with an early diagnosis vs. someone with late-stage metastatic disease. One example off the top of my head - how much do you worry about recurrence? At Stage IV it's not something to worry about because it's already a reality, but I would guess that the answer would be very different for someone who had an early-stage cancer diagnosis. Quite a few fell into that category of not something we (metastatic patients) worry about possibly happening in the future, it's something we are currently dealing with. Worrying about something that might happen is different from worrying about something that is happening, so I wasn't sure how to answer quite a few questions and I even left several blank. Wondering if maybe metastatic patients weren't expected to respond?

IBC Stage IV de novo - presented in right breast, within days spread into left breast, skin, chest wall, metastasized into brachial plexus (lost complete use of right arm for several months), liver and throughout skeleton. Dx 9/8/2017, IBC, Both breasts, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2+ Chemotherapy 9/25/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2018 Perjeta (pertuzumab) Targeted Therapy 2/5/2018 Herceptin (trastuzumab)
Log in to post a reply

Aug 16, 2018 05:12PM Egads007 wrote:

No problem Michael, will do! You do realize that you owe us all dinner & a movie right?

;)))

"I base all my fashion choices on what doesn't itch" (Gilda Radner) Chemotherapy 3/20/2013 Doxil (doxorubicin), Taxol (paclitaxel) Surgery 8/23/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 11/1/2013 Whole-breast: Breast, Lymph nodes Dx IDC, 4cm, Stage IIB, 0/2 nodes, ER+/PR- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Aug 16, 2018 05:19PM - edited Aug 16, 2018 06:37PM by SpecialK

Done!

Edited to add - I did not read carefully enough if the survey stated you need to have been diagnosed within the last three years - if so, disregard my submission. Sorry!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
Log in to post a reply

Aug 16, 2018 05:25PM wrenn wrote:

I was confused by this statement:

"participants must have carried a diagnosis for one or more of the following five forms of cancers (Breast cancer, Lung cancer, Prostate cancer, Colon cancer or Rectal cancer) within the past 3 years"

Does it mean no one diagnosed more than 3 years ago?

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
Log in to post a reply

Aug 16, 2018 05:33PM illimae wrote:

Done. And I agree with LoriCA about the difference the stage of disease can make. Also, one other note, a persons immediate reaction to their diagnosis is often vastly different to those who are in active treatment or are more than a year out.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/25/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/9/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, Stage IV, metastasized to brain Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/17/2018 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Aug 16, 2018 06:10PM Micmel wrote:

finished it. Stage four sucks let’s face it. Cancer sucks let’s face that too. Good luck with your survey

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
Log in to post a reply

Aug 16, 2018 07:36PM mg04veri wrote:

To clarify for anyone unsure about the 3 year statement. That statement is mainly for anyone in remission. They would still qualify for up to three years after going into in remission. If you have received the diagnosis greater than 3 years ago but are not in remission, or you are still undergoing treatment you would still qualify. Hope this is helpful!

Log in to post a reply

Aug 16, 2018 07:43PM - edited Aug 16, 2018 07:45PM by mg04veri

To those of you mentioning the differences throughout the various stages of cancer, this was a big discussion between my advisor and I prior to starting the project. I have been considering different ways to add it into my future research projects. My hope is to look at differences in mental adjustment across diagnosis and across various stages of cancer in my dissertation.

Log in to post a reply

Aug 16, 2018 08:16PM - edited Aug 16, 2018 08:16PM by SpecialK

mg04veri - I am still taking Femara and continued to have surgery up until late 2016, so I would still consider myself within the 3 year window despite being further out from original diagnosis, so my response should be used at your discretion.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
Log in to post a reply

Sep 16, 2018 11:30PM kmajor wrote:

Done! Good luck with your survey

Dx 7/13/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 8/8/2017 AC + T (Taxol) Surgery 1/21/2018 Lumpectomy: Left; Lymph node removal Chemotherapy 2/26/2018 Xeloda (capecitabine) Radiation Therapy 9/4/2018

Page 1 of 1 (13 results)