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Topic: herceptin and perjeta only, side effects (neuropathy?)

Forum: Immunotherapy - Before, During, and After —

Discuss your experiences with the benefits, risks, and side effects of immunotherapy treatment for breast cancer.

Posted on: May 29, 2019 04:00PM - edited May 30, 2019 10:33AM by jstod111

jstod111 wrote:

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May 30, 2019 03:10PM Birchbark26 wrote:

my daughter is on Herceptin and Perjeta

She is having trouble with her contacts and focusing

Anyone else having this issue

Dx 7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy AC + T (Taxol) Targeted Therapy Perjeta (pertuzumab)
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Aug 16, 2019 06:19AM Vermontski wrote:

I am also on Herceptin and Perjeta-every three weeks until March. I was diagnosed with HER2+bc, had chemo, surgery and radiation. I as hoping to have few side effects with HP, but my joints are sore, I’m generally pretty tired. I’d love to connect with others on HP.


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Feb 19, 2021 11:38AM DeniseML wrote:

Hi Vermontski; Looks like you are almost finished with treatment! That is great! I'm sorry to hear about the joint pain & fatigue. I am just starting HP for 12 more treatments. Also diagnosed with HER2+ BC, had TCHP for 6 treatments, surgery and am starting RADS and Immunotherapy now. I wonder if the Loratadine would help with the joint pains like it did when receiving Neulasta. The MO recommended warm baths to help with body aches and keep moving . definitely easier said than done during treatments. Hope your symptoms resolve quickly after last dose. Wishing all the best moving forward.

Dx 8/3/2020, IDC/IBC, Left, 3cm, Stage IIIC, Grade 3, 0/7 nodes, ER-/PR-, HER2+ (FISH) Chemotherapy 8/25/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 1/15/2021 Lymph node removal: Underarm/Axillary; Mastectomy: Left Immunotherapy 2/24/2021 Radiation Therapy 2/24/2021 Whole-breast: Lymph nodes, Chest wall
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Feb 19, 2021 04:18PM Melbo wrote:

is joint pain a common side effect from HP alone? I have been stiff and slow to get moving when I stand up after sitting for weeks now, but I assumed it was from very little activity/movement for the last 6 months. I’ve been trying to get better about walking, even if it’s just laps in the house, but it’s hard to get motivated.

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Surgery 12/20/2020 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/31/2021 Whole-breast: Breast, Lymph nodes
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Feb 19, 2021 10:43PM MinusTwo wrote:

Ladies -until your two new posts,this thread has been inactive for 2 years.

I would suggest you search Herceptin. Also HER2+. And also neuropathy. There is also a Stage IV H&P thread which you can read, but we've asked not to post to Stage IV thread as long at that's not our diagnosis.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 20, 2021 05:26AM Melbo wrote:

thanks ministwo- I noticed that when I responded, but I figured what the hell anyway. I’ve posted in a few of the other, more active, forums as well.

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Surgery 12/20/2020 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/31/2021 Whole-breast: Breast, Lymph nodes

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