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Topic: Question re hair loss

Forum: Immunotherapy - Before, During, and After —

Discuss your experiences with the benefits, risks, and side effects of immunotherapy treatment for breast cancer.

Posted on: Mar 3, 2020 11:10AM

dlittkemann wrote:

Hi everyone

I start Abraxane and Tecentriq tmrw. I think I know the answer, but want be sure before I shave my head lol, I will lose my hair correct? Never had immunotherapy before so just wanted be sure. Thanks in adv

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Mar 3, 2020 12:53PM Spookiesmom wrote:

I’m not familiar with those, ask your MO!!! You may or may not, it might just thin. Can you cold cap? Some say that helps.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Mar 3, 2020 01:02PM dlittkemann wrote:

Will do. Just curious if anyone knew on boards before I see them.

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Mar 7, 2020 01:05PM LoriCA wrote:

I can't answer for Tecentriq, but Abraxane is protein (albumin)-bound paclitaxel, the same chemotherapy drug as Taxol, but protein-bound instead of using a solvent. Because Abraxane doesn't use a solvent like Taxol does, it is supposed to be easier to tolerate. Taxol is paclitaxel and Abraxane is nab-paclitaxel. It does cause hair loss. You may not lose all of your hair, but you will certainly lose some, if not most, of it. It can also cause neuropathy so you may want to look into icing your feet and hands.


IBC Stage IV de novo - mets throughout skeleton (bones & now bone marrow), liver, dozens of distant nodes, chest wall/pec muscle, skin, tumor in brachial nerves, thyroid, polycythemia from bone marrow involvement Dx 9/8/2017, IBC, Right, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2+ (IHC) Chemotherapy 9/25/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2018 Perjeta (pertuzumab) Targeted Therapy 2/5/2018 Herceptin (trastuzumab) Chemotherapy 11/25/2018 Taxol (paclitaxel) Radiation Therapy 1/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Targeted Therapy Enhertu (fam-trastuzumab deruxtecan-nxki)
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Mar 7, 2020 01:23PM JCSLibrarian wrote:

I started Abraxane December 2018. I lost my hair three weeks later. It took a while longer, but also lost eyelashes and eyebrows. The side effects were minimal other than the hair loss. About three months ago the neuropathy started. PA said to take Vit B6. I am currently on a chemo break and the hair has started to come back.

Dx 11/5/2018, IDC, Left, 4cm, Stage IV, metastasized to lungs, Grade 2, ER-/PR-, HER2- Chemotherapy 12/20/2018 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 3/22/2019 Surgery 7/17/2019 Lumpectomy: Left Radiation Therapy 8/12/2019 External
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Mar 7, 2020 01:32PM dlittkemann wrote:

Thank you all for replies. I see you are also triple negative JCS. So why on chemo break? Did the treatments work so far

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Mar 8, 2020 09:48AM JCSLibrarian wrote:

MO has done scans every three months since the diagnosis. The only bad one was the very first PET scan. I asked him to treat me with curative intent. He thinks we “may” have “got it.” I am taking a break to see what happens and to get all my counts back to the more normal range. There will be yet another set of scans the end of this month to see how things are going. Fingers crossed! I feel great and believe things worked for me. It may come back, but I refuse to spend much of my time worrying about it.

Dx 11/5/2018, IDC, Left, 4cm, Stage IV, metastasized to lungs, Grade 2, ER-/PR-, HER2- Chemotherapy 12/20/2018 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 3/22/2019 Surgery 7/17/2019 Lumpectomy: Left Radiation Therapy 8/12/2019 External
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Mar 8, 2020 10:25AM - edited Mar 8, 2020 10:32AM by dlittkemann

JCS I am so happy for you and pray it continues to work! I have bone mets, spine and pelvis area. Praying this works and keeps it at bay for a long time. I have a 5 year old and I need to be here for himat least til he's independent (praying) and pls let me know how your end of month scans are! I don't know many TNBC w mets so happy to have found you :-) (((hugs)))

Also have you been getting weekly treatments since diagnosed? I feel ok. Lack of energy and aches here and there. Overall ok but I’ve only had one treatment thus far. Hoping at my 3 mos scan they will tell me it’s working.

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Mar 8, 2020 01:25PM JCSLibrarian wrote:

I did the three weeks on/one week off with Abraxane for slightly over a year. I was more tired than usual during treatment, but no other QOL side effects. I did start neuropathy in my feet about four months ago. My MO said that having metastasis to the bones was very doable long term. He is more concerned about organ involvement. Thetnbc part does worry me some.

You must be somewhat younger than me as my kids are in their 30’s. So unfair to have to deal with this while so young. I do hope your treatment goes well and you stay healthy as can be expected with this diagnosis for years to come. Let’s stay in touch.

Take care!

Dx 11/5/2018, IDC, Left, 4cm, Stage IV, metastasized to lungs, Grade 2, ER-/PR-, HER2- Chemotherapy 12/20/2018 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 3/22/2019 Surgery 7/17/2019 Lumpectomy: Left Radiation Therapy 8/12/2019 External
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Mar 8, 2020 01:50PM dlittkemann wrote:

That’s what I’m doing too w the addition of Tecentriq (immunotherapy). Thanks for such encouraging words re bone mets. I appreciate that so much. I’m 45. Just turned in Dec. Definitely want to stay in touch. Thanks for the reply. Appreciate it so much and happy you are doing so well :-)

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Mar 11, 2020 10:53PM - edited Mar 11, 2020 10:54PM by Deedi


Dlittkemann. I hope your treatment today went well. I was on the tecentriq and abraxane for six months and tolerated this combo well I hope the treatment works for you. I wish I could have stayed on it for a while longer I did lose my hair but of course everyone is different. I would ask you oncologist.


Jcslibrarian. Did I read your post correctly. That you are taking a break and that you think you might have “got it" with abraxane. That is so exciting! I am So happy for you I am grateful My cancer has been holding in my mediastinal nodes with only slight growth (mm)with each scan for about 16 months now. you are my new inspiration! Good luck on your scans! I will keep my fingers crossed.

Dx 10/5/2016, IDC, Left, 6cm+, Stage IIIA, Grade 2, 5/16 nodes, ER+/PR+, HER2- Surgery 3/12/2017 Mastectomy Chemotherapy 7/2/2017 Xeloda (capecitabine) Targeted Therapy 7/7/2017 Herceptin (trastuzumab) Dx 12/4/2018, IDC, Both breasts, Stage IV, metastasized to lungs/other, Grade 2, ER-/PR-, HER2- Immunotherapy 1/23/2019 Chemotherapy AC + T (Taxol)
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Mar 19, 2020 04:29PM dlittkemann wrote:

...well 3 treatment and no hair loss yet. When on taxol and ACT red devil it was all gone in 2 weeks. Hoping I don’t lose it all but if I do,I have two nice wigs. Have to look at positive side. Lol ;-)

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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May 21, 2020 05:59PM Naesha wrote:

Hi Ladies,

I am new to this group. I will be starting the Abraxane starting next week. According to doctor, this should be tolerable than the AC,Taxol and Carboplatin. I was on oral chemo Xeloda but looks like it did not help much and my cancer is back again. So this time my ONC is using the Abraxane, once in 3rd week. So I asked for the prevention of hair loss and cold cap was suggested. Has anyone used cold cap to prevent hair loss. I lost all my hair during AC and Taxol. I think i do not want to go through the same hell. Thanks god i did my microblading after the treatment so i am less worried on eyebrows. But hair loss is something that plays a big role for me to get easily demotivated and lost my track.

Can any one of you share the exp.

Thank you

Dx 5/2018, IDC, Left, Stage IV, metastasized to liver/other, ER-/PR- Surgery 10/8/2018 Mastectomy: Left, Right; Reconstruction (left): DIEP flap, Silicone implant; Reconstruction (right): DIEP flap, Silicone implant Chemotherapy 5/28/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy
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Aug 7, 2020 11:47AM Lulabelle2020 wrote:

You may already have your answer by now, I started shedding like crazy after the third one I’m having immuno and the nab. I cut my hair very short as I was fed up of hair everywhere but will say after session four I still have hair and it seems to be shedding less now I’ve scalped myself!! I used the cold cap the first time it made me really sick but I did keep my hair.

Not feeling too many side effects so far other than the hair 😊

Side note it is Good to see some TNBC mets on this thread it’s giving me hope at the beginning of what I plan to be a very long journey 😊

Let’s hope these newer treatments will be the shining light we all need! We are the pioneers that others will look to in the future 👏🏻👏🏻

Love, light and healing 💕💖 Dx 3/29/2016, ILC, Right, 3cm, Stage IIIA, Grade 3, 3/9 nodes, ER-/PR-, HER2- Chemotherapy 7/22/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Dx 7/1/2020, IBC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER-/PR-, HER2- Chemotherapy 7/8/2020 Abraxane (albumin-bound or nab-paclitaxel) Immunotherapy 7/8/2020 Tecentriq (atezolizumab) Surgery 4/18/2021 Mastectomy: Right Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary
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Aug 11, 2020 12:30PM melmcbee wrote:

Hey ladies. Im starting too. Failed Xeloda and will start Abraxane and Tecentriq bext week. Getting port tomorrow. Praying we all get no side effects and great results

Melanie Dx 6/24/2012, ILC, 2cm, Stage IIIA, Grade 2, 8/15 nodes, ER+/PR+, HER2- Surgery 7/8/2012 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Surgery 8/8/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 8/22/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/8/2013 Breast, Lymph nodes Surgery 5/29/2013 Reconstruction (left); Reconstruction (right) Surgery 12/3/2013 Reconstruction (right) Dx 3/29/2017, ILC, Stage IV, metastasized to bone, ER+/PR- Dx 11/19/2019, ILC, Stage IV, metastasized to other, ER-/PR+, HER2- (IHC) Chemotherapy 8/18/2020 Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine) Immunotherapy Tecentriq (atezolizumab)
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Aug 12, 2020 06:45AM - edited Aug 12, 2020 06:47AM by Lulabelle2020

Hi ladies,

I'm probably a few behind sons of you but after treatment 4 I'm still feeling ok no side effects and my hair seems to have slowed shedding or it might be that it's do short I notice less?

I'd love to know how you are all getting on being TNBC mets to skin I've not met another person in the same boat then each persons cancer is individual anyway as we all respond differently and have different genetics but knowing how people on the same treatment are getting on it really helpful 😊

Good luck for treatment melmcbee the first one is easy and having a port is so much easier than them hunting for veins they just hook us up and we are good to go 😂 the immuno is given over an hour on the first treatment but if all goes well they can do it over half an hour they do need to flush and the Abraxane can take a while as it's really oily but has a pretty Pearl colour to it and and the nurses have a laugh about making sure they get every last drop out so I don't get short changed.

Bloods will now be a lot easier to as it's all through the port so no more hunt the vein for that either 😊

There have been a few new drugs being trialed for tnbcm so hopefully we can have many lines of treatment if needed!!

I hope we all get NEDs at our scans or stable results and hopefully no side effects

Love, light and healing 💕💖 Dx 3/29/2016, ILC, Right, 3cm, Stage IIIA, Grade 3, 3/9 nodes, ER-/PR-, HER2- Chemotherapy 7/22/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Dx 7/1/2020, IBC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER-/PR-, HER2- Chemotherapy 7/8/2020 Abraxane (albumin-bound or nab-paclitaxel) Immunotherapy 7/8/2020 Tecentriq (atezolizumab) Surgery 4/18/2021 Mastectomy: Right Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary

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