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Topic: Worried about forgetting words.

Forum: Immunotherapy - Before, During, and After —

Discuss your experiences with the benefits, risks, and side effects of immunotherapy treatment for breast cancer.

Posted on: Aug 15, 2021 07:52PM

macb04 wrote:

I had weekly CMF for 5 months, and 17 surgeries with general anesthesia as part of reconstruction. ( A mess, read my posts for the details if interested) So lots of brain insults.

I had severe “ chemo brain”. Really scrambled cognitively for a year or so. Had trouble reading, finding words. Would do impulsive things when I would drive. Probably should not have been driving, to tell the truth, but I had to take my kids to school/soccer practice/grocery shopping, ect. That was 2013. I was 46 - 47.

Now am nearly 56. My brain recovered enough after a couple of years so that I was able to go back to a demanding, highly technical job in Healthcare.

I remember what it was like being unable to recall common words in my chemo brain worst moments. I would be speaking fluidly, then draw a blank over the word I wanted to say.

For the past three or so months I feel like that same word loss issue has been happening again. Not all the time. More noticeable if I am tired. I am older. Friends just tell me it’s a normal part of aging. This scares me. I would go see a Neurologist, but am afraid of confirmation of my fears.

It would be different if there were any effective treatment for dementia. I know there are drug treatments, but being in healthcare, know too much how ineffective they are.

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Aug 16, 2021 12:06AM Esther01 wrote:

Hi again MacB,

Found it! Here is the link I mentioned in my private message to you. Take heart. No, it is not normal aging, nor is it too late to detox from all of the toxins absorbed from chemo/rads/and anesthesia from 17 surgeries.

Dr. Rita Ellithorpe, renowned biochemist/scientist/former military flight surgeon/MD discusses options for improving brain health that have proven helpful for her patient base, much of which is cancer patients.

Don't be afraid to be seen by your PCP and/or a neurologist. You have a lot of options, as Dr. E mentions. I'll be cheering you on.

Fast forward to minute 17:42 ->

Hugs - Esther

Grateful to Jesus, that His love finally broke through to me. "With one touch, You just rolled away the stone that held my heart," - Lyrics by Keith Green, " 7 weeks of Radiation including supraclavicular nodes. Dx 12/2020, IDC, Stage IIB, 5/11 nodes, ER+/PR+, HER2- Hormonal Therapy 12/20/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/9/2021 Lumpectomy; Lymph node removal: Sentinel; Reconstruction (left) Radiation Therapy 8/4/2021 Whole-breast: Breast, Lymph nodes
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Aug 16, 2021 01:04AM macb04 wrote:

Thanks for the video Esther! I will look at that and see what Dr Ellithorpe has to say. Appreciate the inf

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