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May 24, 2022 09:06AM
Mel- Nice picture!!!
Mara- Glad you enjoyed your walk in the park. You said you drove there, so you cannot get there more often to have a walk? Seems you really enjoyed it and I wish you could do it more often.
SeeQ- Pocket duty for your results.
Well yesterday (Monday) was a long scan day (and MO appt, Lupron injection, Port Flush, and Labs). I left my house at 8:30am and got home at 6:15pm. And with going by myself I could not wind down or nap on the way home. I slept well last night!!!
Scans show SHRINKAGE !!!! I cannot tell you what the measurements were, as they will not go to the Portal for 1 week (default at my cancer clinic for releasing of results), but my MO read off the measurements of all the lesions and the latest measurements were less than before. Maybe by a mm or 2, but still a decrease versus an increase. So 9 months into Lynparza I have had 2 stable scans and now a decrease scan.
I was thinking on the way home--- I know some ladies on here have commented they really do not get too anxious before scans anymore (so many under their belt). But, think about it, we have Stage 4 cancer. We are going to the clinic to get CT's, or MRI's, or whatever, to monitor the cancer. Wouldn't most people get nervous? This is serious stuff. I know women are notorious for being strong and taking things in stride, but this is serious. Most people would be a little nervous about monitoring their cancer for progression. We should call it like it is--- serious shit.
And I thank God that I am seeing stable/shrinkage, but it sure does not come without a cost. Fatigue. Nausea/decreased appetite. Low white counts, so I have to be careful-- not just of Covid, but of any infection. Yes, this is better than the alternative. But it sure is not easy. To get shrinkage/stable takes work.
Thanks for the pocket duty. You all understand more than anyone else.
April 2021 first progression and flip ER-/PR+ now. Current treatment as of Sept 2021 is Lynparza, Lupron (been on since Nov 2017), and Xgeva (been on since Nov 2017).
6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2-
9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2-
11/1/2017 Femara (letrozole)
11/1/2017 Ibrance (palbociclib)
4/2021, ER-/PR+, HER2-
9/1/2021 Lynparza (olaparib)
Lymph node removal; Mastectomy; Mastectomy (Left)