Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute — Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 09:38PM - edited Oct 28, 2019 01:42PM by micmel

Posted on: Jul 6, 2017 09:38PM - edited Oct 28, 2019 01:42PM by micmel

micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 29, 2022 08:49PM kittykat9876 wrote:

Thanks everyone, and hugs back to you all, I see my oncologist today, so I'll let you all know how it goes. Mae, I'm glad you're feeling better this time around. Moth, I am glad you're doing a bit better,I hope everything continues to improve for you. This thread moves so fast now, there are 2 to 3 new pages when I wake up in the morning, so to anyone I've missed, know that I'm thinking of all of you and wish you all the best for whatever is going on for you. ❤

Surgery 5/22/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/27/2021 Navelbine (vinorelbine) Targeted Therapy 5/1/2021 Verzenio Targeted Therapy Afinitor (everolimus) Radiation Therapy External Hormonal Therapy Local Metastases Radiation therapy: Bone
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Jun 29, 2022 09:08PM - edited Jun 29, 2022 09:09PM by kbl

KittyKat, so sorry for the progression. I'm with others in hoping whatever is next kicks it back for a long time to come.

I'm thinking of all of you. I've been a bit quiet lately, but it's more because I've been so busy. I have a week with my husband right now, and I left my grandson back home. It's the first time in a year and a few months I haven't taken him to the country with us. Feels a little weird, but I'm in need of a short break.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jun 29, 2022 10:28PM molliefish wrote:

Kikomoon, yes keep on being you! Keep on keepin o

Dx 5/24/2015, IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 6/8/2015 Lumpectomy; Lumpectomy (Left) Chemotherapy 8/14/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast
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Jun 29, 2022 10:35PM - edited Jun 29, 2022 10:36PM by molliefish

stereotactic biopsy today, questioned the radiologist since I didn't get any real info on the phone call. He says very small micro calcification, he's not able to eliminate them from the scans so he asked for biopsy, he says he was not really concerned but 'didn't know about my first cancer and was taken off guard. He said regardless he still is optimistic the mm are not cancer. We will see. Having sympathetic pains in the left breast. What a mess. I am not confident but am also pragmatic. What will be. Will be. Love to al. Xoxo

Dx 5/24/2015, IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 6/8/2015 Lumpectomy; Lumpectomy (Left) Chemotherapy 8/14/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast
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Jun 30, 2022 01:07AM kittykat9876 wrote:

Hi all, well Sanju wants to give the Verzenio a chance because I only had 3 weeks on it before I had to stop, so we're going to give it a chance and I'll see her every 2 weeks for a bit so she can see how I'm responding. kbl, enjoy your break with hubby, it's nice to have family around but we all need some downtime occasionally. Mollifish in your pocket while you wait for the results. Moth, I saw your ig post, I'm so sorry your bloods ar so low, I wish I knew of a way to get them back up.

Surgery 5/22/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/27/2021 Navelbine (vinorelbine) Targeted Therapy 5/1/2021 Verzenio Targeted Therapy Afinitor (everolimus) Radiation Therapy External Hormonal Therapy Local Metastases Radiation therapy: Bone
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Jun 30, 2022 10:03AM - edited Jun 30, 2022 01:15PM by mara51506

KBL, always good to have downtime for sure.

KittyKat, may the Verzenio be effective and kind on any SE, in your pocket too.

Love going out to moth, hoping they can suggest a way for her bloods to be brought back up.

My older DB texted yesterday and asked me to come out even if I did not want groceries, wound up walking around Costco and two grocery stores. Was worth 6000 steps so that was good and I did wind up getting a couple of things as well but no beans. I opened my new Vileda Duactive broom, has corner bristles and one side has foam, definitely collects the dust well, will be good to use.

I did have a beef pie purchased yesterday. OMG, it was delicious and simple, just the beef pie itself, salted it and added a good dollop of caesar dressing. It cost a lot of calories but I can simply do low cal snacks the rest of the day along with the exercise.

I really do like the new broom but it is a bit messy so still needs to be vacuumed after use but it shines to the dust pick up on the foam part. Will just take some getting used to. Laundry is done, not much to do today.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal; Mastectomy; Mastectomy (Right) Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Jun 30, 2022 05:30PM tanya_djamila wrote:

Good afternoon ladies

Kitty sorry to hear about the progression. Thanks for checking in.

Take care all sending hugs

Tany

Tanya Dx 8/19/2003, LCIS, Right, 6cm+, Stage IV, metastasized to bone/other, 28/28 nodes, ER+, HER2- Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2- Immunotherapy 6/1/2017
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Jun 30, 2022 07:52PM micmel wrote:

I finished my fourth painting. This one was fun too. Took a long time. But so soothing. I know it’s not for everyone, but I love it ! Love to all of you ladies.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 30, 2022 08:09PM kikomoon wrote:

Mel- it’s beautiful! And I bet it is so relaxing

Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Xeloda (capecitabine) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Tukysa (tucatinib) Radiation Therapy External Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Local Metastases Brain
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Jun 30, 2022 08:13PM candy-678 wrote:

Mel- Glad you are enjoying the painting. You also were good at mask making. You are an arts and crafts person. I am not, sorry to say.

April 2021 first progression and flip ER-/PR+ now. Current treatment as of Sept 2021 is Lynparza, Lupron (been on since Nov 2017), and Xgeva (been on since Nov 2017). Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 11/1/2017 Femara (letrozole) Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Dx 4/2021, ER-/PR+, HER2- Targeted Therapy 9/1/2021 Lynparza (olaparib) Chemotherapy AC Surgery Lymph node removal; Mastectomy; Mastectomy (Left)

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