Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All to Contribute — Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by micmel

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by micmel

micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Mar 18, 2023 11:45AM illimae wrote:

mpan, I’m not sure if this is the place you’re looking for either but you are welcome here. Also, you didn’t miss the signs, you’re not supposed to be thinking anything about breast cancer at 29 and so soon after pregnancy. I was diagnosed with bone mets at 41, older than you but still “too young”, it happens. The chemo plan sounds standard, as they’ll want to treat it aggressively and knock it back. I’m sorry you’re facing this and I hope you have support at home, just know you’ve got it here too.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 18, 2023 12:22PM - edited Mar 18, 2023 12:23PM by sunshine99

Candy, I always feel a bit guilty when I don't comment on every posts. I haven't been kicked out of this group for it (yet).

mpan, wow and welcome. I'm glad you found us, but so sorry you're here. I don't even know what to say...

Carol

my-sunny-side-up.com Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External Local Metastases 5/5/2020 Radiation therapy: Bone Radiation Therapy 5/12/2020 External Local Metastases 5/12/2020 Radiation therapy: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Mar 18, 2023 12:27PM wren44 wrote:

Mpan, Welcome but sorry you're now in the club no one wants to join. If you want a second opinion, ask for one. Doctors are OK with this and it may be reassuring that you're on the right track.

Lumpectomy and re-excision followed by mastectomy of right breast. Five years of anastrasole completed. Chemotherapy 6/17/2022 Other Surgery Lumpectomy (Right) Surgery Mastectomy (Right)
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Mar 18, 2023 01:17PM mpan211 wrote:

thanks all. weird place to be. but at least people seem nice. thanks for the welcome. I'm going to get another opinion. I already had a second appt with another hospital system so I'm going to take it. Thanks for the responses. Its nice to see people out here, it gives me some hope I'll get to see my son grow up. Sorry to be a downer, I'm working on my positivity haha.

Chemotherapy 3/1/2023 Other Dx IDC, Left, 6cm+, Stage IV, Grade 3, ER-/PR-, HER2-
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Mar 18, 2023 01:48PM sadiesservant wrote:

Hi All. I’m here, doing okay (more or less) but, like Candy I’m finding life is getting harder these days. I pop into the living room but don’t seem to have the energy to post. I am dealing with some pain, waiting for rads to my left hip on the 3rd and some issues on the right side due to my ever expanding liver. But spring is finally poking its head around the corner which gives me a bit of a lift.

mpan, I’m so sorry you find yourself here but this is a friendly bunch so you will have plenty of shoulders to lean on. And no, you did not drop the ball. I was originally diagnosed at 38 which was considered young. At your age it’s unthinkable. Sending a virtual hug and wishes for treatments that knock it back for a good long time

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 9/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/7/2022 Halaven (eribulin) Chemotherapy 4/25/2022 Xeloda (capecitabine) Chemotherapy 10/4/2022 Gemzar (gemcitabine) Hormonal Therapy 12/30/2022 Aromasin (exemestane) Hormonal Therapy Faslodex (fulvestrant)
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Mar 18, 2023 05:02PM - edited Mar 18, 2023 05:03PM by mara51506

Mpan, you are in the right place for sure, we have support, friendly people and more here, sometimes there will be info people understand regarding treatment or questions to ask you MO. We are glad you are here. Take a seat on the enormous couch. We are in your pocket meaning we offer continual support to you and each other.

Well, me yapping about a food discovery again. I have a certain brand of peanut butter here in Canada, only one that I enjoyed for many years. Kraft peanut butter. When I did a shop through the online walmart grocery, I noticed Great Value peanut butter was just about 1/2 the price. I did purchase it and it is close to the Kraft but not quite so my clever idea is to just mix the two up with each other. I tried it and all the stirring made a super creamy peanut butter that gives me yummy peanut butter and I can stretch out the two brands and save some money.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal; Mastectomy; Mastectomy (Right) Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Mar 18, 2023 05:23PM - edited Mar 18, 2023 05:30PM by micmel

mpan~I am just so sorry that I am seeing a 29 year old posting on MBC boards. I'm so sorry honey. Post anything you'd like anytime. Let it out. 8 month old. ? Are you amazing or what. ? Just. Take a deep breath and get a plan together. I'm seven and a half years out and fighting for it alll. Mae is right the plan is usually on the mark. I've been taking oral .. looks like they are being aggressive for a remission. Just in the bone is very manageable. I'll be including you in my thoughts for sure. Hugs sweet woma

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Mar 18, 2023 06:09PM elderberry wrote:

mpan: I am so sorry to see a such a young woman here. Young and with a child. This is the place to go because we understand your fear, your anger, the whole sh*tshow of MBC. Please don't ever blame yourself. We are here for you.

Mel's living room is very very large!!!

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Mar 18, 2023 06:41PM livingivlife wrote:

mpan- welcome to Mel's but I am sorry you find yourself here at only 29 years old with a sweet young baby. Yes get a second opinion. The treatment plans are best to knock this cancer out . We are all right with you with knowledge and support!



Deb
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Mar 18, 2023 06:42PM livingivlife wrote:

Emac- yay for stable!

Deb

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