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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 05:38PM - edited Oct 28, 2019 09:42AM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 13, 2020 08:00AM Micmel wrote:

BooBoo~I totally agree with you and how you noted that you understand why people choose to stop treatment. I honestly would consider it. Should things start to look really bad I’m not going. To torture myself or my family watching me fade away from what I was. Not to mention the physical toll it begin to takes. With this sinus infection I was like wow this sucks bad. Then I thought of Mae!!!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 13, 2020 08:19AM Rosie24 wrote:

Moomala, Cancer does suck. I hope you get some answers from the thoracic surgeon, especially what does he/she propose to do f the lung tumor is lung cancer, not MBC. If it shrunk with I/L it would appear to be breast cancer, but then I’m not a doctor of any kind, I just read a lot. And, keep in mind you’re not obligated to follow the recommendation if it doesn’t feel right to you. You have been through so much recently and you do have a lot of guts. The thing is though, none of us wants to be faced with things that demand guts. For me, I just do what I have to do to try to survive this thing and other people think I’m tough or strong.

And add me to the people that cry when someone is nice to them. My biopsies (3 suspicious areas) before dx were done with ultrasound and two were bleeders that needed hard compression by the radiologist. I made it ok, but was scared and shaky. The last one had to be done with the stereotactic mammo in another room. The radiologist saw that I was barely holding it together and put her hand on my shoulder and looked at me, and told me I was doing great. Well here come the tears. Then the breast squishing and the waiting while they looked at the images, and a nurse is holding my hand during this. More tears. I’ve had tons of tests and scans and procedures since then but that biopsy day was my hardest yet. I’m thankful for the kindness.

Shetland, I’m here to listen too. I hope your day today is a little or a lot better. I’m happy to have found Mel’s living room and all of the lovely people here.

Tanya, Great pic of the pj party!

Mae, Thinking of you.

Mel, Feeling any better?

BevJen, Hello!
Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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Feb 13, 2020 09:01AM Micmel wrote:

I am also a cryer. I’d cry at the opening of a Kmart! But I get awkward when people watch me become emotional about my cancer. There is nothing in the world that can be done about it, which makes me cry more. Emotions run so high when we are forced to scan and test constantly. I know we all hate everything about it

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 13, 2020 09:06AM booboo1 wrote:

Mel,

I just got back from Urgent Care, and guess who has the flu? Dr. said influenza A. So they gave me Terraflu, some cough meds, and he said I’m to stay home in bed for the next week. Like I feel like doing anything else...

My hair started to fall out in big clumps today too. Yes, I think it may be time for a good cry.

Our friends are leaving on Friday night to head back North. If it was anyone but them, I’m sure I would not have been able to do two weeks. But I must admit I am looking forward to my nice quiet house again

Laurie (aka Booboo) Dx 3/1/2013, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Surgery 5/14/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Feb 13, 2020 09:23AM Micmel wrote:

BooBoo~Hugging you gently.... I am sorry about how you’re feeling and your hair. I’ve been through it. But, I know no words will make it all better. I am right beside you in spirit. You’re like me, being sick only compacts the cancer symptoms and impact it has on us.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 13, 2020 10:13AM ShetlandPony wrote:

I so appreciate all your welcoming and sympathetic words. You are on to something Sondra. I appear to be coping so well, but have been stretched really far emotionally, so it doesn’t take much to reduce me to tears. It was the same when I had my first liver biopsy. I was coping ok until I got to the CT room and found it was not the doctor I was expecting, that my trusted onc had mentioned. I was tearful and wouldn’t continue until they let me talk to my onc on the phone. I usually appear to medical types as a smart, clear-thinking, analytical person, and I guess I am those things when it serves me, but I am actually very people-oriented and sensitive. Moomala, your story made me tear up. Again. Booboo, I know right? Those shots are like some kind of medieval torture. Micmel, thank you, I like my chair, especially the pillow.

2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
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Feb 13, 2020 10:21AM Moomala wrote:

Booboo how awful to come down with the flu!!! I hope they prescribed Tamiflu! That will really help you. Yes i think a good cry is in order my friend. Hair falling out on top of being sick does not sound too great. I'm the kind of person that would just drag myself to the bathroom, shave it all off and drag myself back to bed.

My uncle stopped treatment for stage four renal cancer this week. He was diagnosed a year ago, just like me. He said he's had enough, the treatments are not really working, and he is too weak to walk. He fell and fractured his leg this weekend. The ortho had already put a rod in that leg so now the remaining bone is just broken. His back is fractured and he has to wear a brace all the time. I can totally understand how he is feeling. Having gone through a shit year with treatment failures, fractures, back pain, hip pain, pneumonia, low platelets, low potassium and now this lung thing, I have had my days of thinking 'ok you win mf'er". Booboo just get better from the flu for now. Being sick like that takes the stuffing out of you and I always get emotional and vulnerable when I'm sick.

At least you can stay home and recover in your own bed. We are supposed to call the cancer center if fever goes above 100.4 and then usually we are sent to ER which then results in a hospital stay. (shudder) Feel better fast!

Dx 3/1995, IDC, Right, 2cm, Stage IIB, Grade 1, 1/17 nodes, ER+/PR+ Dx 3/2019, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane) Targeted Therapy Afinitor (everolimus) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Feb 13, 2020 11:15AM SondraF wrote:

Is it a full moon or what? Work is blowing up with a ton of changes and then on here too many ladies are facing uncertainty or (added) illness or family drama. How is it only the middle of February?

Moomala - best wishes today if you are still waiting to scan. Ive got a box of little fondant cakes I can share amongst the pocket dwellers as we hang out with you.

Boo - oh man that sucks. At least you are able to be home, but feeling grotty is never fun. And added hair loss too? Geez..

Mel - feeling you with that sinus infection. They always make me feel like tearing off my face. I've been sinusy the last few days due to storm systems and having a few giant bawling sessions, and the pressure gets to be a lot and I cant sleep so then I am even MORE cranky and emotional.

Hugs to everyone else Tanja, Mae, Philly, DodgersGirl, Mara, BevJen, Rosie, Piggy, and anyone else I may have missed!

Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole), Zoladex (goserelin)
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Feb 13, 2020 01:31PM - edited Feb 13, 2020 01:40PM by candy-678

Sorry to Shetland that I couldn't be there yesterday when you needed a virtual hug. Hugging you now, my friend. God bless you.

Wow Boo the flu plus dealing with everything else.

Moomala- Praying for you, my friend. That the lung thing is not primary lung cancer. My the Lord help you today.

I was just telling a friend that dropped by today of the uncertainties of MBC--when will I progress and what will it look like. Dear God, what we go thru. You all are so strong.

God help us.

Edited to say---Moomala, I see you last posted 3 hours ago. Well???? What is the thoracic surgeon saying?


Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Feb 13, 2020 02:17PM mara51506 wrote:

Moomala, I am staying in your pocket beyond the appointments you had. Cancer certainly is random. The most unhealthy habits don't always translate into the applicable diseases for sure. I never drank a lot, was a bit overweight but always was active and I got this stupid, most aggressive inflammatory cancer, grade 3 AND HER2 positive. Then it spread to my brain first. Yet other people with slower growing cancers have progressed sooner than me. Figure that one out. The world is random and upside down. I do think a lot of it is luck and of course how you respond to drugs BUT I definitely think luck plays a hand in it.

My BC is likely related to my father's colon cancer according to my MO since there is no recorded BC on either Mom or Dad's side. I have no doubt been very lucky in drug and radiation responses in both body and brain and feel grateful for being as strong as I am and able to do what I want to do, whether walking, cooking, housework etc. I know the day will come when my luck runs out, but even when depressed, I tell myself I have been lucky.

Mel, hope you get to feeling better soon, Mae I hope the food eating can begin soon and I hope things heal soon as well.

Anybody I missed, I hope things are going well.

FYI, I sat on my butt on the couch today and enjoyed myself. I was going to go for a couple of long walks, but suddenly remembered getting stress fractures in my feet when I overdid the walking in 2016. Yesterday was 30000 steps between one store and the grocery store. Though I am not sore, I have decided that some days, I need to take it easy. Maybe actually start riding the exercise bike and take rest days between such long walks. No good if I actually injured myself. Just did a little cooking and working on my little penny sites where I can make a few extra bucks.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Feb 13, 2020 02:18PM Minnie31 wrote:

So many having a rough time now. Hugs Shetland Pony and Moomala, Boo, Mel, Mae. Feel for you all.

Great pic of the pjs Tanya!

I'm just enjoying having my daughter here from Canada, eating too much, drinking wine, not a lot really, but feeling 😴. Night al

Dx 10/20/2016, Stage IV, metastasized to bone/liver, HER2+
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Feb 13, 2020 02:31PM mara51506 wrote:

Booboo, I am so sorry about your hair falling out and the terrible flu you have. I hope that rest, a quiet house and meds have you feeling better soon. I don't blame you for crying. I also sympathize with the hair loss. It is never easy whether the first time, or however many times it may happen. Sometimes a good cry can release some of the pent up stress of the whole situation.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Feb 13, 2020 02:40PM Micmel wrote:

I had the flu two years in a row. I got the shot this year. I got a sinus infection instead. One second I feel like it’s getting better, I get a headache and dizziness pressure in my sinus. It was worse but I hate the feeling. It’s like I can’t think straight and all I want to do is sleep. And so I pretty much have been. I have to do another ten day antibiotic. Messes my stomach up! Brutal.

SO sorry you got the flu! I know how rough that is. We are all having the winter blues. I believe. I was doing so well with not getting sick and then Bam!

Sondra~Tearing off my face sounds like a good idea when the sinus pain starts throbbing throbbing ! Yuck !

Moomala~I’m sorry to hear about your uncle. Geeze what’s up with the kidneys.? All Of a sudden ? I guess when you’re finished being beaten down and tortured, we decide to stop . Every pill I put into my mouth I think. Here goes another pill to do god knows whatever to my body with out any assurance that it will work. Unreal to me honestly...shit stew......that’s what it is!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 13, 2020 02:45PM Micmel wrote:

Candy~ hello to you!! Good to see you !

Mara ~ everyone needs a day to take it easy... 30k wow! You’re amazing. You go girl.

Minnie~Hello hello hello beautiful.... always good to see you.... another Original poster!!! 🥰🥰

My sister said my nieces appetite had improved. Not sure what she was eating but I hope it’s a good diet. Scared my sister when she saw her. Her body is twice the size. Fluid filled. It’s a worry for sure. One day at a time.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 13, 2020 02:47PM Micmel wrote:

Shetland~I hope you’re having a better day today my friend. Sending you a hug.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 13, 2020 02:50PM Moomala wrote:

Yahoo! Some good news to share! The thoracic surgeon showed us the PET scan and the lung tumors don't even light up! She said these are not looking like lung cancer to her and she's seen thousands of lung cancers. So no surgery, no biopsy and just go home. If the tumors grow she can remove them easily with a short recovery period but it's not worth taking me off treatment for several weeks. My bones like up like crazy on the PET scan but the lung tumors didn't at all. I look forward to talking this information over with m oncologist but for now....huzzah!!!!

Dx 3/1995, IDC, Right, 2cm, Stage IIB, Grade 1, 1/17 nodes, ER+/PR+ Dx 3/2019, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane) Targeted Therapy Afinitor (everolimus) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Feb 13, 2020 02:53PM BevJen wrote:

Moomala,

Such great news for you, and for us all! That is wonderful. It was a pain, I'm sure, to go and see the thoracic surgeon, but at least you had an expert in lung cancer look at your scan and make this determination. And how great that the lung tumors are not lighting up at all -- terrific news.

Dx 11/2003, ILC, Left, Stage IIIC, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+ Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 8/1/2019 Ibrance (palbociclib) Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Feb 13, 2020 03:05PM Karenfizedbo15 wrote:

Wow, busy in here ladies! Just had a scan through what I’ve missed. I definitely think we are on a (hopefully) near the end of the winter downer what with shots, scans, friends who are struggling more than us and bugs! Got a horrible cold myself.... checking temp, but seems fine. Just feeling VERYsorry for myself and holed up at home... way better than the hospital!

However, great news Moomala, Micmel makes me laugh and is her usual empathetic self along with many of us....Philly you made the best post for Shetland at a really crappy time for her.

Roll on longer days and a chance to get outside without a howling gale and sideways rain!

Surgery 9/8/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2-
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Feb 13, 2020 03:42PM mara51506 wrote:

Moomala, I am super happy about your good news. I know you needed some with everything else. Good for you.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Feb 13, 2020 04:21PM candy-678 wrote:

Woohoo !!!! Yeah!!!! to Moomala !!!! So happy for the good news.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Feb 13, 2020 04:21PM Tanya_Djamila wrote:

Moomala doing the happy dance for about 10 seconds before my legs get tired. Wow what a roller coaster. Get some good sleep and you deserve a nice dinner movie and dessert out after that scare.

Mara 30000 steps that’s amazing. Good to listen to your mind and body and take some days for cycling indoors.

Booboo flu and hair loss sounds like too much. But the faslodex shot isn’t as horrible if you have it administered by someone with experience. I think it was you who said you would never take it again. Mel gets them too they warm mine up so that the medicine isn’t thick. The needle is long. Mel do you think we’ve gotten used to it or has it become more bearable?

Minnie happy you’re enjoying your daughters visit. Amazing how warming the heart with love improves our health.

Waving hello to everyone.

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Feb 13, 2020 11:53PM runor wrote:

Moomala, thank god! I read here with sinking heart, so many are having such a shitty time of it. It makes my heart scared. Scared for all of us. But Moomala, that is awesome news. Wahoo!

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 13, 2020 11:59PM SondraF wrote:

SO happy to see this news - congrats Moomala, you really needed a win after a lot of stuff being thrown at you since December.

Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole), Zoladex (goserelin)
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Feb 14, 2020 04:37AM - edited Feb 14, 2020 04:38AM by DodgersGirl

Runor—. Had to chuckle when you wrote “shitty news". —- cause I am still in the hospital for diarrhea. Been a week now.

Moomala— great news! So very happy for you.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/11/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Feb 14, 2020 06:10AM Simone80 wrote:

So sad to hear so many of you ladies are sick or having issues with surgeries. I'm lucky as I have not had anything that puts me in the hospital.

Mel, sinus infections are no fun. I get those every now and then. The worse part to me is the sinus headache that comes with it which doesn't seem to go away.

Moomala, so happy to see you finally got some good news.

Dodgersgirl, I hope you can get out of the hospital soon.

and Mea, I hope you are feeling better and able to eat now.

I hope I didn't miss anyone. Enjoy your day ladies.

Dx 7/2001, IDC, Right, 1cm, Stage IIIA, Grade 3, 7/13 nodes, ER+/PR+, HER2- Dx 1/2019, IDC, 1cm, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Feb 14, 2020 08:20AM Micmel wrote:

Good Morning Ladies~. DH surprised me for Valentine’s Day by arriving a night earlier so I’m thrilled. We will just hang out all day together after errands and watch the ranch. Together. I also think he’s making something delicious for dinner. Well see. My mouth is annoying and hurting from Ibrance. One week on and one week off is quite interesting. Your body never has time to feel the full power of the intense side effects. I recommend it, if any of you ladies are having problems with three weeks on and one off. It really helps me

I am thinking about dodgers in the hospital. I am so sorry sweetheart. I hope you’re home soon.

Moomala~ sheer awesomeness that it’s not lung cancer. No words all smiles. And happiness for you! You deserve that break my friend. Yes you do. We all do!
waving to Simone! And Rosie! Legomaster , BooBoo! Feel better honey!
Mara Walking today my girl? Too. Cold here for that. Windy cold flurries!!!
Candy~ hi there thoughtful woman.

Sandibeaches. Just saying hello Blueshine You too friend. Stillivin. You’re on my mind. Thanks for reaching out to me. I was so happy. How is pots ? Love you guys!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 14, 2020 11:19AM mara51506 wrote:

Mel, yes I did actually walk. Did the longest walk on the same trip that I have ever done. I have done a lot of steps in one day, but that usually involves more than one walk. This walk was a challenge I set for myself. I decided to try walking 8 kms or 5 miles to get some milk and a couple of other groceries. The route I took is also very hilly. A lot of uphill walking both ways. For me that was a big challenge but I made it there, got what I needed and sat down with a chocolate bar before heading home. The walk home should have been harder due to probably at least 10 lbs of stuff in my knapsack but it was actually easier since I knew where to expect the hills. My legs definitely were feeling sore as I have not walked this far in one trip ever. I am taking lots of ibuprofen and just sitting on my butt. I don't walk fast but just kept telling myself "I got this, I can do this" in place of the usual I'm so tired. I just wanted to prove it to myself. I don't expect myself to do that every day or anything, but it is nice to know I can do it. BTW, it is 5 miles total roundtrip, not 5 miles to and from.

It was cold but I soon got very warm. I did wear fleece lined leggings and tights. Also had two wigs on as I view them like hats. Proud of myself for doing that. Gotta keep pushing myself to do more. I need to be capable for myself and not depend on other people. Now I need to eat, ravenously hungry. FYI, I bought myself several chocolate bars as treats for later.

I also thought about people in hospital and what they are dealing with and realized I am fortunate and lucky to not be dealing with anything as major as some of us here deal with. I feel like I owe it to everyone to put everything I can do since right now I am in pretty good health. Most of all, I owe it to myself.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Feb 14, 2020 12:13PM - edited Feb 14, 2020 12:13PM by illimae

moomala, yay for good lungs!

Shetland, welcome back 🙂

So, I spent all of yesterday and this morning with a massive headache and vomiting over a dozen times, so off to MDA ER this morning. Two head CT's later and I'm being admitted due to a blood clot, not sure exactly where or what the plan is but definitely not how I planned to spend the night. I'll keep you all posted.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 14, 2020 12:17PM - edited Feb 14, 2020 12:17PM by LoveFromPhilly

oooh Mae! That sucks!!! Damn. What a night you've been through. I hope the vomiting and headache havestopped. I am so glad your body has given you VERY clear signals that something wasn't right. I am sending positive healing energy to help melt that dang blood clot away!!!

Lung and Liver Mets 8/2020 Dx 3/25/2017, IDC, Right, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/4/2017 Femara (letrozole) Hormonal Therapy Targeted Therapy Ibrance (palbociclib)
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Feb 14, 2020 12:26PM mara51506 wrote:

Oh Mae, you have been dealt such harsh things going on. I am so sorry to hear you are in hospital. I am sending myself to your make believe pocket in your hospital gown to give you positive energy as well.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+

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