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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

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Posted on: Jul 6, 2017 07:38PM - edited Oct 28, 2019 11:42AM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 17, 2020 02:07AM SondraF wrote:

I had to get photos June 2019 for my residence permit and they are a HOT MESS. I felt like crap and really didn't care what I looked like and it was a warm, humid day when I took them during lunch break. Thankfully I don't have to get it out too often but there is a definite lack of life behind the eyes that is a little frightening to see.

I'm not a big makeup person either, but the benefit of masks is that you can just whack on some mascara and go. I wouldn't want to put on foundation at all and risk maskne. Let's face it though, nowhere to go requiring mascara and it dries out my eyes and irritates my contacts!

Mara - you've got super cute wigs so I cant imagine why you would go without :)

Candy - Runor is talking sense in that post. I know sometimes it would be more joyful to have someone else reach out to you first, but what if your friend is thinking the same thing? Make her day and give her a ring first and see what happens :) And if she doesn't respond right away give her a few days too.


Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole), Zoladex (goserelin)
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Nov 17, 2020 07:15AM booboo1 wrote:

Runor,

You have no idea how true your words are (license pics). You should see the one I have in FL when we moved here. I have never looked so bad in a picture. Granted, I am not photogenic, but this is beyond terrorist. I look like an alien! Anyway, good to see you here (always).


Laurie (aka Booboo) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Nov 17, 2020 07:58AM candy-678 wrote:

Thanks Runor and Sondra. I will text that old friend again in a month or so. She has her own life- husband, grandkids, her job (retired but still working part time). The interests we shared long ago are not the same now. We have both moved on with our lives. I will touch base with her again, but I cannot see us resuming too much of a friendship now. Esp. with Covid. Just the way it is.

Today is another quiet one for me. I am going to read. And maybe walk the treadmill-- not touched it since Saturday. Sunny here and in the 50's. Nice to see the sun coming thru the windows, even if too chilly to open them.

Hoping all are doing ok.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 17, 2020 09:17AM - edited Nov 17, 2020 09:21AM by Bliss58

Tanya, what a lovely photo of your family. Congratulations to your daughter and may their love and marriage endure.

I'm not due for a license renewed yet, but DH got his yesterday. He looks like a criminal in a police line-up. Lol.

Hoping all struggling are feeling better and yay for all good news!

A couple visitors to our yard yesterday. Eating our neighbor's landscaping. They won't be pleased.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Nov 17, 2020 09:57AM booboo1 wrote:

Bliss,

Love the picture. Deer are so calming. When I look at them, I can help but smile. They seem like such gentle creatures. Thanks for sharing it.


Laurie (aka Booboo) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Nov 17, 2020 10:35AM Sunshine99 wrote:

OK, here's my Driver License story. The license before this one was renewed in 2008. I had just finished chemo and was wearing a wig (which I really liked). I asked the woman behind the counter what I should put for my hair color if I were bald. She wasn't amused - I thought it was hilarious. Sigh...

Fast forward 10 years to my next renewal. I decided to go ahead with the "Real ID". Kind of a pain because you have to take in all sorts of extra documentation, which I did. Made an appointment at the DMV, made sure my hair and makeup looked nice (I don't wear a lot of makeup), jumped through all the hoops and everything was fine - until I got to the last desk and noticed that my name was not correctly written out. My last name is hyphenated, but my old license just ran them both together. I pointed this out to the man behind the counter and he said, "No problem, I'll fix it".

So, when my license arrived in the mail, it had the incorrect name. Made another appointment at the DMV, went in thinking that they would use the old (most recent) photo. No such luck and my hair and makeup weren't as nice as the time before. Oh well... The good news was that everyone there was actually helpful and cheerful. I went in with my husband a few months later to get his "Real ID" license and it was super easy and again people were helpful and cheerful.

Glad I won't have to do again this for a long time, though.

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Nov 17, 2020 12:29PM illimae wrote:

I’m loving the pics!

Saw a white donkey a few minutes ago, this was a first for me, pretty cool.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 17, 2020 02:24PM Micmel wrote:

love the white donkey!! Love it !

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 17, 2020 02:31PM moth wrote:

ohhhh both of them are pretty but I've never seen a white one either! How lovely!

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Nov 17, 2020 04:15PM mara51506 wrote:

Loving all the wildlife Mae and Bliss, that is great.

Candy, glad to hear you will contact the friend.

I did not do anything except surveys and sit around today. Indulged in a lazier day and that was fine by me. It snowed and is windy and I am just not interested. Did not feel like exercising today so took a well deserved day off.

Unfortunately, a warrant offer came to deliver my subpeona. A while back I mentioned that I am to be a witness in a murder trial because some asshat killed someone and threw his bloody clothes in my backyard when I was still living at my condo in 2019 this past January. I just have to testify that I do not know when the clothes got there and did not see might have done it. It was just very creepy to know what they involved not far away. Was supposed to have to testify this year but COVID messed up everything at the courthouse so it is pushed back to February now. I am not so much nervous about being questioned, they will review the statement I gave at the preliminary hearing, it is just the bloody clothes just stresses me out. Oh well, need to put on my big girl pants and do what needs to be done for justice for the victim and his family.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 17, 2020 05:02PM - edited Nov 17, 2020 05:09PM by Bliss58

Oh Mara, that's terrible and I'm sorry you have to go through all this. Creepy indeed!

Booboo, they were in the shade and my photo lighting not too good, but they were actually moose; a mama and her youngster. Here's another one of them leaving. The mama has a lame back right leg. She comes around every year with her kids.

Mae, that is cool to see a white donkey. Maybe some kind of omen for good luck?

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Nov 17, 2020 05:57PM illimae wrote:

Bliss, DH and I saw a moose last year in Bew Hampshire, it was awesome.

Mara, yeah that’s creepy, at least you don’t have to point the finger at anyone.

Went to the bigger town today to pick up insulation DH ordered, despite him calling to confirm it arrived, it did not, it hadn’t even been ordered. The guy on the phone was looking at someone else’s order. There goes a whole day, we’ll try to get it in El Paso next week, when I’m there for treatment.

Relaxing now, we’re spent.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 17, 2020 06:54PM Tanya_Djamila wrote:

Mae I’ve never seen a white donkey. Beautiful creatures greatly misunderstood.

Bliss I used to watch a tv show northern exposure, and they always had moose come to town and eat everyone’s landscaping. They’re very large.

Hi Runor!

Mara can you give your testimony over the phone, zoom or something. Bloody clothes is ghastly.

Candy it’s nice to see you here today. I took a quick walk outside and passed a few folks one without mask but we were outside so I think then it doesn’t matter but I was listening to the news today and it said that inside Covid can live in the air for 15-60 minutes after an infected person has left the room. Vaccine can’t get here quick enough.

Mel hope your day went well. I spread out some plants in the backyard which is always back breaking when your back is already broken but I love gardening.

Take care all

Tany

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Nov 17, 2020 07:09PM - edited Nov 17, 2020 08:13PM by Micmel

love seeing the nature pics. hello to everyone. Went to the fabric store For some Christmas fabric today. We know what that means. Lol.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 17, 2020 08:03PM mara51506 wrote:

We will see what will happen in February and if he can plead guilty and also where we will be at with covid. Until then, I will just forget about it.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 17, 2020 08:13PM Micmel wrote:

That’s some crazy shit there Mara......good idea to put it out of your mind.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 17, 2020 08:43PM Rosie24 wrote:

The wildlife pics are really neat. I’ve never seen wild donkeys and have only seen moose from quite a distance. My windows see the typical squirrels and birds, but even birds at the feeders are a nice sight in the winter.

Tanya, That is such a nice family photo. Best wishes to your daughter & her husband.

Candy, I know what you mean about some old friendships being hard to maintain, especially when the daily contact isn’t there anymore.

Mara, You definitely deserve a day of rest after so much walking and the stress of the bad day. The court summons sounds stressful too. Glad you aren’t going to have to recount anything since you didn’t see anything. I’ve been called for jury duty a couple times. Although I wasn’t ever put on a jury, I was in the jury box during the introduction of a few cases and found it unsettling to hear the charges and see the defendants sitting there. One case settled before the jury selection and the other I luckily was dismissed. Our big city has no shortage of crime.

Mel, Have fun getting your holiday fabrics! I wear your masks all the time, they’re so well made and cute too.

We had snow on the ground this morning, pretty, but cold and windy. Supposed to be back to 60 by Thursday. I decided to try physical therapy for my wonky shoulder. I hardly notice it some days, until I try to lift or reach for things, but night time seems to heighten the pain. I’m hoping the pt doesn’t make anything worse. Scan coming up on Friday. I’ll have to call for results because I don’t see MO until the 30th, and that’s a long time to wait.

Hi to everyone reading 😊

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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Nov 17, 2020 08:50PM Micmel wrote:

Rosie ~Thank you... I’m so glad you wear them a lot and like them. That makes me happy. My nurses were asking today were the holiday ones were. So I got the hint. And went and got a few different fabrics. I’ll start to process snowflakes tomorrow. Just take my time and get them done. I have a lot of fabric for spring already thanks to Lynne 50’s..... I enjoy making them. So the holiday ones are on the way. I have thanksgiving harvest type ones now. Only one pattern for that. It seems it goes right from Halloween to Christmas anymore.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 18, 2020 07:57AM candy-678 wrote:

Morning all.

Rosie- In your pocket for Friday scans. I will be asking for a report on Monday, LOL.

Today I have to go get my monthly blood draw-- check that white count, liver enzymes, calcium level, etc. I wish I didn't have to get out in the crowd, and I guess I could tell MO nurse that I skipped this month due to Covid concerns. But next month will be no better. So might as well get everything checked. Tired of messing with health stuff all the time. And tired of Covid.

Mel- I wear your masks all the time.

Wow Mara a murder, bloody clothes tossed out. Sounds like a book or movie. Creepy.


Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 18, 2020 08:20AM mara51506 wrote:

Candy, yes it was creepy finding the bloody clothes. I thought it was a skunk at first until I looked closer. I even had my mother toddle out to the kitchen to ask if I was seeing what I thought I saw. Anyway, she would have to have testified as well BUT she passed away.

Having slept on it, it really should not be a problem because I am simply going to answer what I need to. I am a small part of the puzzle in the case and my time in it will be small. My part to get justice for the victim.

I have to go to the store today, it did snow so I might put small cleats on my shoes in case it is slippery. Have not been out in the snow and doubt anything has been salted or sanded.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 18, 2020 11:34AM Tanya_Djamila wrote:

Good afternoon all,

Chilly morning here. Not much going on, just gonna look at my gardening efforts from yesterday. I have a blister on my hand from the pitchfork or shovel so, alas no digging today.

I didn't get my flu shot yet. Did everyone else get one already? I have an appt. Tuesday for zometa infusion I'll ask about the shot then.

Candy I hope your blood draw is painless and uneventful. I too hate venturing out for these medical appts. especially with covid rising.

Rosie in your pocket for Friday scans. Ill try to find that fancy popcorn that you all wrote about last time from Chicago I think.


Tanya


Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Nov 18, 2020 12:38PM candy-678 wrote:

Tanya- I got my flu shot Oct 5 at my PCP appointment. I usually get the flu shot the 1st or 2nd week of Oct. Blood draw went ok. Now for the results. I should hear from MO office today-- message thru patient portal. I really like the portal--- messaging system easy.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 18, 2020 01:02PM Micmel wrote:

I got my shot in October as well. I didn’t want to mess around after getting it. The year before and not getting the flu shot. Hard lesson learned.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 18, 2020 01:06PM Rosie24 wrote:

Early October flu shot for me

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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Nov 18, 2020 01:17PM SondraF wrote:

First weekend of October for me - essentially the second week they had them available. Unfortunately the receptionist asked if I was in one of the approved categories as I was otherwise "too young". Yes. Yes I am.

Best to get it sooner rather than later, regardless of the calendar - one less virus to worry about this year!

I seem to have run out of steam here again. Probably time to book another long weekend away from work stupidity. So bored of being at home even though I walk at night and ride the bike some days. I'd like to be able to see friends and go to a restaurant again. But with the vaccination programs so so close now, it would be really dumb to risk it once things reopen. Darkest hour is always just before dawn, right?

Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole), Zoladex (goserelin)
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Nov 18, 2020 01:18PM moth wrote:

I had my flu shot already as well!

Today I had a quick brain CT. They needed it as a baseline for the radiation trial as my previous one was from the summer & too old. I feel a bit out of sorts as everything is still sort of hanging - getting into the trial, getting randomized, the results of the lung biopsy, the switch from getting atezolizumab through a trial to getting it through compassionate access..... everything is still unsettled & not finalized. It's my week off chemo. I see my MO on Friday so I might have some more answers then.

hugs everyone

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Nov 18, 2020 01:20PM Micmel wrote:

Thinking about you Moth. Hoping things settle down soon for you. It’s has to be exhausting for you. In your pocket we are....

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 18, 2020 01:34PM mara51506 wrote:

I've not had a flu shot yet. Should call my pharmacy to get one soon, no pcp as mine retired couple months ago.

Good luck, like Mel things, I hope for you to be more settled down soon.

It was sunny today so I did venture out, can't believe I was not hot in fleece leggings with regular ones overtop and a fleece jacket under my heavier hoodie. I was not cold either. Took a nice leisurely walk over to the grocery store to get some milk, may 25 mins of walking but that was enough. I had a tough time getting myself motivated to want to go but finally thought myself into it. Supposed to be warmer tomorrow so I may visit a shoe store and try to find some heavier duty walk shoes/boots. I have good boots but they are really clunky and I would prefer something closer to my foot, not weighing too much. We will see.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 18, 2020 01:37PM candy-678 wrote:

In your pocket moth.

Message from MO's nurse. ANC 900 WBC 1.5. So stable for me. Lower than I would like to see but stable.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 18, 2020 02:06PM mara51506 wrote:

Glad to hear results were stable Candy.

Moth in your pocket too.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+

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