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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

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Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 21, 2020 02:15PM Bliss58 wrote:

I will take the vaccine when my MO says to get it, but I don't want to be one of first. I'd like to see there aren't adverse SEs, too. My understanding is that it usually takes years for vaccine development because research teams spend up to two years just securing funding then they sometimes have problems getting enough trial volunteers. With quick and automatic government funding that 2-yr. lag was eliminated and it seemed people were eager to volunteer for trials because of the pandemic. Dr. Fauci expected at least 12 mos. for research and trials after funding was secured, and that's pretty much what's happened. I don't think these pharma companies or the FDA have bowed to political pressure to put out a vaccine that will be ineffective or harmful, so I am keen to get it.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Nov 21, 2020 03:00PM - edited Nov 21, 2020 03:29PM by moth

hey I've tried searching the board but not successful

does anyone remember the name of a poster on the board who had cancer & a small store selling chemo caps? I think maybe her name was Debbie/Debby and she, her sister & her mother all got dx with bc within a few years. I bought some caps from her shop last time & want more but I cannot find her, the link to her store or anything ...

UPDATE - nvm! I found it! It's Denise & the store is hellocourage.com


Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Nov 21, 2020 03:16PM mara51506 wrote:

Totally agree about people possibly not liking those still wearing masks after a vaccine is widely distributed but masks also can reduce spread of any disease spread through droplets as well. May minimize colds and flu as well. Win win to me. I won't stop wearing them I do not think since I really do not give a fig about what people who do not know me think of me.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 21, 2020 03:55PM Tanya_Djamila wrote:

Good after noon ladies

Besides oxycodone what are other pain medications that you guys have tried and what combo works best? My co-worker friend was dx last year and now last week stage 4 lots of pain and she will have her PET scan appt Monday but that’s not gonna relieve any pain and she has to do all the radiation mapping and stuff first. Ugh. I seem to remember someone saying a pain med that starts with “G”.

Thanks for the help and everyone have the best day possible.

Tany


Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Nov 21, 2020 04:16PM SondraF wrote:

Gabapentin?

Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole), Zoladex (goserelin)
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Nov 21, 2020 04:26PM candy-678 wrote:

I will still mask after the vaccine. I masked before Covid during cold/flu season due to my low white counts on the Ibrance. I do not mind. I can get more from Mel too. As far as my community, hahahaha. They don't mask now. Did I post here about taking my cat to the vet and the staff getting shi@$y about me asking them to mask. "They have their rights too" I was told. Then I went back there a few weeks later to buy some cat food and they were shi##y again and still no mask wearing. And my church folks wear the mask into the building then take it off-- reported to me by those that go to in-person church.

Pouring rain here. Looks like November with the trees bare and cloudy.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 21, 2020 04:42PM BevJen wrote:

I will continue to mask, too, especially in crowded indoor spaces. Getting a vaccine doesn't necessarily mean that you won't get something, but that it shouldn't be as terrible as if you didn't have the vaccine. And that's something that I don't think they necessarily know about this vaccine yet.

I'm sure we will all find out more from our MOs, and it will be interesting to read what they all say.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Nov 21, 2020 05:11PM Micmel wrote:

masks are well stocked. I did my holiday ones. They came out good. I have more to do. Adorable kinds of fabrics

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 21, 2020 06:04PM Tanya_Djamila wrote:

sondra F thank you that's the name I was looking for.

Also if anyone has any other pain medication besides oxycodone please let me no. Thanks a bunch.

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Nov 21, 2020 06:28PM moth wrote:

Tanya, is she trying opioids and they're not working or is she avoiding opioids for some reason?

Gabapentin is not really effective to relieve acute pain quickly. It takes time to work and it works best as an adjunct with other pain relievers.

For fast relief of acute pain, opioids are the go-to.

Mild opioids are options like codeine (T3s for example) or tramadol.


Then stronger opioids like hydromorphine, morphine...

Here's the pain treatment ladder: https://professionals.wrha.mb.ca/old/professionals...

step 1 is non opioid + adjuvant (like gabapentin or steroids etc) Your non opioid would be acetaminophen (watch tylenol daily max carefully as it's easy to od on tylenol & cause permanent liver damage. You can take tylenol and advil together or stagger them - take 1 dose of tylenol and then 2h later take the advil. Again, watch daily maximums) Tylenol + Advil together in a large dose is the most common thing they give in the ER for pain. Makes people really angry but these are really quite effective pain meds, even though they're otc. Naproxen is another non opioid option.

step 2 is mild opioids - T3 and tramadol and tramacet are here..

step 3 is strong opioids

She may need a stat referral to a palliative team - they're the pain relief experts & would help her ride this out until the rads also start working.

As far as I'm concerned the goal of every cancer care team should be NO pain for the pt.

best wishes for your friend

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Nov 21, 2020 06:48PM Chicagoan wrote:

Micmel-Love the holiday masks. Great job!

Candy-How are your friend and his father doing? (The ones who contracted Covid)

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/27/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/27/2016 Ibrance (palbociclib)
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Nov 21, 2020 08:46PM illimae wrote:

Big local crowd today 😁


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 21, 2020 09:21PM santabarbarian wrote:

Mel I love your eye for fabrics!

pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
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Nov 21, 2020 09:24PM MinusTwo wrote:

Mae - are you going to start training them so we can come out for donkey rodeos next summer?

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 21, 2020 09:29PM ShetlandPony wrote:

Oh, aren’t they beautiful?! Looks like a herd of mammas and young ‘uns. The black one looks pregnant. Have you noticed that the groups are either mares and young, or bachelor bands?

2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
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Nov 21, 2020 09:45PM - edited Nov 21, 2020 09:47PM by Micmel

that's so awesome Mae. They indeed are beautiful! Amazing how they just aren't afraid. Thanks for sharing.

My friend ended up passing away yesterday, because of the aneurysm. The took her off of the machines. She was 50. Two girls. And her mother were with her. So sad. Parents shouldn’t bury their children. Life sometimes blows. Good person she was too.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 21, 2020 10:03PM mara51506 wrote:

Mel, I am sorry to hear about your friend. My condolences to you, your friends and family as well. So young.

Mae, those donkeys are great, you really are out in the country. That is great.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 21, 2020 10:07PM - edited Nov 21, 2020 10:11PM by Micmel

Mara, Thank you , you are so thoughtful and kind.

Candy~ I'm pleased to be your mask source! 😷

Mae~I'd get nothing done. I'd be watching nature up. CLose and personal. So cool!

Thank you Santa! It's fun!

Tanya~I’m sorry your friend is in pain.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 21, 2020 10:29PM SeeQ wrote:

Mel - so sorry for your friend and her girls. And on a separate thought, your masks are really cute.

Mae- you really do have interesting visitors. Do they just come to graze?


De Novo Stage IV; numerous mets in liver; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Nov 21, 2020 10:33PM Micmel wrote:

thank you SeeQ, welcome to our thread good to see you here....

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 21, 2020 11:19PM nopink2019 wrote:

Tanya, depending on the pain level marijuana may help.

Dx 2008, IDC, Stage IA, Grade 3, ER+/PR-, HER2- Dx 2019, Stage IV, metastasized to bone/liver/lungs, ER+/PR-, HER2- Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Kisqali
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Nov 22, 2020 05:52AM KBL wrote:

Mel, I’m so sorry for your loss. I can’t even imagine what her family is going through.

Mae, we just get deer at our property. Yours are so interesting.

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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Nov 22, 2020 07:46AM booboo1 wrote:

Mel,

That news is always so difficult to hear. So sorry you have to go through another loss. But if she was hooked up to machines to live, then better to go, in my opinion. I have a DNR on my living will. I do not want to live by machines. Anyway, I will pray for her family, and you too.


Laurie (aka Booboo) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Nov 22, 2020 08:31AM mara51506 wrote:

Mel, still thinking of you and your friends family today.

Laurie, I have the same, I don't wat to be revived no matter if it is cancer or something else. Don't want to be alive in a home somewhere by myself either.

It is snowing quite a bit today so I am going to check out my new walking boots, they are not tall, just the size of shoes but today may be the day to do multiple short walks in all the various boots I have. Get acclimated to wearing them all.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 22, 2020 08:53AM candy-678 wrote:

Just logging back on. So many posts.

Chicagoan- My friend and his dad that contracted Covid are ok now. My friend (my age at 50) did ok. Mild symptoms. Back at work and doing fine. His dad (age 78) was in the hospital a couple of days with pneumonia but ok now. The dad's sister and husband caught Covid and she died (age 87) and her husband was in the hospital, then home, now back in the hospital with a stroke. He attended the funeral (graveside) of his wife per Zoom from his hospital room. I think my friend "gets it" now.

Mae- Neat!!!!

Mel- Sorry for the loss of your friend.

Mara- I would like some snow. Poured her last night. Today cloudy and in the 40's. Would be nice to watch the snow fall and not have to get out in it. (since I have no place to go anyway)


Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 22, 2020 09:15AM SeeQ wrote:

Candy - I loved your "not have to get out in it" comment about snow. I was raised in the Chicago area, a lived there twice again, and I can definitely say I like snow better when I don't have to get out in it. There is nothing like the quiet peace and beauty of the morning after an overnight snowfall...when you dont have to get out in it.

De Novo Stage IV; numerous mets in liver; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Nov 22, 2020 09:47AM candy-678 wrote:

SeeQ- In Southern Illinois we don't have too many large snowfalls. But there have been times I have had to go out in the dark of morning and shovel a path to my vehicle and then shovel it out so I could get to work by 7am. Now, I do not work. And with Covid and isolating indoors, I could just sit and watch the snow fall. It is a "quiet peace and beauty" of the snow. Last winter we had no snow here.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 22, 2020 10:04AM illimae wrote:

This is the biggest herd I’ve seen around, usually there are small groups of Mares and little one but also some single ones, which I presume are males.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 22, 2020 10:13AM mara51506 wrote:

Our snow will not stay too long, but I am planning to try out my new walking boots, more like shoes with the tread of a boot with vibram. They slip on which is preferable to me as well. It does look pretty to see, that is for sure.

I have not even had breakfast and not sure what is going on but I am listening to music for money and bouncing along to the christmas songs and randomly singing them myself. I am in a good mood and have not even walked to make that happen. That is nice for a change. I do intend to walk today as I need to see how slippy straight up snow would be. I have footwear for deep snow, less than deep snow, cleats for icy patches.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 22, 2020 10:32AM Chicagoan wrote:

Candy-That's very sad about your friend's aunt and uncle. How awful to attend your spouse's funeral by Zoom.

Mel-Sorry to hear about your friend.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/27/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/27/2016 Ibrance (palbociclib)

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