Topic: My Husband, My Life, My Love, My Family, My Cancer

Nov 24, 2020 08:28PM Rosie24 wrote:

Booboo, You’ve had a lot of time to deal with feeling lousy and think about how you want to proceed. I hope your upcoming pet scan gives you some useful info. Thanks for giving us your thoughts. It gives us some understanding of what you’re going through and what’s likely ahead for us too. Sending you a gentle hug. 💕

BevJen, I’m so sorry to hear of your IR problem. I agree with the others that his honesty is admirable but it’s still a very frustrating event to have to go through the procedure again. I’m glad you won’t be delayed too much and scheduling is already happening. (I hope you posted on this page, I know we read a few of the same threads.)

Candy, I hope you had an ok day today. I’m sorry I don’t have any solutions to offer for your boredom and loneliness in these Covid times. I don’t have any productive hobbies either and waste a lot of time with tv and playing games and reading on my iPad. I like crossword puzzles and jigsaw puzzles, and try to get out for a mile or so walk when the weather is decent. It’s a lot of sitting on most days and I know I should do more.

Nov 24, 2020 10:03PM Tanya_Djamila wrote:

Good evening all

Booboo so glad you finally met the palliative group and can look forward to some QOL soon. Do you know when you will start methadone? I only know about people using it to get off heroin but it can probably be given in doses that are geared to your needs. Let me know how your schedule is so we can squeeze our outing in. Hugs sent

Tanya

Nov 25, 2020 11:33AM Sunshine99 wrote:

booboo, I'm so sorry for all you're going through... My husband and I were talking last night. He has a friend whose mother has been ill. She's in the hospital but wants to come home with hospice. The friend said, "I can't believe she's giving up." My husband strongly disagreed with that statement. Since when does not giving up mean that you have to suffer with treatment, side effects, and a poor QOL?

We would never tell someone to "not give up" or "keep fighting". It's never another person's decision to decide when someone else should either keep fighting or just let it go and find peace.

I hope you find peace in your journey. You know you are loved here.

Carol

Nov 25, 2020 03:48PM booboo1 wrote:

Thank you Mel, Candy, Carol, Mara, Tanya, Rosie, and Moth. I really truly appreciate you all so much, and thank you for your understanding. I’ll let you know what happens after the Dec. scan and then the meeting with my MO in Jan. God bless all of you

Nov 25, 2020 06:00PM Micmel wrote:

I completely understand the skin Crawl feeling. Boy can I ever !! You all speak my language.

Nov 25, 2020 07:33PM Micmel wrote:

Nov 25, 2020 07:44PM moth wrote:

oh Sandibeach, that's really much too much. You come curl up on the couch and we'll cover you with a fuzzy blankie and rub your back

Nov 25, 2020 09:46PM Tanya_Djamila wrote:

Good evening

Booboo there was a lady Minnie who used to frequent here more often but she went in hospice to get pain under control. I know that’s not what you mean but the pain makes me cranky crabby and short tempered. Whatever you decide and whatever tests I’ll be right here praying with you and for you Laurie.

Sandibeach57 we’re all on the couch waiting with whatever you need to get through this. Hugs 🫂

Candy I know that feeling. I’m glad you achieved that today. I tried but it didn’t happen today so I’ll look for that moment tomorrow.

Moth keep asking you just need one member of your team to find it plausible. You have a lot coming up quickly. Hopefully this round of TX will be tolerable.

Bliss thanks for asking about my friend. I don’t know what she decided I gave her an old walker and some MM concoctions and sometimes only opioids touch the pain. I did read on here that someone was prescribed methadone.

For all who celebrate Thanksgiving have a happy one.

Tanya

Nov 26, 2020 08:05AM booboo1 wrote:

Sandi,

There really are no exact words of comfort when someone passes, but we are here for you to come for a rest. Sometimes that’s exactly what is needed. As Moth said, come and rest while we take care of you with hot tea, scones, and plenty of hugs. So sorry this is all happening.

Nov 26, 2020 08:14AM dutchiris wrote:

I haven't posted much but I do care about all here. I am thankful for you all and for BCO today and everyday. Happy Thanksgiving!

Sandibeach, I'm so sorry for your loss.

Mel, thank you for letting me quietly drop in and hang out in your livingroom.

Yesterday I had scans, labwork, and an appointment with my MO following cycle 15 of Ibrance (day 5 of week off). My ANC WAS .67. I will have labs again next Wednesday. After cycle 14 my ANC was .71 so I had to wait and extra week before starting cycle 15. They may consider a dose reduction.

But...scans showed slight progression in left sacral ala and L2 vertebral body. I have some increased pain in those areas. We talked about pain meds and possibly radiation. I don't feel the pain is enough the do more than OTC. May try lido patches. I will be continuing with I/F for now as progression is slight. Any thought you can share?

I currently work full time in a hospital procedure area. I can stay out of COVID positive cases for the most part but not always. Most of those patients would wait until quarantine was over but there are emergencies. Ugh, I don't know what do.

Nov 26, 2020 09:02AM candy-678 wrote:

Sandibeach- Oh my, so much right now for you and your family. Gentle hugs from here.

Moth- By sending that email you can say that you are leaving no stone unturned. I am that way too. You did your best. If they deny the SABR you know you did everything in your power and maybe this was not the right road for you.

Dutchiris- What dose are you on? I am on 75mg (for 3 years now) and I am now on the take 5 days/ off 2 days schedule due to low ANC. It has helped some--my ANC was 0.5 (500) at one point on the regular dosing, now it is 0.9 (900). I hope you get a better response from lido patches than I did. For me it was like putting on a piece of tape, no response whatsoever.

Nov 26, 2020 09:41AM GoldensRBest wrote:

When I read the posts on here I often have no words to respond to the emotional and physical pain that all you endure. It leaves me gut-wrenched at the path cancer has in our lives. But then I read the support that is found here - pocket duty, virtual hugs, sofas with cozy blankets..... In a year of sheer craziness, this is where I find honesty, understanding and strength. Peace to all

Nov 26, 2020 10:55AM mara51506 wrote:

Sandi, of course we are all going to respond to your devastating news. I am so so sorry about your SIL passing away and the trauma she must have gone through with tongue cancer. I am thinking of you and your family and know you still have so much going on. My sincerest condolences to you and everyone who knew her.

In everyone's pocket who needs it, thinking dutchiris, Moth, Sandi and everyone.

Nov 26, 2020 12:50PM illimae wrote:

Hi all! We’re just hanging out on the deck while the turkey is cooking and enjoying a glass with a view.

Nov 26, 2020 01:58PM mara51506 wrote:

Lovely view Mae, enjoy the wine and turkey later on.

Just got back from the package pickup and a wee shop at my grocery store. So nice to bump into someone I worked with in the grocery store and we chatted it up for about 20 mins which was really nice too. I can forget how much in person interactions really do matter for us in addition to our virtual ones.