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Mar 13, 2021 11:00AM
Sondra- ?? Your "primary" collapsed?
We do have some weird sensations sometimes.
I am tired of how I feel. Today I got up early and went to the store when they first opened. Needed some items and staying away from crowds still. I was walking around the isles in the store feeling kind of short of breath. Not bad. But just a little. And the hot flashes were coming like crazy. Chilly out today so I had a jacket on. And my back, hips, and pelvis hurts. My knees too. Rainy, damp weather so maybe arthritis or most likely the Letrozole. I got home and sat down on my couch. I felt so tired and was thinking that I have the whole day left before bedtime. I changed my bed sheets today so I have an extra load of laundry to do today too.
I used to get up and go to work. Raring to go. Busy, busy, busy. Now, I just feel like curling up under the covers. My scans will hopefully look good on the 22nd. I hope. But my QOL sucks. I could tell my MO all this, but she seems like the kind of doctor that just discusses the latest scans and doesn't really want to stop and hear all this. Maybe my Palliative Care people? I have an appt with them a couple of days after my MO appt--- so we have the results of the latest scans. Maybe nothing to really do about this. If the cancer is stable, that is the important thing. I just feel so "sick" anymore. I say I want to do volunteer things, and I do, but then I don't because of how I feel physically. I was kind of looking forward to the store today. Look around at some things. But then I feel so cruddy I just wanted to get it over with.
Do any of you feel this way? Or is it just me? I know Mel feels fatigued.
Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now.
6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2-
7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left
9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2-
11/1/2017 Ibrance (palbociclib)
11/1/2017 Femara (letrozole), Zoladex (goserelin)
4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH)
9/4/2021 Zoladex (goserelin)