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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Mar 18, 2021 11:21AM mara51506 wrote:

Moth, I agree with you. I have seen many people who say they have a serious cancer and need help financially and also use this as an attention seeker. I don't care that a person focuses on their cancer say on their facebook page but get suspicious when money is being requested.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Mar 18, 2021 11:30AM 50sgirl wrote:

Mel,

My DH and I got our second Covid shots last Saturday, and we had nothing worse than sore arms for a day. Most of my friends had the same experience. One had a fever for about 4 hours, but she didn’t feel bad. Hope for the best. If you do have side effects they will only be temporary, but the benefits will last a long time.

.It must be wonderful to have such a long time between scans and MO visits. I have blood tests and MO visits at least once a month. This is an improvement over the past two years when I had them weekly. I have scans every three months, more frequently if I have symptoms.

Spring is around the corner. I am looking forward to gardening again. My perennial garden looked pretty sad by last fall. The drought was touch. I have to add that I am also looking forward to some nice warm weather

Hugs and prayers from, Lynne

Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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Mar 18, 2021 11:36AM Micmel wrote:

Lynne~ I know I have to get it. I just don’t want to feel any sicker. It’s good and bad to have scans that long. The mind forgets when you’re away from the medical stuff. When it’s time to go back. I experience ptsd. It makes me anxious beyond anxious. But I am also so thankful that I can go that long and he feels secure enough to do this. I am hoping it improves my quality of life. I’m sending you hugs sweet friend
Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Mar 18, 2021 12:22PM dutchiris wrote:

Congrats BevJen!

Thanks again everyone.

Dx 1/25/2013, IDC, Left, Stage IIIC, Grade 2, 19/24 nodes, ER+/PR+, HER2- Chemotherapy 2/21/2013 AC + T (Taxol) Surgery 6/18/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 7/1/2013 Radiation Therapy 7/14/2013 Dx 7/26/2019, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (IHC) Hormonal Therapy 8/9/2019 Femara (letrozole) Targeted Therapy 8/16/2019 Ibrance (palbociclib) Dx 4/7/2021, IDC, Stage IV, metastasized to other, Grade 3, ER-/PR+, HER2- (FISH) Chemotherapy 5/13/2021 Xeloda (capecitabine)
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Mar 18, 2021 12:22PM candy-678 wrote:

Mel I had a fever of 102 that lasted for 36 hours, after my 2nd vaccine. But I would do it again in a heartbeat because I know the short term ickies is much better than Covid. I have not heard of many with that fever for that long. One lady I know said her temp was 100 for 12 hours. And most I know that got the vaccine had no side effects whatsoever.

Getting some scanxiety--- scans on Monday. Long day--- scans, then blood draw, then MO visit and Xgeva shot. Pin cushion day.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Mar 18, 2021 12:26PM Micmel wrote:

Candy~ thanks for the different views on the vaccine. Still weary of it. But know I have to do it. But yuck.

Will be in your pocket Monday for scans. And pin cushion day. (Which I hate for you)

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Mar 18, 2021 12:29PM candy-678 wrote:

Thanks Mel. I will take the pocket duty. Just thinking about Monday makes my heart speed up and my stomach jump.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Mar 18, 2021 12:40PM Micmel wrote:

I completely understand boy do I! We all do.... one day at a time.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Mar 18, 2021 12:42PM moth wrote:

candy, I hope you find a way to distract yourself. Maybe some denial is in order? scans & appointments? what appointments? no, don't know anything about that...

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Mar 18, 2021 01:42PM candy-678 wrote:

Ok guys, lalala closing ears now. I just got a courtesy call from the cancer center MRI Dept reminding me of my MRI on Monday. Duh. No need to remind me. Told me the time I needed to be there, any implants but the Port, etc. Then she said to fast 2 hours before to prevent nausea. I told her I have not had nausea with the contrast before and she said they are seeing an increase in cases of nausea the last couple months. Nice. Now I have that in my head. I am ready for this to be over.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Mar 18, 2021 01:47PM mara51506 wrote:

Pocket duty for Candy. Sorry scans cause anxiety for you.

I am taking the day completely off. I sort of want to walk but just feeling exhausted. Think I will just stay home, do some basic laundry and normal light house work around the house. Decided to utilize a drying rack and allow things to hang before putiing in my dryer. Only had to dry first load for 10 minutes, easier on the dryer.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Mar 18, 2021 01:55PM 50sgirl wrote:

Candy, I will be in your pocket on Monday. It seems odd that the cancer center is suddenly seeing an increase in nausea, don’t you think? Just weird! Do you know how soon you will get your results?

Hugs and prayers from, Lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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Mar 18, 2021 02:39PM booboo1 wrote:

Man, this thread sure does move fast. I was only absent for one day....lots of catching up to do..

BevJen, congratulations on the birth of your new grandson. My niece is in the hospital right now with the same thing. She’s 3 weeks early, but she is a juvenile diabetes patient, so they are taking every precaution. I am expecting to see her little Alexander soon. I love being an Auntie!!!

Dutchris, I am sending prayers and positive vibes your way too. Anything you need, just let us know.

Candy, I totally get the anxiety with MRIs. Since I have a pacemaker, they have to call in someone to adjust (turn off?) it before my scan, and then re-adjust afterwards. Talk about anxiety....I have only had one MRI since my pacer was installed (2016), so I will be right there holding your hand during yours. Bringing red licorice, unless you like black SillyHeart.

Mel, I am so happy for you with your results, but mostly for continuing to keep trying things that could help your QOL. We need you around for a long time to come, and it looks like that will be the case.

Laurie (aka Booboo) #metastaticbreastcancer Dx 3/1/2013, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Mar 18, 2021 02:40PM Tanya_Djamila wrote:

Congratulations on the healthy grandbaby BevJen!!!!!!!!!!!!

Candy I'll be in for pocket duty. I hate the MRI tests the most bc of sound and dye. Also they last longer than my other scans. I'll bring my cranberry, macadamia nut, white chocolate chip cookies to share.

Mara I hope your treatment went well today and you're home and resting.

Mel I heard about the side effects of shot two but I'm still going to get mine. My dear friend and her entire family have covid right now and her youngest daughter (8) is on chemo. So it's still spreading just maybe not as fast as before.

50s girl did they tell you to contact doctor about fever and reaction or is it was is to be expected?

Waving hello to all.

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Mar 18, 2021 02:45PM booboo1 wrote:

Bliss,

Forgot to say thank you for your post. DH and I are trying hard to make our marriage work, and we feel pretty good about our chances for success. I guess it all comes down to what it is that each of us can give up (or change) to make the other feel respected and heard. I can assure you I have just as much work to do on my end, as I am very stubborn and head-strong. But when I weigh everything out against starting over, it makes those other things less important.

Anyway, thanks again. Hope your day is going well.


Laurie (aka Booboo) #metastaticbreastcancer Dx 3/1/2013, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Mar 18, 2021 03:02PM candy-678 wrote:

50'sgirl- Yeah weird that they are seeing more nausea. Why??? But I will not be one of them. I hope. I will get results that day. I have scans in the morning then MO appt at 1p. I will wait in my truck between. Could go to a restaurant (I think they are open there) but don't want to do that. So I will bring a book and just sit in vehicle. Long day, but I will know results when I leave.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Mar 18, 2021 04:00PM SondraF wrote:

US ladies - Ive seen the news that they will be opening up to all for shots from like 1 May or something like that. Are they planning for folks to get shots through pharmacies or mass centers or what? I know its state dependent, but there could be an argument for waiting for OH to get his in the US in June when we visit, rather than wait for the UK system to catch up for his age group.

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery Prophylactic ovary removal
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Mar 18, 2021 04:18PM 50sgirl wrote:

Candy, it is wonderful that you will have you results on the same day. I wish that all MOs would do that for scans.

Tanya, I wasn’t told to notify my doctor if I developed a fever after my Covid shot. I was told that it was a common SE. How are you? Is you pain any better?

Booboo, I am glad that you and your dh are working things out. You have been together a long time. I am sure this isn’t easy for either of you. I am praying for you.

Mel, I noticed that you mentioned Lynnwood recently. I wish we knew how she is doing

Hugs and prayers from, Lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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Mar 18, 2021 05:03PM Rosie24 wrote:

Candy, pocket duty on Monday, I’m in for the long day. Maybe we could all bring something for you/us to snack on while you’re waiting in your truck? I love the sound of Tanya’s cookies and will add some finger sandwiches with turkey and lettuce since we’re trying to be neat in your truck. Seriously though, I’m with you in spirit and hoping your mri isn’t too bad and the report is all good. 🌺

Sondra, I believe the states are doing a combination of pharmacies and mass vaccinations. The major city near me just opened a mass site (6,000 a day) and it goes on for 8 weeks, and two other major cities in Ohio have something similar starting up too. It might be worth getting info on the state he’ll be in. If you know your OH will be in the US in June I bet he’d have an easy time getting it.

Mel, I hope the dose reduction is noticeable for you. You seem like you have mental energy but not physical energy, so maybe the change will get you more in sync there. Congrats again on another year stable!

Hi Mara, good to hear you took a day off since you felt like it.

Hello everyone. 👋



Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Dx 1/6/2022, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2- Radiation Therapy Whole-breast
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Mar 18, 2021 09:16PM Lee64 wrote:

Congrats, BevJen, on your new grandson; so glad everything turned out okay!

Candy, I'll be ready for pocket duty on Monday. So glad you get results same day.

Hi to everyone else. Hope you are having a good week; can't believe tomorrow is Friday already.

Dx 11/5/2010, IDC, 3cm, Stage IIB, 2/6 nodes, ER+/PR+, HER2-
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Mar 18, 2021 10:50PM illimae wrote:

Sondra, Yes, vaccines for all in May is what I’ve heard proposed as well but I don’t know if it’ll work out on that schedule since lots of details have yet to be finalized. I also hear that in addition to pharmacies, vaccines may be available at dentists office too.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Mar 19, 2021 09:33AM BevJen wrote:

Sondra,

President Biden announced the other day that there will be enough vaccine available by May 1 for all adults who want it. That's not shots in the arm, though, as the CDC has repeatedly noted. As you said, though, much is state dependent -- how they distribute vaccine still greatly differs state to state. And some states currently have residence restrictions in effect. So my advice is to keep an eye on it as much as you can.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Keytruda (pembrolizumab) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy
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Mar 19, 2021 10:00AM SondraF wrote:

Thanks ladies - this would be in WI which has been pretty bad at distribution/information, and not until late June. We do have WI driver licenses if they need proof, but I was hoping he could just roll into a pharmacy by that point and pay! :) But agree - let's see what happens! Im still waiting on my second AZ which isn't for another three weeks yet :(

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery Prophylactic ovary removal
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Mar 19, 2021 12:45PM - edited Mar 19, 2021 02:23PM by mara51506

I heard that the states is loaning Canada 1.5 million doses of the Astra Zeneca since they are not yet approved for use in US but is approved in Canada. That will help our shortage as I believe my province is in a third wave now. We would give the same amount of the drug back once we receive original order. Not worried for myself whether I get it or not, usually am not in a whole bunch of stores, most in my apartment or walking myself. If I had to take a bus, I would simply double mask.

Today has been much more productive as far as walks. I am already at 14000 steps in four separate walks, two before breakfast and to and from the burger joint for me wee burgers. Did not order lunch as do not need the extra calorie count. I forced myself to go right after I did the daily jumble. Planning to sit around and watch TV and earn pennies toward my burger purchases.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Mar 19, 2021 01:01PM mara51506 wrote:

Oh and I have to say that I had the same thought when I was making myself get dressed and go out, No I don't want to go, but I squashed the thought and got myself out the door. Wanted extra steps and needed the snack size burgers, get em plain and add a bit of peanut butter for around 350 cals total. They are delicious.. I can also toast them with cheese and onion powder on the patty as well for a snackable restaurant style without the onion rings and pop calories.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Mar 19, 2021 03:27PM illimae wrote:

Just got back from a little walk myself. It’s 63 degrees and sunny, which is great and as a bonus my neighborhood turtles were out basking in the sun. That’s the best part of my walk :)


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Mar 19, 2021 04:19PM emac877 wrote:

Karen- I second the opinions here and hope you find a car you love.

Booboo1 - Oh man, I feel you with the prednisone. I struggle with impulse control on it too. I love the energy boost but I go completely insane.

Mara - you have inspired me to walk more. My neuropathy has been bad lately and it seems to fire up at night so I am trying to do more exercise in the day time to combat my stiffness and help get blood flowing routinely. You make it sound do-able with multiple shorter walks during the day.

Dutchcris - sending you hugs and support. The waiting is the worst and I'm sorry you have to go through this. We will all be here to support.

Mel- I think a nap sounds good too.

Not much going on here. I am home today from work with fatigue and stiffness. I am going to force myself to enjoy the mild weather and get a short walk in before the rain hits. Considering asking my MO to go off of Gabapentin since it isn't helping my neuropathy and I feel it may be contributing to my fatigue.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/7/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Radiation Therapy 12/22/2019 External: Bone Surgery 12/31/2019 Hormonal Therapy 1/6/2020 Faslodex (fulvestrant) Targeted Therapy 1/6/2020 Verzenio Hormonal Therapy 12/9/2020 Aromasin (exemestane) Hormonal Therapy 6/23/2021 Faslodex (fulvestrant)
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Mar 19, 2021 04:20PM - edited Mar 19, 2021 04:23PM by emac877

Mae - That looks amazing!

Oh my gosh, I'm just realizing I missed a whole page of updates when I posted my last one! Forgive me if I skipped any major updates.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/7/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Radiation Therapy 12/22/2019 External: Bone Surgery 12/31/2019 Hormonal Therapy 1/6/2020 Faslodex (fulvestrant) Targeted Therapy 1/6/2020 Verzenio Hormonal Therapy 12/9/2020 Aromasin (exemestane) Hormonal Therapy 6/23/2021 Faslodex (fulvestrant)
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Mar 19, 2021 04:40PM booboo1 wrote:

Tomorrow is my day to get my first vaccine (Pfizer). Gotta admit I’m a little nervous, but a number of you have had it already, so I’m hopeful that it will be uneventful. Fingers (and toes) crossed.

Mae, I love turtles. What a great picture. Looks like they are marching!


Laurie (aka Booboo) #metastaticbreastcancer Dx 3/1/2013, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Surgery 5/15/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Mar 19, 2021 04:55PM mara51506 wrote:

Emac, glad to hear I have been helping you with my walking. I like doing shorter walks and letting the steps add up as well, I even walked on the spot for a few minutes at home before I was dressed. Trying to control my weight due to the bean love I have but I also like feeling stronger. Start short, maybe a few rounds of a 10 minute walk. Short enough to not tire you out but still supply energy. Half an hour at a time is ideal though I did have an hour long walk with only a short break to pick up an order at the restaurant.

Mae, love those turtles, that is great and sounds like perfect weather. We are warming up and going to be sunny the next few days as well. Your scenery is prettier I think. I am waiting for the trees here to get their leaves. It is so pretty and I feel like we almost have the most mature trees in this area.

I am going shopping tonight so although I don'tneed more steps, will wind up with more since DB offered to take me. I was sort of hoping he would ask.I also had a nice nap after all that walking and watch The Falcon and the Winter Soldier on Disney+ I love the Marvel movies. Good so far.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+

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