Topic: My Husband, My Life, My Love, My Family, My Cancer

Apr 8, 2021 09:24AM Karenfizedbo15 wrote:

So, just checking in after today’s Beatson visit. They gave me Xgeva which has to be every 6 weeks in stead of IV Zometa every 3 months. We’ll see how the SEs go on that but my NP is confident I should be OK. They also dropped the Capecitabine dose again to 2600mg per day for 10 days in a 21 day cycle plus a blood draw to test for the enzyme which helps metabolise the 5FU, which we had just assumed I would be fine with as I had CMF in my original chemo 14=years ago and was fine on it. However with the toxicity I’m experiencing, my NP wants to check and thinks that might be the issue. She said if I do have an enzyme issue I should have been started on HALF the dose they gave me! We’ll see how the results go from that, but if it’s not that we’re a bit flummoxed!

Apr 8, 2021 09:52AM SeeQ wrote:

Runor ‐ you cracked me up with your armchair yoga description! I hope everything moves along as quickly as possible for you. Yes, the waiting is "the worst"!

Karen - your word is so much nicer than mine. I was thinking more of a donkey with a low IQ.

KittyKat - glad to know you're back home. It's crazy that we can say "It's just a kidney infection" or some other malady and sigh in true relief, but here we are.

Candy - I think it's great that you are trying yoga. You're a step ahead of me. I've never been worried when I could do a certain stretch, pose, exercise, etc. I figure being there and doing the best I can is good enough. Now, I just need to get there. I'm trying to get motivated to try Chicagoan's video.

Chicagoan- thanks for sharing the video!

I know I'm missing lots of people. We have been busy here. I put my garden in yesterday, finally (kinda late for here). That was lots of work to get it ready. Next, i need to get the trailer ready for camping next week.

We are seeing a lot fewer masks around here, but there are still many who wear them. I think most stores have gone to recommending, not requiring, masks. Vaccinations are open to anyone 16 and above. Almost everyone I know is vaccinated, and our local infection rates are very low. I'm more worried about the tourists than the locals - and I don't go where they are. I mask in stores when I have to go, but not outside. LOLOL - I got carded when I bought a bottle of wine when I was out yesterday - I'm close to 60 - it had to be the mask!

Waving to everyone and wishing the best!

Apr 8, 2021 10:46AM mara51506 wrote:

SeeQ, I will probably adopt mask usage even when the pandemic is over. I have really enjoyed the lack of colds I have had to put up with. No flu on my end either. I tend to follow my own beat when it comes to what I do and wear for comfort.

I finished my walking outdoors, got my 10000 minimum I wanted in 3 separate walks, no difficulty either. I did wind up masking for the last one because of little pesky black bugs that I think are attracted to sweat. Made them much less of a bother and gave my lungs a good workout. I also had two tiny meals between the walks as well. Basically half of what I would have had for breakfast. If I want more steps, I will do them in here as a light march on my floor. Going to maintain the early bed as long as possible as I can wake earlier and still have had a good sleep. Going to be warm tonight so am going to use both my fans. I hope my AC will be working, asked older DB to look into it as I want one installed by May.

Apr 8, 2021 03:29PM SeeQ wrote:

Mara, I was just talking about the current situation here. Things, here, are really improving, but that may be temporary. I don't know when, or if, I'll stop voluntary masking. As the situation evolves, we'll all have to make decisions about what level of self-imposed restrictions we need and what potential risks we're willing to take.

Apr 8, 2021 03:53PM illimae wrote:

dutchchris, I’m sorry your going through all that and hoping treatment gets you to a good place.

Apr 8, 2021 05:24PM mara51506 wrote:

SeeQ, I get what you are saying and I am happy that your location is so far along with vaccinations. That is really good.

Apr 8, 2021 05:44PM Kittykat9876 wrote:

Dutchiris, I hope you get on top of your pain quickly, it's not a good place to be but it does look promising that they have got all the diseased tissue, hopefully the pathology will confirm it. Holding you in my heart.

Bevjen, I hope they can finally get you the relief from all this pain that you truly deserve and can get back on track with your treatment.

Candy, your friend has no idea of the trials we have just to get through the day, not that I woud wish this on anyone but if he was to walk in our shoes for just one day he would have a complete change of attitude.

Runor, you're in my thoughts everyday, as is anyone of us that's struggling right now.

So here I am, happy to have a kidney infection, who'd have thought it indeed. Sure beats the alternative of another change in treatment in 4 months. Have a restful evening if you can, I'm just about to start my day, ready for 3 days with Master Finn.

Apr 8, 2021 07:00PM moth wrote:

dutchiris, i hope you recover from your surgery quickly & your pain is well managed & a good treatment plan organized for you.

I just got home from chemo a while ago, now having a cup of tea before going for a walk with Olive. Met a lovely early stage bc'er in the chemo room and we had a nice chat during my tx which was good and distracted me from the pain of icing my hands and feet.

Apr 8, 2021 07:04PM dutchiris wrote:

Thank you all for the support and prayers.

Apr 8, 2021 07:59PM KBL wrote:

Dutchiris, I’m so sorry you’re hurting. Can I ask how they found the cancer in your ovaries? I had a hysterectomy back in 2012 but kept my ovaries. Imjust curious. I hope you feel better soon.

Apr 8, 2021 08:18PM KBL wrote:

Thank you for answering. Mine are too small to see. They shrunk after my hysterectomy. I’m glad they caught it before you had symptoms.

Apr 8, 2021 09:23PM Elderberry wrote:

candy: I am a cat person too. My DH and I often say "Aelfric is vigorously sleeping" That cartoon is true!

runor: Don't you want to scream "It is my uterus and I want it out! NOW!!" A month long wait for results is crazy stupid. I can hardly stand the week or less it takes to get the result of a scan. I thought the Women's Hospital was closed as part of some so-called restructuring. I could be wrong. I have gone to Mt St Joseph's, Royal Columbian, BCCA, VGH and Lion's Gate. VGH and BCCA are for my tests. I do my infusions at LGH. Much will depend on what they discover.

To my American sisters: When (and I do mean when) you get in to a Canadian hospital the care is excellent. Sadly, knees and hips are low on the list of priorities.

Apr 9, 2021 08:02AM Micmel wrote:

reporting for pocket duty this morning. Sitting with anyone waiting. Both shoulders are ready for leaning on. Treats in hand. Hot coco balls! & cookies.

Apr 9, 2021 08:11AM mara51506 wrote:

Well, it is a damp rainy morning here. First walk, I could just feel the damp coolness in the air, that was around 7am. Second walk started out the same at around 8am then gently started raining. Though I got a little damp, still enjoyed the fresh air. Don't mind the sun not showing up as it makes walking far less sweaty. Only have one more walk to do to hit my minimum 10000 steps but am resting a bit and getting breakfast first, do the last one before 11am then just housework, surveys etc.

Apr 9, 2021 11:01AM candy-678 wrote:

Booboo- How did your MO appt go?