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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 8, 2021 10:48PM Micmel wrote:

Goldens ~ my palliative doc left also. I had been with her for five years. Now I have to get used to a new one. Bugged me so much. We build confidence and trust for them , then they move to another facility just like that. I’m dealing with this , this month. I’m Just damn glad my second covid shot. It kicked my ass for four days. Didn’t eat for five. Horrible. My DH. Barely anything. He’s a hero. I was so glad for him. For me not so much. Have you gotten yours?

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 9, 2021 08:23AM GoldensRBest wrote:

Mei - we were able to get ours early. My husband believes he was the first doc at the hospital to get the vaccine, just because of timing. He had both in January and I had both in February. Somehow because we were a rural area, we got plenty of vaccine. Hubs had no problems other than a sore arm. The second vaccine caused me to have a couch day - just more fatigue than normal and more aches than normal. I’m sorry you had to go through hell to get protected. Seems to be no rhyme or reason why some sail through and others are struck by lightning.

We are having brutal heat along with a lot of areas. I despise the heat even without humidity. I sweat buckets. Last year we kept our AC set at 73. I’m finding that is not keeping me comfortable. May need to turn down. I do keep all the blinds on the west side of the house down all the time, which does help keep the sun from blazing in. No doubt we are having climate change but I just can’t get on the bandwagon that we are solely responsible. How on earth do the “experts” explain the changing weather patterns from eons ago? I don’t mean for this to be political - but I tend to err on the side of common sense. Off my soapbox - LOL

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jun 9, 2021 12:40PM moth wrote:

Oh man please Goldens, I puffy heart you but when you say "I tend to err on the side of commone sense" what is that saying about those of us who find the proof of human caused climate change as incontrovertible as that hiv causes AIDS and the coronavirus 19 is a novel respiratory virus which caused a pandemic... All 3 are common sense to me.

Anyhooo. passing the bean dip.

I had my 2nd Pfizer last night. It's 16h later & I really have nothing other than a bit of bruised feeling when I touch it. I hope that stay the same. I have chemo tomorrow.

I have a longish to do list for today (probably totally unrealistic lol).

Hey, yesterday at the hospital when getting labs and waiting for the MO appt, I was walking the hallways and came upon a group of students from my nursing program - but a few semesters behind me. I almost burst into tears seeing them in 'my' scrubs (the scrubs are embroidered with school name). My cohort is graduating in 2 months. Sigh. I'm going to try to keep busy today and not wallow.

I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Jun 9, 2021 12:40PM mara51506 wrote:

I am so sorry to hear about the poor girl. Hope justice is swift and harsh.

Ugh, I have stomach pain since this morning. Hoping its lack of sleep. I also tried to walk to the cancer clinic. Way too hot. Hopped on the bus. Taking the bus home too. I will walk morning and inside til the heat subsides. Still have about a 10 minute walk for the bus but that is more manageable. I an cooling off with the neck fan.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Jun 9, 2021 01:20PM GoldensRBest wrote:

Moth - my common sense just tells me that there weren’t humans driving around in automobiles and factories belching out smoke when the dinosaurs were around. No doubt we are contributing to the pollution of the earth and we need to clean up our act. I’m just a middle of the road thinker. I believe the earth itself is a living thing that has changed many ways through the span of time and will continue to do so beyond our carbon footprints. I didn’t intend to get on anybody’s nerves

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jun 9, 2021 01:35PM moth wrote:

What's Wrong With The Argument 'The Climate Is Always Changing'

This argument is frequently used by people who want to stop any mitigation strategies to reduce GHG emissions so while it sounds reasonable on the surface, to me it has the same impact as anti maskers and anti vaxxers saying "well, we've lived with viruses befor so what is all this panic about covid".



I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Jun 9, 2021 01:38PM BevJen wrote:

Not to change the subject, but I just came from my first pedi after my surgical saga. My husband went to a local place and asked if they could handle someone in a wheelchair. (Still not ambulatory) They said sure, and it was today.

Self care is a real thing. This brought my BP down more than a notch.

Yay for taking care of ourselves.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Radiation Therapy for Bone Mets to Femur (Both sides) April 2021 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Jun 9, 2021 01:40PM moth wrote:

Oh a pedi sounds lovely Bev! Glad you got some pampering!

I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Jun 9, 2021 05:05PM - edited Jun 9, 2021 06:56PM by SondraF

Bev - I did that a few weeks ago and I think I may keep it up every 6 weeks or so. Just having someone deal with the rough underside of my feet and how soft they were after! I could care less about the color when she gave such a marvelous foot massage too. But it IS nice to look down at feet in sandals and they look pretty and not all beat up and embarrassing. Besides, I can't reach that far to do my own toes!

Glad it put a smile on your face :)


Edit: Mel, I've been meaning to ask if you have heard/info on Philly and what sort of shenanigans she is getting up to these days?

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/28/2019 Femara (letrozole) Targeted Therapy 11/28/2019 Ibrance (palbociclib) Surgery Prophylactic ovary removal
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Jun 9, 2021 07:03PM Micmel wrote:

Goldens~ I’m not real up to climate change statistics either. So don’t quote me. Our earth is dying slowly, we could perhaps slow it. But it’s too late for human kind to take back any damages done to the environment around us.

Moth~ of course there are statements and some proof of climate change, but overall no corporations want to change their ways. Two way streets. They are part of the problem and solutions. Don’t think it’s gonna happen it may be too late already. It one of those we can’t control. Too many people on this earth. How many can she hold ? How. Much can she take ? Mother Earth? No one knows. Thanks for the article.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 9, 2021 07:04PM Micmel wrote:

Sondra ~ yes I’ve heard from her she’s doing good. All finished with her mastectomy and healed up . She posts on Instagram frequently and is dancing or jumping or jogging around her apartment or town. She’s amazing. I adore her.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 9, 2021 07:28PM candy-678 wrote:

Mel- Didn't Philly have progression to her liver? I was thinking she was bone only and then had progression to her liver and was going to have to change treatments. I wish she would have kept posting on BCO. I hope we didn't upset her in any way. I hate when we lose someone to death, but it is also hard to lose someone here from them stopping visiting us.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Jun 9, 2021 07:38PM Micmel wrote:

she did, does not mention that very often. I’m not sure why she stopped posting. I think she’s focusing on her business

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 9, 2021 07:43PM candy-678 wrote:

mel- Well she must be doing pretty well, whatever treatment she is on. To be jogging or dancing. Well if you talk with her, let her know I asked about her. Let her know that others, SondraF, and others are asking about her. Would be nice to hear from her. What treatments she has had, etc. We can learn from each other on what our MO's are prescribing.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Jun 9, 2021 07:59PM runor wrote:

Micmel, to offer some hope. We live in a forest. We had to clear to build a house. We had to fight back the growth to gain even a small space to live and garden. I am here to tell you the forest wins. It comes back. It not only perseveres, but it triumphs. The tenacity of life to keep living is simply staggering. Humanity may well kill itself and whether it be global warming, a pandemic, an over-reaction to said pandemic, an under-reaction or BOTH, I cannot say. But I doubt very much that this planet is as doomed as we sometimes believe. Perhaps our version of it is doomed. But the strength and urge for life to keep going is evident around me year after year as the growth comes back and back and back. As plants come up under pavement and bust it up. As roots cover great distances to happily make a home in our septic lines and garden beds. Life is always looking for a place to set up shop and it does, over and over and over relentlessly. While this is bad news from an operating septic point of view, it is astonishingly hopeful news from a Life Will Go On point of view. Since the beginning of time this earth and everything on it has evolved or died. Earth has been tried before with great ice ages and great melts and...here we are. We are both fragile and delicate and tough as hell all at the same time. While keeping the place clean is the only sane thing to do, I do not think dire warnings that all life will cease are truthful or even probable. The rejuvenation and regrowth and urge to exist that I have seen around me for the past 30 years have made it abundantly clear that nature is one ass-kicking mofo and will not give up without one hell of a fight. Hasn't given up yet! 

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 9, 2021 09:35PM Micmel wrote:

Candy~ like jogging around her apt. Small videos. Next time I talk with her I’ll ask her to drop by. It can’t hurt. I miss her too.

Runor~ let’s hope so. Or or kids children. Won’t have much to live with if they lived at all. I just wonder how resilient a planet can be with pollution chemicals , car emissions. Refinery’s, nuclear plants. Maybe they are good. Who knows. But it’s baffling.

Two days in a row with thunderstorms, loving that. It’s been so hot. I think more on deck tomorrow as well. Nap time then. Sleep time soon. Last night sucked. Didn’t fall asleep until after midnight. Ick ick. Hate that. We’ll see how I do tonight. I was an idiot and started nail painting about 30 mins before bed. Now I have to wait for them to dry. Duh! I need my pre chemo brain back.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 9, 2021 11:22PM molliefish wrote:

I know this may sound wackadoddle but here goes. I firmly agree with runor. We humans will likely be wiped out by some virus for sure. Not COVID perhaps but the viruses keep trying. Inevitably the planet will flourish without us. I thought a great deal before having children as I wondered what I would leave them and what they would leave theirs. And then I thought Well we don’t know what our children will accomplish now do we? And if we don’t have them, then they won’t accomplish anything. Do you think Barack Obama’s Mom knew he’d be the US president? My point is we don’t know what will be, but i we stop trying we know what won’t be. We have to keep trying and we have to have hope.

Dx 5/24/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 6/8/2015 Lumpectomy: Left Chemotherapy 8/14/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast
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Jun 9, 2021 11:51PM illimae wrote:

My opinion of environmental issues is pretty unpopular and I don’t mind at all if others don’t agree, I totally get it but DH and decided early on to not have children at all in large part to spare them what looks to be a tough future and to rid ourselves from the planet. Live long and die out is our policy and I ultimately hope nature and animals can thrive with less of the problems we humans create.

On a lighter note, I’m excited for lunch tomorrow with a long time stage IV friend and two new girls our age. It’s margarita time for sure!

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 10, 2021 04:40AM SondraF wrote:

Mel - that's good to hear. I think part of her reasoning to move off the boards was to focus on some of her advocacy in person. She did pop through briefly before the mastectomy and I think was last on tamoxifen, but if she is doing well to be dancing about then that is great.

Its hot and humid here too - low 80s this weekend and cloudless skies. With no air conditioning it gets tough. Mae's margaritas sound like an amazing idea and we may need to do that this weekend. We have 3 lbs of ox cheek marinating in barbecoa spices to make pulled beef for tacos and the like (in the slow cooker!). That would go very nice with an icy beverage!

Currently sitting in the living room waiting for Other Half to finish his conference call so I can get on mine at the top of the hour. Wonder if he put pants on for the call....Guess I better throw in some laundry while I wait!

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/28/2019 Femara (letrozole) Targeted Therapy 11/28/2019 Ibrance (palbociclib) Surgery Prophylactic ovary removal
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Jun 10, 2021 10:16AM mara51506 wrote:

I do try to be environmental responsible with recycling and such. I don't have a car either. Planning to possibly switch to powder laundry detergents and dryer sheets for the cardboard that will break down. As far as climate change, I won't try to say we have not damaged anything but I also believe this is how the earth works and that areas that used to be warm will eventually become cold and so on and so forth. Who knows what will happen in the future and cannot be bothered worrying about it as I cannot change what will happen. One day at a time for me and deal with what is happening today.

The weather is a little less humid though still hot. Doing very short walks, 15 to 20 mins. Got to build up stamina for walking in the heat to the bus stop but don't feel that I should be walking long distance outdoors. Just need to be more consistent. I know I need beyond 10000 steps to perhaps lose a little weight. I am not giving up the few things I like like beans, wheat bran, bran cereal even if they have carbs. The spinach and beefless ground are also nutritious but I can add more activity to a day in short bursts.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Jun 10, 2021 12:11PM moth wrote:

but nobody in the climate change mitigation community denies that the earth has experienced wildly differing climate patterns in the past & will in the future. That is foundational information which informs climate science.. My husband is a geologist. He thinks on a very long time scale with tectonic shifts, ice ages, glaciers retreating, coming back etc. The issue is that it is happening waaaaay faster than in the past and biologists believe it is happening faster than species can adapt, it's going to wipe out coastal communities... and it's man made, and it can be reduced if we commit to a GHG reduction. fwiw, I don't actually think individual actions here matter as much as government and industry. The scales are just way off for our impacts vs the impact of large gov't initiatives or industry shifts.

I counted up all my IV chemo treatments - today is #53 (not cycle, just individual infusion). I'm heading out the door soon.

We're hoping to drive out to a local farm to get some June strawberries. They're usually much better than the everbearing ones later in the summer but I guess it varies from year to year. I have a few strawberry plants in the garden but Olive keeps eating them - and silly girl doesn't even wait to get them close to ripe.

I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Jun 10, 2021 12:14PM moth wrote:

Oh forgot - I had my second Pfizer on Tuesday night and I've felt fine - it's about 40 hours later now. So either I'm a lucky one who didn't get the side effects or I'm not making any antibodies :P

I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Jun 10, 2021 12:20PM candy-678 wrote:

Hello all.

I had a haircut today--- feels good. Now to get the oil changed on my truck. I will just sit in the waiting area of the shop and read while they do the maintenance. Not much else today. Hot and humid here--- Southern Illinois summer. I want fall weather.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Jun 10, 2021 04:39PM - edited Jun 10, 2021 04:40PM by Micmel

Moth~I was sick for four days. You're so lucky wow! Hit me the next morning Bam!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 10, 2021 06:02PM - edited Jun 10, 2021 06:03PM by illimae

Just got back from lunch with 3 stage IV girlsand I'm 3 frozen margaritas in, looks like I'll either party hard tonight or fall asleep early, who knows, lol.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 10, 2021 06:14PM Kittykat9876 wrote:

Hi everyone, well I'm home, still not 100% but the doctors thought I'd be better off finishing my recovery at home away from hospital bugs. I think I'll go pick my new car up to cheer me up.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone Hormonal Therapy
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Jun 10, 2021 06:18PM RosieRed wrote:

Kittykat - glad you are out of the hospital. Enjoy your new ride!


Dx 5/9/2018, LCIS/DCIS, Both breasts, 6cm+, Stage IIA, Grade 2, 8/9 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 6/14/2018 AC + T (Taxol) Surgery 11/14/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 12/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/8/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/1/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 2/9/2021, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 2/21/2021 Faslodex (fulvestrant) Targeted Therapy 2/21/2021 Ibrance (palbociclib)
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Jun 10, 2021 07:51PM moth wrote:

yay Kittykat, great news that they set you free!

I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Jun 10, 2021 08:42PM Micmel wrote:

so glad you’re out of the hospital kitty. Get that ride.

Hi Rosie red Mae~ sounds like you had a good time you’re a trip !

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Jun 10, 2021 09:36PM mara51506 wrote:

Moth, I can only hope to be so lucky when I get my second jab.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+

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