Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute — Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 05:38PM - edited Oct 28, 2019 09:42AM by micmel

Posted on: Jul 6, 2017 05:38PM - edited Oct 28, 2019 09:42AM by micmel

micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/9/2016 AC Surgery 6/20/2016 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Page 763 of 2,819 (28,182 results)

Log in to post a reply

Feb 2, 2019 11:17AM micmel wrote:

Donna~Of course we would welcome you to our family here. I am welcoming you with a hug and a high five for the champagne! Yum yum! I hope for nothing but the best results. My pocket is a pocket for all. Unconditionally always. I believe we can offer so much support it becomes a real need to have. Because , like you said. No one always wants to be the wet blanket... I just miss my physical strength! Hugs and welcome again!! ~M~ 🌹 🍾 🥂

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/9/2016 AC Surgery 6/20/2016 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Feb 2, 2019 12:13PM illimae wrote:

JoE, no problem on the misspelled name, happens all the time, lol. Also, I don’t recall anyone reaching out to me yet but then again, I don’t remember lots of things 😀

This is how I picture radiation treatment, hope it helps.


Strawberries and champagne, yes please!


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/19/2017 External Local Metastases 10/19/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External Local Metastases 2/16/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Feb 2, 2019 12:15PM MJHJAN1014 wrote:

Micmel-Sooooo glad you got your Dad moved to the place near you! Meant to be! You go, girl!

Donna-this is such a nice thread with the greatest folks. Has your MO mentioned Doxil as a possible treatment? It is an engineered version of Adriamycin that is less of a risk for cardiac problems. Once a month infusion and hair-sparing as well. Fingers crossed on the PET.

Best, MJH

Dx 1/10/2014, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 1/29/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 2/9/2014 Breast Chemotherapy 3/4/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 6/10/2016, IDC, Right, 1cm, Stage IV, metastasized to bone/liver, Grade 3, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 11/14/2017 Faslodex (fulvestrant) Chemotherapy 3/21/2018 Xeloda (capecitabine) Dx 3/7/2019, IDC, Stage IV, metastasized to other, Grade 3, ER+/PR+, HER2- Chemotherapy 3/7/2019 Doxil (doxorubicin) Chemotherapy 8/21/2019 Taxol (paclitaxel) Chemotherapy 2/26/2020 Halaven (eribulin) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
Log in to post a reply

Feb 2, 2019 12:43PM JoE777 wrote:

Illimae, Ditto Winking

Dx 2/2012, IDC, Left, 2cm, Stage IIA, metastasized to bone, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/3/2012 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 1/7/2018 Femara (letrozole) Dx 2/2018, IDC, Stage IV, metastasized to bone/lungs, Grade 1, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane), Femara (letrozole) Radiation Therapy Whole breast: Breast, Lymph nodes Chemotherapy Other Radiation Therapy External: Bone Targeted Therapy Kisqali
Log in to post a reply

Feb 2, 2019 02:09PM GracieM2007 wrote:

Hi Mae!!!! Saw your steps on the other thread! Wow!!!!!!!!!! I feel good getting to 5000 lolol!!!!

dx 4/11/2007, rt. mast 4/27/2007, 1.7cm IDC, stage 2, Grade 3, 1.4cm tumor in one node,, ER/PR+, Her2-, 4 DD AC, 4 DD T, Arimidex/ 2016 mets to bone, extensive. Femera, Xgeva. 1/18 Faslodex, Ibrance. July 2018, Abraxane.
Log in to post a reply

Feb 2, 2019 02:33PM Lynnwood1960 wrote:

Welcome Donna!! You’ll have a lot of us in your pocket from now on! I’ll even overlook that your a Patriots fan... I’m from Eagles country!! Lol!!

Dx 4/6/2015, ILC, Right, 3cm, Stage IV, Grade 2, 0/12 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Feb 2, 2019 03:28PM Minnie31 wrote:

Welcome Donna, another one to fit in your pocket. Seems like we have a few pockets to jump into this week. More champagne and strawberries needed to, better make it a Magnum, or do,we need a Methuselah?

Micmel, you are a truly good person. I'm glad your Dad is going to be close to you. Proud of you girl!

Great to hear from everyone. I was really behind, had to read through 3 pages. I had my usual treatment this week, (cycle 35, long may it continue) and have been sleeping at the drop of a hat. Feeling more normal tonight. Life is good at the moment, making the most of it. My eldest grandson goes on his first away from home trip this week. My daughter will probably not sleep all week!

My love to everyone. Hope you all enjoy the Super Bowl. I will be going to sleep around kick off. What time zone is it being played in. I'm at least 6 hours ahead!! X

Dx 10/20/2016, Stage IV, metastasized to bone/liver, HER2+
Log in to post a reply

Feb 2, 2019 05:40PM Stllivin wrote:

Micmel, I am so glad your dad is closer. It’ll mean a lot to you to see each other more often. I agree it will make it harder cuz you are the closest to him in proximity but it’ll be worth it. My husband’s dad was in a long term care home close to us and we were able to visit daily and participate in the events , special dinners, piano night etc. with him and I think he appreciated that.

You are a super woman!

❤️ Suzy





Stllivin Dx 12/20/1997, IDC, Left, 2cm, metastasized to bone/lungs, 7/11 nodes, ER+/PR+, HER2-
Log in to post a reply

Feb 2, 2019 06:36PM illimae wrote:

Thanks Gracie! I enjoy the activities and am thankful to be able to do them. We just do what we can 🙂

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/19/2017 External Local Metastases 10/19/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External Local Metastases 2/16/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Feb 2, 2019 09:07PM - edited Feb 2, 2019 09:11PM by micmel

hi StillLiving! Hello lovely. I have to tell you today was hard. At first he was happier in the new place. But then it hit him he wasn't at home again and he was told he would go home when the. Step monster was healed with her arm. He would return home with a full time nurse. I think he felt like he was lied to, so he was not happy. He wanted a cigarette like pronto. Since he was being transferred to another place, his meds didn't occur exactly when they should have. So he became anxious. Which scares him. So we had to calm him down, my sister and I. He was sometimes mean. I have to say. They just get nasty. When they feel that loss of control it can be quite upsetting. He needs the patch back on him immmediately. Of course some things are covered, somethings aren't. It's a real shit stew. I have to say ladies. I don't want to die a slow death. If it's going to happen. Please allow it to be quickly. He is truly suffering. It's sad. Soo stressful, not to mention dealing with people I chose to remove from my life. Not my sister. She's been so supportive.... thank goodness. I'm so exhausted. Time for bed.

Hope everyone is well.

Minnie. Hello darling. Always good to see you! Hugs my friend!!

hello Mae! When does Sunday movies start again ?

I'm off to bed. Hugs to all. ~M~

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/9/2016 AC Surgery 6/20/2016 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)

Page 763 of 2,819 (28,182 results)

Scroll to top button