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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 14, 2021 12:45PM mara51506 wrote:

Just finished my 10000 steps workout, took 80 minutes again, faster than I can walk outside, complete sweatball. Steps on my yoga mat, have not decided to go out today or not but done walking for now. Sitting on my couch watching Chicago Med and probably will watch the other two Chicago shows as well later today.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 14, 2021 01:17PM Chicagoan wrote:

Tanya-So sorry to hear about what your granddaughter is going through. I would take those threats seriously too b/c young people can be so violent nowadays. I hope everything blows over and she is not ostracized.

Mara-Congrats on the weight loss. I never thought of trying to do so many steps indoors-sounds like a good idea, especially on a rainy day. One of my closest friends was murdered 49 years ago and her murderer was finally caught due to advances in DNA technology. I've been showing up at court- but so far it has just been continuances. We really hope that this guy does not get off on any technicality, although he is 76 now and got to live most of his life while my friend was killed at age 15. I'm glad you don't need to testify in person. It is disconcerting to be face to face with a cold blooded murderer.

Mae-What a great friend you are! Hope that your friend gets some answers and healing for his condition. It must be incredibly disorienting for him. Glad you were able to find the cat and take it in. Looks like a sweetie.

Kitty-You must be so sick of the hospital. Hope they can figure out what's wrong and get you home soon so that you can hang out with your precious grandson.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/26/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/26/2016 Ibrance (palbociclib)
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Oct 14, 2021 02:14PM mara51506 wrote:

Chicagoan, when I faced him for t he first time last year, I was nervous but just focused on the person asking questions. That was the preliminary hearing. I am glad I don't have to face him now, that is for sure.

As far as the walking, I wear sneakers and march up and down my yoga mat, may get another so the floor does not squeak as much. Would put it on top of my current one. I did sweat like nobody's business. I figure that if I do that kind of walking all at once, any other walking would be extra. It also does take a lot to do. I will say, I do take a water break and sometimes sit for 30 seconds of rest as well. Feels good after I am done. I would like to continue to lose weight and think the activity and portion control will help. I am not taking any food off the table, just going to get used to eating a bit less of things like chocolate and peanut butter as well.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 14, 2021 02:33PM illimae wrote:

First, thank you all for the kind words for us and for our friend.

Second, I so appreciate the suggestions and questions here and via private message, anything and everything is being considered and is helpful.

We got home at 6am and I just woke up, still exhausted but better. DH is calling the doc with my list of questions, hopefully we’ll have more info. Then, we’re off to pet smart for cat stuff, poor monkey has had a tough week too, she’s gonna get spoiled now :) DH may head back out there next week or wait until after my next treatment on 10/25, and we’ll go together, depending on how things are progressing.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Oct 14, 2021 05:12PM illimae wrote:

Here’s some wildlife pics from this trip too and yeah, that’s a tarantula, eek!


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Oct 14, 2021 08:04PM illimae wrote:

Monkey update: For a cat so shy, we’ve never actually seen her before, to be trapped and driven all night across the state to an unknown place with unfamiliar people, I am moved by her progress.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Oct 14, 2021 08:10PM Sunshine99 wrote:

mae, that's so sweet. She must feel very safe and loved by you and your DH.

Cancer has progressed to my bones. I pray that it never enters my soul. my-sunny-side-up.com Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Oct 14, 2021 08:12PM Tanya_Djamila wrote:

Mae great pics. That tarantula is scary. Do they get inside?

Kitty I hope you are getting released as we speak.

Waving hello to all and thanks for all the bullying support. I thought I was overreacting but it's dangerous and different nowadays with the youth. the outcome of the meeting was the school was very nice and seemed to validate our concerns. When they asked me what I thought, I said I was frightened by the threat and I know that once the bullying starts it can be a long hellish road of a group of kids pretending like nothing happened as they continuously mess with their victim. Unfortunately, the girls already have issues with looks etc. and then they can try to hurt their own selves so there are so many things to consider. I was triggered for sure bc in August the same GD whose friend goes to another school was bullied and she made a suicide attempt with pills and was baker acted. Luckily her mother found her. We decided we were too unnerved to allow her to stay in the school. The girl who made the threat did grab her arm in school the same day they met with the principal. Of course she said she just wanted to talk to my granddaughter but who really knows. The kids involved were 11th graders and my GD is in the 8th grade so that was enough of an age disparity to really shake us up.

I'm relieved she can go somewhere else. the first quarter is over this week so...

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Oct 14, 2021 08:38PM - edited Oct 14, 2021 08:39PM by KBL

Kitty, thinking of you. I hope you're able to get home soon.

Mae, your husband looks like he's already connected to Monkey. What sweet pictures. And no.thank you to the tarantula. Ick!

Tanya, I'm hopeful your granddaughter will be okay once the switch is made. Our hearts always hurt for our babies and grandbabies when they hurt. I will never understand why people bully. Ugh.


Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Oct 14, 2021 09:17PM mara51506 wrote:

That's a sweet looking cat and yes she looks very relaxed with your DH, glad you could help your friend so much as well.

Tanya, glad things are getting handled, imagine that an 11th grader picks on an 8th grader. Good grief. I tended to get threatened a lot myself, one girl threatening me at my front door in front of my mother. She had a sister who had bad arthritis and was in a wheelchair, got it in her head I was talking nasty about her sister. At least that one made sense. Nothing ever came of it.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 14, 2021 10:34PM Micmel wrote:

way to go Mae! And DH. Beautiful cat. What you’re doing is wonderful. Makes me want a pet. Can’t have cat DH is allergic. So am I slightly. I want a dog. I am deathly afraid of spiders. I wouldn’t be able to move if I saw that thing near me. I was always worried I would find one near my babies and I don’t know what I would have done .

I’ve been sleeping in the hospital bed that I brought home with me from the hospital years ago. It moved up and down and was comfortable for a while. Then I started. To hate it. I was downstairs today with this project helping DH organizing things for him. He was upstairs fussing in my room. He called me upstairs and there was a brand new full size beautiful fabric headboard and drawer bed for my room. It was so touching I started to cry. He said he knew I needed a bed and he wanted to surprise me. So an early Christmas present for me ! I adore it.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 14, 2021 10:35PM - edited Oct 14, 2021 10:37PM by Kittykat9876

Well they have finally got a diagnosis, it's called PJP pneumonitis and I'm finally on the right antibiotics to fix it so that I can get out of here hopefully on Monday.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Oct 14, 2021 10:39PM molliefish wrote:

Mel, that’s LOVE. Xoxoxo


Dx 5/24/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 6/8/2015 Lumpectomy: Left Chemotherapy 8/14/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast
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Oct 14, 2021 10:47PM mara51506 wrote:

Kittykat, glad you have a diagnosis and with the right meds will be released from hospital.

Mel, your DH loves you so much.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 15, 2021 12:02AM moth wrote:

Aww Mel what a sweet gift!

Kitty, glad they've figured it out finally & hope the abx kick in quickly.

Chemo today was ok but I'm tired & going to head to bed early. My endicrinologist is calling for a telehealth appt at 740 am..

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 15, 2021 12:41AM ShetlandPony wrote:

Kittykat, finally a diagnosis and the right treatment! I did a quick search and it must be this?

“Pneumocystis Jirovecii Pneumonia is a fungal infection that most commonly affects the immunocompromised…”

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Oct 15, 2021 01:01AM Kittykat9876 wrote:

Yes, that's it, it's what used to kill a lot of HIV patients back in the 80's. I'm just glad they finally figured it out, I see masks I my future when I'm around a lot of people, I don't want to do this again anytime soon.

Thanks everyone for your support, I don't think I'd be as calm as I am without all of you wonderful people 🌻⚘🌺

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Oct 15, 2021 01:29AM moth wrote:

jirovecii is weird in that it's fungal infxn but doesn't respond to anti-fungals & is instead treated with antibioitics. Weird things I remember from patho clas...

forgot I was going to go to bed early lol. Really going now

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 15, 2021 07:06AM Tanya_Djamila wrote:

Moth hope your treatment is easy today. Easy needles.

Kitty I hope the treatment goes quickly.

Mae monkey is a laid back cat. When I got my cat from my daughter he his first a day.

Mara waiting for your step count today.

Mel that was so sweet of your DH. It so nice that he’s thinking of you and buying you stuff and he knows what you like too.

Tany

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Oct 15, 2021 08:33AM illimae wrote:

Kittykat, I’m so glad you have answers. I wish you a quick recovery and release to go home finally.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Oct 15, 2021 08:49AM Kittykat9876 wrote:

Thanks everyone, I'm so looking forward to going home and cuddling Finn and his mum and sleeping in my own bed.

Mel, what a lovely surprise from your dh, hopefully you'll sleep better than in that hospital bed.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Oct 15, 2021 08:56AM candy-678 wrote:

Hello all. I have been reading along, just didn't feel like posting.

Mae- Wow. Just wow to everything you have went thru. I am a cat person and so I am glad the cat was rescued and has a foster home/ new home now. Hope your friend recovers ok.

Kittykat- Glad they have a diagnosis now and can get you taken care of. Hopefully home by Monday if not before.

Tanya- Sorry to read of your GD being bullied. Life is so hard, even for the kids anymore.

Mel- Happy to read your DH got you a new bed.

Not much here. Just living day by day. It is getting cooler here over the weekend. More like fall weather. Leaves not changed yet though. Just reading on here, reading books, watching TV-- nothing new.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Oct 15, 2021 09:13AM mara51506 wrote:

Tanya, was a little bit late to the party about the step count. Yesterday was just over 10000. I do that in my house for a vigorous and quick workout, took 80 minutes. I use a yoga mat to make sure it is not noisy for the downstairs neighbour, maybe a little floor squeaking, that is about it. Once I am routine about doing 10000 at least everyday, will bump it up to 11000. It is going to be rainy so I do not want to walk outside too much, we will see. I am still aiming to lose some weight with the walking and finally measuring foods so I know the calorie count. Next test will be to buy a chocolate bar and cut it into small pieces so I can have it as a treat much as I have done with my addiction to peanut butter, grab a teaspoon of peanut butter for 30 calories after dinner sometimes as well.

Also finally working my way through the hoard of laundry supplies I bought previously, goal will be to have it all in one container, was able to empty one container into another so that is good. Just getting things emptied out here.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 15, 2021 12:08PM LivingIVlife wrote:

Mel- when I read about your new bed it brought tears to my eyes. Such a strong love connection

Mara- keep up the good workouts! When my husband cuts the grass (on a riding lawnmower) he puts his phone in his pocket which has a step counter on it, he comes in and tells me how many steps he walked. It records the steps even if he is on the lawnmower! Ya right!

Mae- the cat will be so happy in your home. We have a 17 year old German Shepard mix blind dog. She follows me wherever I go in the house. Even when I have a shower she sits right outside the door waiting for me. She is there for me and I am there for her. I love animals and would open a rescue sanctuary if I could.

Kittycat- thank God you finally have a diagnosis and can quickly get out of the hospital. We all realize how different Healthcare issues are around the world. Our one hope is for a quick diagnosis and treatment options.

My husband is out getting groceries. I hate grocery shopping at the best of times. I am getting ready to send out a package to daughter and SIL. My husband works at a golf resort here on the island. As we are seasonal up here we send end of the season golf shirts to SIL. We are also big sports fans. My SIL is a Dallas Cowboys fan and we are Buffalo bills fans so I got him a Bills winter hat. I'm sure he will appreciate that!

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Oct 15, 2021 12:29PM mara51506 wrote:

That's funny about the step counter on the phone counting the lawn mower as steps!

I am taking a rest day today and just relaxing at home. My dryer with no heat just died so am replacing it now. I waffled on getting a new dryer but since I know what caused the issue with the last one (cat fur blocking the vent causing machine to overheat), I am taking the chance and buying a new one. I intend to use mesh bags as well and will keep an eye on the back of the dryer to make sure it does not become detached from the machine.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 15, 2021 01:16PM Tanya_Djamila wrote:

LivingIVlife your husband is the best! My friend has a step counting watch thing and she's always checking. I think it even measures how much she sleeps etc.

Hi Candy thanks for chiming in. I do love a cat rescue story too. Warms my heart.

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Oct 15, 2021 01:38PM GoldensRBest wrote:

Kitty - great news about dx. Should be a warning for us to be vigilant.

Mel - what a sweet hubs. Can you share a photo?

Mae - any place with tarantulas would never see me return. Hate spiders, especially big ones. But that cat must have been well loved to be making such a good transition. We adopted a rescue golden who was just a breeder dog from a truly horrible situation. It took months for her to become comfortable and then there were certain things she could never handle. It was heartbreaking as she was a half sister to the two other goldens we had at the time. All 3 had the same father, just different mothers.

We are going to take the final walkthrough of our new home in a bit. So excited. We’re also doing some babysitting while our daughter and SIL went to San Antonio for a quick anniversary trip. Thankfully other grandparents are helping out as well.

Be well friends

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Oct 15, 2021 01:55PM Elderberry wrote:

Tanya: I hate hearing about bullying. I am so very grateful there was no social media around when I was a teenager. Great 10 was a total horror. Being bullied when you are little is just awful. I finally stood up to one of my bullies. She had her own issues, was overweight and I was really skinny. "Judy" I said "You are just a fat pig and don't have anything to say to me" Cruel but fair at the time. I was new in town, not part of a clique, dressed "funny", (I was boho even then) wore glasses, had a big nose and was accused of using "$10 dollar words" Apparently having a good command of the English language at 15 was a crime.

I cannot believe the loss of civility in the adult population. My concern is that this behaviour is as contagious as Covid and some of my fellow Canadians are catching it from watching FOX , mindless reality TV and other media that is destroying their critical thinking and along with it their common decency. I have been told that the First Nations considered insanity to be catching. I think they were right.

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Oct 15, 2021 02:12PM KBL wrote:

Kitty, so glad they found the remedy to get you home. I hope you start to feel much better soon.

Mel, what a wonderful hubby. Enjoy.

Candy, hi. I sit back and read sometimes as well. It’s still a huge comfort.

Have a great weekend, everybody.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Oct 15, 2021 02:41PM SeeQ wrote:

I've been reading along and packing, packing, packing.

Mae, glad you found and are fostering Monkey. I hope they figure out your friend's medical problem. One quick note - when my mom was having strokes, they weren't evident on CT right away. I'm sure the docs there know their stuff.

Kitty - I'm glad they've sorted you out and you're on the mend. I know how anxious you are to get back home.

Mara - you keep busy, and that's good! Good job on your weight loss!

Mel - cool surprise from your hubby. That's really sweet.

Candy and Booboo - thinking good thoughts for you.

Waving at KBL, Tanya, Goldens, ShetlandPony, moth, and... everyone else!


Diagnosed de novo Stage IV; large liver mets; small breast tumor Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio

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