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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 17, 2021 07:04PM candy-678 wrote:

Booboo- I understand your frustration and sadness. I have known several people that have died of Covid-- not close friends or family, but still. My niece and nephew (14 and 20) are not vaccinated and don't plan to be. I pray they do not get it. They are young and could have lasting effects that mess with their health for years to come.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Oct 17, 2021 08:11PM KBL wrote:

Mae, great. See you tomorrow. Drive safe.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Oct 17, 2021 08:59PM Micmel wrote:

Mae~ thank you for reminding me about Monday’s meetings. I’ve been wanting to try to see what it’s all about. I’m usually asleep at 2:00 but I did go ahead and register. I’m hoping to set an alarm. ( known to sleep through). But how awesome it would be to see you all ! Thanks again.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 17, 2021 09:00PM Micmel wrote:

this is exactly how i feel. Every single day. Nothing like a mother’s love for her children.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 18, 2021 12:26AM Kittykat9876 wrote:

Hello everyone, I'm finally going home, yay, when I get home and settled back in I'll have to find out the time difference between here and there so I can join in and put faces to names.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Oct 18, 2021 09:18AM KBL wrote:

Yay, Kitty. Finally. I’m hoping you feel much better. Would love to meet you in Zoom.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Oct 18, 2021 09:51AM mara51506 wrote:

Kitty, I am so happy you are going home after such a long haul in hospital, will be wonderful for you to sleep in your own bed and wear your own clothes.

Not doing much today. I am honestly surprised that my arms and shoulders are not sore after moving around 50 lb dryers in my apartment yesterday. I am keeping the old dryer to fluff if the new on breaks. I will cover it with an ottoman cover or something, make it look like it belongs in the living room.

I have noticed that vinegar does minimize lint but since the other dryer was obviously blocked with fur, that is why there was no lint at all. When drying clothes and towels, I am still using the drying rack for clothes and towels. For an hour in there on the drying rack and just a warm tumble in the new dryer for 15 or 20 minutes.



2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 18, 2021 11:42AM candy-678 wrote:

Happy you are home Kittykat and hopefully on the mend.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Oct 18, 2021 12:31PM LivingIVlife wrote:

would love to join in the meeting but we only use Skype on a not so good tablet. Let's just say we are not tech savvy but maybe someone can help so next week I can join.

Glad to hear you are finally on your way home Kittykat!

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Oct 18, 2021 12:35PM LivingIVlife wrote:

Micmel- I love your mother quote because that is my biggest fear. No one will love and take care of my special needs son like I do!

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Oct 18, 2021 12:42PM Elderberry wrote:

Mara: my DH does the laundry. Lucky me! The appliances are in the basement and that is where he goes to practice trumpet - as he calls it - "strangling moose" He isn't that bad!! He throws an old dry towel in with the other clothes. It actually helps stuff dry faster.

I hate hearing about folks refusing the vaccine for no good reason. They risk themselves. They risk others. No one would die from a preventable outcome.

Glad you are home KittyKat.

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Oct 18, 2021 01:07PM Elderberry wrote:

Kikomoon: My Aelfric waves hello to Maudie: He is part Bengal which means he can be a bit of a handful.

Goldens: It must be my "mother's ears" I can go from a deep sleep to wide awake and leaping out of bed at the sound of a cat about to hurl. Why do cats insist on running backwards why they barf?. You don't have a pile, you have a trail of vomit to clean up.

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Oct 18, 2021 01:14PM illimae wrote:

LivingIVlife, I use my phone for the zoom calls/video, if that’s an option for you. You’ll just need to register and download the free zoom app. And zoom should be available on most tablets, I think.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Oct 18, 2021 02:00PM GoldensRBest wrote:

Kitty - you must be so glad to be home! Hospitals are certainly no place to get any rest. Take care of yourself and keep us posted on how you’re doing. HUGS☺️☺️

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Oct 18, 2021 03:01PM Kikomoon wrote:

Kittykat so glad you are getting to go home. Elderberry, hello to Aelfric, yes I have heard about Bengals, can't imagine as my regular cats are 2.5 years old and still always in to something.

Well it is just gorgeous weather here in San Antonio I just can't believe it. Had a great time at the beer festival, got to meet our Katyblu and DH too! I felt safe outdoors, sat away from people and wore N95 mask through the crowds.

Yesterday we ate with some friends outdoors at a favorite restaurant. I was feeling nauseous so just ordered a cup of the chef's soup which was chipotle butternut squash and I just can't stop thinking or talking about it. It was sooo good, tasted like good queso, yummy with chips. I want to go for dinner tomorrow just to order a bowl.

Was working out on the patio earlier enjoying the weather when I did something stupid and knocked my coffee all over my work tablet keyboard, jumped up cursing, throwing everything to the ground except computer, shattering my mug, DH came running. He tried to shop vac the keyboard and sucked up the K key!! He said I do NOT want to go fishing for it in that shop vac with whatever is in there….Broke my last favorite mug too, out of 4! Bulls in china shops live here. A new keyboard will be $100. It's drying upside down, we'll see. But I need that damn K!

Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Xeloda (capecitabine) Radiation Therapy External: Brain Targeted Therapy Tukysa (tucatinib) Targeted Therapy Herceptin (trastuzumab)
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Oct 18, 2021 03:54PM Micmel wrote:

yay Kitty!! yay!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 18, 2021 04:36PM moth wrote:

yay kitty!

kikomoon, oh no, what a to do! glad you're not burned fom the coffee

friends, I have a guest post up on Nancy's Point. It's called "Dear Breast Cancer Survivor" https://t.co/rNOGSNC8Q0?amp=1

hugs everyone

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 18, 2021 04:38PM mara51506 wrote:

Kikomoon, I am glad you had such a good meal. Anything that is similar to queso would be aces in my book for sure. Hope drying the tablet will work and yes, you need a k on the keyboard. I am sorry about your favourite mug, but I can empathize with exploding, how I felt getting the dryer out of the two boxes and then all the cardboard in my tiny living room. Once I cleared up the mess over a space of hours, everything was fine.

Did two trips to the grocery store on purpose for more steps, got 17000 altogether which is good.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 18, 2021 05:40PM candy-678 wrote:

Moth- Bravo !!! Thank you for advocating for all of us.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Oct 18, 2021 05:47PM Kikomoon wrote:

moth, really great article! It made me cry. I’m a big waawaa booboo baby today. Told DH to go get me some wine and put it in a baby bottle for my nap.

Mara, how you do so many steps is amazing me

Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Xeloda (capecitabine) Radiation Therapy External: Brain Targeted Therapy Tukysa (tucatinib) Targeted Therapy Herceptin (trastuzumab)
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Oct 18, 2021 05:55PM KBL wrote:

Moth, great article. Good to see you back on Zoom today.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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Oct 18, 2021 05:58PM ShetlandPony wrote:

Moth, that is a very awesome article you wrote! I'd like to see it published more widely.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Oct 18, 2021 07:24PM Micmel wrote:

Moth~I enjoyed your article a lot. A lot of hard things to see in writing when they pertain to you. Well done.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 18, 2021 07:29PM Murfy wrote:

Well done, Moth. May this stimulate discussion and action!

Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/13/2017 Mastectomy: Left Chemotherapy 1/12/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/29/2018 Aromasin (exemestane)
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Oct 18, 2021 08:05PM Katyblu wrote:

Good evening ladies! I hope everyone is enjoying a good start to their week. I had a wonderful weekend, the weather here finally felt like fall. The DH and I went to the San Antonio Beer Fest and got to meet Kikomoon and her DH. I enjoyed being out and socializing for the first time in a while. And then today I started teaching a 5 day class at work. It’s the first time I’ve taught in 18 months. We still have COVID mitigations at work, so I only have 4 students instead of 10. I completely forgot how exhausting it can be to teach all day! I feel for all these teachers. I don’t think I’ve talked this much in the last month combined haha!

Kitty, I’m so glad you are home. I hope that having your own space and sleeping in your own bed helps you feel better.

Moth, what a great article! I hope this encourages the conversation and brings more awareness to metastatic breast cancer. It seems like this month has gone away from its initial purpose and has turned into another sale opportunity. We need to get back to advocating for research. Your article really hit home for me.

Kikomoon, I hope your keyboard is salvageable! And the ‘k’ key is so very important 😊

I’m sending out happy thoughts to everyone!

Dx 5/3/2017, ILC, Right, 5cm, Stage IIIA, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 5/16/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 6/20/2017 AC + T (Taxotere) Hormonal Therapy 1/20/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 8/19/2021, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/10/2021 Arimidex (anastrozole) Targeted Therapy 9/10/2021 Ibrance (palbociclib) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Oct 18, 2021 08:13PM Pots wrote:

Well said Moth!

Dx 7/2013, Right, 3cm, Stage IIIB, Grade 2, 5/20 nodes, ER+/PR-, HER2- Dx 5/2017, Right, Stage IV, metastasized to other, ER+/PR-, HER2- Dx 3/2018, Right, Stage IV, metastasized to lungs/other Chemotherapy Taxol (paclitaxel) Targeted Therapy Ibrance (palbociclib) Chemotherapy Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy Femara (letrozole)
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Oct 18, 2021 08:17PM Tanya_Djamila wrote:

Welcome Murfy you may have been here before but I never saw u.
it was nice seeing you all on the group call today. Powerful discussions so empowering to hear the grit and struggles while supporting and clapping.

Moth that article is really challenging for the pink October brigade. Whew. Good job!

Tany

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Oct 18, 2021 09:45PM mara51506 wrote:

Kikomoon,when planning a longer walk, I really emphasize protein in my meal. Beans, spinach plus pb and me peanut butter powder packs it all in, season with queso and seasoning and boom, I have a meal that sticks with me for most of the walk. I will say I overdid the barbecue seasoning I added and it was ...


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Oct 18, 2021 09:50PM - edited Oct 18, 2021 09:50PM by Micmel

Hello ladies~It was nice to see some of you today on the zoom meeting. Such a nice thing to do. I'll have to get used to the way it works. If I can manage my naps better Monday's. It's nice to put a face with a name. Everyone is so kind. I'm going to try to sleep. My happy place. My new bed is heaven. I feel lucky to have it. Hugs to all of you.

Pocket duty for anyone tomorrow!!!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Oct 18, 2021 10:32PM LivingIVlife wrote:

Moth- just read your article on MBC. Perfectly said!

I was that person 20 years ago. I thought of myself as a "survivor" . Who would think after all those years I would be diagnosed with this new sh.....metastatic breast cancer. The pink ribbons and happy commercials make me want to scream.

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)

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