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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 08:38PM - edited Oct 28, 2019 12:42PM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 21, 2021 10:24AM GoldensRBest wrote:

Morning friends -

Katy - glad you feel better! Hope it stays that way.

I’m here for pocket duty.

Anyone starting to get a creepy feeling about the winter and surges in covid and breakouts of the flu? We have our boosters (whole family does in fact). I just find myself not even wanting to go anywhere. I know we will miss some fun opportunities - for instance the little theater where we just moved has sing along nights to White Christmas - my absolutely favorite Christmas movie. I just don’t feel comfortable being in that setting. And the development we moved to is having a Christmas party at a local brewery. So far 85 are going - again I don’t feel comfortable. Since I had covid in August and the booster last month, I’m trusting my immunity is good, but my PCP told me I could get it again. And I worry about the flu - it’s a crapshoot as to what is in the vaccine and what is actually infecting it’s victims. I feel more angst about all this….

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Nov 21, 2021 10:51AM Tanya_Djamila wrote:

Mae your view is amazing.

I’m in for pocket duty tomorrow all day.
I have a Pet scan Dec 7.


Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Nov 21, 2021 11:06AM Sunshine99 wrote:

Goldens, now I have the song, "The Best Things Happen While You're Dancing" running through my head. I love that movie! :)

Cancer has progressed to my bones. I pray that it never enters my soul. my-sunny-side-up.com Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Nov 21, 2021 11:07AM candy-678 wrote:

Goldens- I hear ya. Past Holidays were times for friends and family gatherings. For activities. Food and fun. But now, No. I do not feel comfortable being in those gatherings. Between Covid and influenza. The Covid rates are going up again in my community. Our vaccine rates are 39% in my local County. People don't feel masks are important. Also, just old fashioned illnesses. Heard one school in my area had an outbreak of the "stomach flu"-- fever, pukes, diarrhea. I don't want that. Would have to pause my treatment if I got sick, and then the cancer has room to grow.

So it is sad anymore with Covid, but also with the cancer and the treatments we do.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Nov 21, 2021 02:46PM LivingIVlife wrote:

Mae that is beautiful. I'll keep that in mind as the next 3 or 4 days here on the island is expecting torrential rain fall and gusty winds up to 90km an hour. As most of the island is sea level we are expecting major flooding and storm surges. I don't think our sub pump will be able to handle it so we will have a nice swimming pool in our basement. Bawling Power here goes out regularly so we are preparing with what we call storm chips 🍟

It is a busy week so pocket duty here also. Might not be able to share the chips but everyone is in my thoughts.

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Nov 21, 2021 03:13PM illimae wrote:

Goldens, I’m not too concerned about covid during the holidays as we tend to keep to ourselves mostly anyway. We have our usual Friendsgiving with another couple who have traveled recently but they are isolating for 10 days before heading out here.

LivingIVlife, I’m sorry to hear about all the flooding you’re dealing with, it just really sucks.

DH and I took a break from cleaning our friends house, he may have months of recovery before hopefully being able to come home but we want it to be livable if/when he does return. Our beak was a picnic at the community pond. I see the deer and donkey tracks but do not want to run into whatever left the claws and paws, yikes!



Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 21, 2021 06:43PM LivingIVlife wrote:

Mae what a lovely picnic! You had mentioned before about the donkeys that were marked in yellow. What does the yellow markings represent? The paws and claws would definitely tell me to move on and quickly.

Covid here has been handled quite well from our health department. Most of it was from people traveling to the island so we basically stopped anyone from coming in accept for essential workers. The majority of people are totally vaccinated and we wear our masks indoor venues. I do go pretty much anywhere I need or want to go.

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Nov 21, 2021 06:48PM illimae wrote:

LivingIVlife, the yellow markings were just an edit I made to make them easier to see. Most donkeys were in the shade and a couple were laying on the ground.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 21, 2021 06:56PM Kikomoon wrote:

Reporting in for pocket duty tomorrow (Monday) lots of scans. LivingIVLife I hope your flooding is not too bad, so sorry. Katy hope you are feeling better!
We are winding down our desert road trip and looking forward to Thanksgiving. My mom will be hosting my nieces and nephews who are almost all adults now, setting up outdoor seating in the garage with a cross breeze.

Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Xeloda (capecitabine) Radiation Therapy External: Brain Targeted Therapy Tukysa (tucatinib) Targeted Therapy Herceptin (trastuzumab)
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Nov 21, 2021 08:01PM LivingIVlife wrote:

Mae- LOL Here I thought it was a new breed of donkey or somehow they got covered with yellow blankets!

Kikomoon- Sunshine with a cool breeze sounds wonderful. Hope you enjoyed your road trip listening to those great tunes.

Again my thoughts are with everyone this week.

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Nov 21, 2021 08:25PM Lee64 wrote:

Thanks to all for the support and good vibes. I'll be thinking of all of you tomorrow morning and especially those having scans. May everyone come out "stable" or better.

GoldensRBest, I also avoid crowds and wear a mask. I hope getting together with kids and grandkids for Thanksgiving will be okay. My SIL is not vaccinated and neither are the grandsons.

LivingIVLife, I chuckled when I read your comments on the donkeys because at first I thought maybe the DNR had marked them for some reason. When I looked closer it looked like a mark Mae put on the picture.

Dx 11/5/2010, IDC, 3cm, Stage IIB, 2/6 nodes, ER+/PR+, HER2-
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Nov 21, 2021 10:08PM Rosie24 wrote:

Candy, Katyblu, Kittykat, SeeQ, Cowgal, and Lee: pocket duty and good wishes for you all!!


Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Dx 1/6/2022, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2- Radiation Therapy Whole-breast
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Nov 22, 2021 12:28AM Kittykat9876 wrote:

Well, it's already halfway through Monday fere, I got the impression today that if the orthopaedic surgeon can't cut me open he's not interested. He pretty much said take a stronger painkiller and just put up with it, I'm not impressed, so I think I'll go see my gp and ask him what he suggests I should do

Reporting for pocket duty for all of us that are having scans each today. I hope for good results for everyone.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Nov 22, 2021 01:50AM SeeQ wrote:

Hopping in pockets all over the place: Candy, Katyblu, Lee, Cowgal, Kittykat.


Diagnosed de novo Stage IV; large liver mets; small breast tumor Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Nov 22, 2021 08:39AM Micmel wrote:

pocket duty !!!!!!! Hugs to all

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 22, 2021 08:48AM candy-678 wrote:

Kittykat- So is there a fracture? I was thinking they thought fracture. But then did you post no fracture? I did not go back in your posts to see if that is true. So, if NO fracture to surgically fix, then what do they say is wrong? How to fix you, except "take a stronger pain killer and just put up with it"? Sorry you did not get help today.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Nov 22, 2021 08:52AM candy-678 wrote:

Kittykat- I went back a few posts and saw they think rotator cuff issue on you. Have they determined that for sure? I had an MRI of my shoulder to see the rotator cuff AND labrum tear. Recommended surgery for such an injury, but not a candidate for surgery, so we did physical therapy.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Nov 22, 2021 09:27AM Micmel wrote:

I have also torn my rotator cuff and labrum, not fun. Had surgery before cancer. Was pretty painful. I'm so sorry if you guys are dealing with that as well my goodness. My closest MBC friend broke her foot from just simply turning around. Nothing out of the ordinary. Broken. So the cancer makes us weak, I've never seen anything like it really. Kitty not cool when a doctor is no help at all At least have a recommendation for me that isn't just drugging me…

Showing up for pocket duty today

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 22, 2021 09:47AM Kittykat9876 wrote:

Candy, apparently the ct scan didn't show anything, neither did the petscan I had last week so I have no idea what is wrong with it, there's no fracture and no rotator cuff damage, which I'm grateful for, so I'll go see my gp and see if some pt will help.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Nov 22, 2021 11:34AM LivingIVlife wrote:

Kittykat- good idea to see your gp and look at pt

I find that it's a fine line here about when to go to my MO or my gp when something isn't right. A couple of times I called my MO and was told to see my gp. Regarding weak bones one time I was brushing my teeth, turned around to grab a towel and ended up fracturing a couple of ribs. No one seemed too concerned so I thought ok I will just deal with it! I couldn't move for awhile and now of course it shows up in the scans. Go figure!

On pocket duty for everyone who needs that extra push of strength this week!

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Nov 22, 2021 11:48AM Elderberry wrote:

Pocket duty for upcoming scans. I am getting anxious about my upcoming and not yet a date bone scan for my "enigmatic bone marrow" I was a bad, bad girl and went Googling. I know we all say don't and I bet at least half of us do anyway. I cam upon "pancytopenia" which can occur in the bone marrow of HER2+ breast cancer. Waaaa. My blood counts for RBC, WBC, platelets were all within range and should have shown up if I had that. But now I am convinced that is what I have. I fired off an email to my MO who is very good about responding and talking me off the ledge.

Have any of you ladies had this?

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Nov 22, 2021 12:35PM Sunshine99 wrote:

Pocket duty for all who have appointments today. My root canal was canceled for today. I'm trying to get through to the MO's office about the results of my PIK3 CA test. Anxiety is up a notch or two...

Cancer has progressed to my bones. I pray that it never enters my soul. my-sunny-side-up.com Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Nov 22, 2021 01:18PM runor wrote:

It's been a minute. Hello to all ! Stay well!

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 22, 2021 01:24PM illimae wrote:

The javelina realize we’re back 😀


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 22, 2021 04:32PM Elderberry wrote:

mae: I trust the javelina are not in the same league as wild boars. I think the place we stayed at in Sedona who had javalena would have warned us. How nice to live among donkeys and javalena and such beautiful scenery

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Nov 22, 2021 05:07PM Micmel wrote:

Runor!!!!!!!! 💐😂♥️

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 22, 2021 06:26PM Tanya_Djamila wrote:

Mae thanks so much for the wildlife photos. Really makes my day.

Mel you're almost at 800 pages in the living room!!!!!!!!!!!!!!!!! Well congratulations dear. This site makes my day.

I hope all those with scans today did well.

Zometa infusion tomorrow.

Take care all

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Nov 22, 2021 06:28PM Sunshine99 wrote:

runor, how NICE to see your name here!

Cancer has progressed to my bones. I pray that it never enters my soul. my-sunny-side-up.com Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Nov 22, 2021 06:41PM Myshadow wrote:

Hello - I'm mostly just a lurker 👀 and don't post very often. I follow along and feel like I know you all, but you don't know me haha.

Kittykat- I was just wondering if your doctor has mentioned the possibility of frozen shoulder. A couple of years ago, I was having a lot of pain in my upper arm and shoulder. An MRI was done and I had some mild tendon issues, along with “abnormal marrow remodeling". I had bone marrow biopsy to check for myelodysplastic syndrome and leukemia (both chemo induced issues). Thankfully nothing was found. They decided the abnormal marrow was due to pancytopenia and effects of using Neulasta for an extended amount of time (during Kadcyla treatment). I guess I caused the frozen shoulder due to babying my sore arm. PT, heating pad, and time seemed to fix the issue. I hope it turns out to be something that can be fixed for you. We all have enough issues to deal with!

Good to “meet” all of you.



Was triple positive. Now ER+/ PR-/ HER2-. Currently on Fulvestrant and Leronlimab injections. Added Verzenio to the mix Oct. 2021. Dx 10/9/2008, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Dx 10/2014, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2+ (FISH) Dx 8/7/2017, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2+ (FISH) Targeted Therapy 11/8/2017 Kadcyla (T-DM1, ado-trastuzumab) Dx 7/14/2020, Stage IV, metastasized to brain Radiation Therapy 7/26/2020 External: Brain Surgery Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Whole-breast: Breast Surgery Lymph node removal: Left Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Aromasin (exemestane) Radiation Therapy External: Lymph nodes Radiation Therapy External: Bone Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Xeloda (capecitabine) Targeted Therapy Tukysa (tucatinib) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Brain Targeted Therapy Verzenio Hormonal Therapy Faslodex (fulvestrant)
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Nov 22, 2021 07:38PM Elderberry wrote:

Kittykat: I had a buggered shoulder caused by calcific tendinopathy . Radial shock therapy cured me. I see you mentioned pancytopenia . I have a bone scan coming up since the PET and MRI were inconclusive. I have not used Neulasta but I have convinced myself that is what is causing my weird "glow" in the bone marrow. What did they use to treat your? I need to know I will live enough to enjoy the major renos my poor 1920's kitchen (reno'ed in maybe 1940/50) is undergoing.

runor: Hi! Are you flooding now that you have gone through the fires? What a mess in the Interior. My sister in Kamloops could only find three lonely turnips in the produce section and had to use ice cream in her coffee since they were out of milk.

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)

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