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Topic: My Husband, My Life, My Love, My Family, My Cancer

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jul 6, 2017 05:38PM - edited Oct 28, 2019 09:42AM by Micmel

Micmel wrote:

As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the horrible sorrow of thinking of another woman taking my place in his life and his heart, and if I Am honest his bed. He is my best friend and the love of my life, I would never need another for any reason. He makes my life complete, and then this happens. How do I process that I most likely won't be the one growing old on the porch that we have talked about, how do I process, someone else sitting in that chair? I hate this trajectory path I've been spun onto, and everyday I feel grief and deep sorrow. How do I live everyday knowing in the back of my mind, I feel like a place holder, for another woman who will be stepping into my life when I die of this horrible disease, more sooner than later. Why would I even want to take any medicines or treatments, when the answer is pretty obviously in front of my face.? Why do we fight so hard for something we cannot control ? Why do we hurt so badly thinking about letting go, or giving up? It's a four letter word that holds so much power. That word is LOVE..... If you have ever felt this way. Share with me, because I understand, I feel this way everyday. I also don't know what to do with the sadness of loss or how to process the process of dying. However slow or fast it may be. Please share your love stories with me, how did you meet? How long together? I want to know your stories, everyone has their person. Everyone loves.....tell me about your family, your friends, your life too, as if this was your living room. ♥️

We are team FU cancer (Named by Parry, our sweet sister) and this is our Lol pub and living room. Welcome, put your feet up and just be you!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/9/2016 AC Surgery 6/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 24, 2021 05:59AM candy-678 wrote:

Lee- So sorry to read of your progression. Hoping the Verzenio is easy on you and kicks those cancer cells.

Mel- How is your mouth?

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Nov 24, 2021 07:39AM - edited Nov 24, 2021 07:39AM by mara51506

This Post was deleted by mara51506.
2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 24, 2021 08:38AM - edited Nov 24, 2021 08:41AM by GoldensRBest

Lee - sorry about progression😥😥. Hope new drug is the answer.

I want to wish you all a Happy Thanksgiving! Despite this stinkin' disease, I'm grateful for family & friends, my wonderful dogs, a roof over my head and food to eat. I'm in 7th heaven being 7 minutes from our daughter, SIL and grandkids. Trying to get Christmas decor up but I'm so damn exhausted. Baby steps….

Me with our pups 🐾🐾🐾🐾🐾


Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Nov 24, 2021 09:07AM candy-678 wrote:

Goldens- Great pic !!!

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Nov 24, 2021 09:37AM Elderberry wrote:

Goldens: after everyone else's posts and feeling so bummed and unhappy for everyone your lovely smiling Goldens lifted my spirits.

I am not ready for the holidays. I have always believed no store should play Christmas music until December 1. It should be a law. I cannot stand hearing "Holly Jolly" stuff in November. I don't do much decorating , a little greenery with mini lights on the fireplace mantel. The really beautiful cards that I have kept over the years -- I put them up along the wainscoting. I have a wreath for the front door. No tree. Lots of pillar candles in the fireplace. The chimney is too unsafe these days to have a fire. :-( .

I consider myself to be celebrating Yule and the Turning of the Great Wheel. After the 21st it starts to get lighter.

Happy Thanksgiving to my American sisters.

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Nov 24, 2021 09:43AM MoCoGram wrote:

Goldens, your dogs are gorgeous. Throughout the years, we have had Shelties and several mixed breeds. Our last dog was a rescue Collie named Chance. Despite a very rough start to his life, he was the sweetest, most lovable boy. He died about a year ago, and I miss him every day. Have a wonderful Thanksgiving with your family and the pups.

Dx 5/2016, ILC, Left, Stage IIB, ER+, HER2- Surgery 7/28/2016 Lumpectomy: Left Chemotherapy 9/19/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 7/2021, ILC, Stage IV, metastasized to bone, Grade 2, 0/3 nodes, ER+/PR-, HER2- Radiation Therapy Breast Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Targeted Therapy Herceptin (trastuzumab)
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Nov 24, 2021 09:47AM mara51506 wrote:

I deleted my last post as well since feeling down in the dumps. Loving the happy family picture of Goldens.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 24, 2021 11:22AM Myshadow wrote:

Mae- yes our signature lines do look similar. Mine is just a jumbled mess of all the treatments I've had. It's hard to make sense out of it. I have thought about deleting it and writing an organized timeline of my experiences over the last 13 years. Too lazy right now though.

When I saw your picture with the metal cage fastened to your head, I just thought OUCH! You are tough and resilient and I love that you have kept your sense of humor through it all. I had SRS with the mesh mask. It wasn't too horrible until they bolted it down to the table so tightly I thought my skull cracked. I kept having visions of the fire alarm going off and all the rad technicians running out leaving me bolted to the table kicking and screaming 🔥😱!

Happy Thanksgiving to the US residents! And to everyone - sending good vibes your way. Hoping we can all overcome our struggles. There's so much going on in this thread it's hard to keep up!


Was triple positive. Now ER+/ PR-/ HER2-. Currently on Fulvestrant and Leronlimab injections. Added Verzenio to the mix Oct. 2021. Dx 10/9/2008, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Dx 10/2014, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2+ (FISH) Dx 8/7/2017, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2+ (FISH) Targeted Therapy 11/8/2017 Kadcyla (T-DM1, ado-trastuzumab) Dx 7/14/2020, Stage IV, metastasized to brain Radiation Therapy 7/26/2020 External: Brain Surgery Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Whole-breast: Breast Surgery Lymph node removal: Left Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Aromasin (exemestane) Radiation Therapy External: Lymph nodes Radiation Therapy External: Bone Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Xeloda (capecitabine) Targeted Therapy Tukysa (tucatinib) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Brain Targeted Therapy Verzenio Hormonal Therapy Faslodex (fulvestrant)
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Nov 24, 2021 12:27PM illimae wrote:

elderberry, I agree on the Christmas music.

Myshadow, I think about the fire alarm scenario every time, lol

I’m super excited for tomorrow, thanksgiving is my favorite holiday of the year. Friends and big plates of food, yay!

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 24, 2021 01:13PM ShetlandPony wrote:

I am also super excited about Thanksgiving. It will be a family party of five and a small plate of food. But that small plate of food is huge because just a few weeks ago I was in bad shape with an almost-blocked colon, from a new ILC met. I had surgery, and am on an ultra-low fiber diet now as I recover. Thankfully, turkey, potatoes (no skins), and gravy are all low fiber! I get to take leftovers home so I can have several small plates. I'm even getting special homemade pudding to replace the pie I cannot eat.

Goldens, that photo is definitely happiness-inducing. If I ever got a dog, it would be a Golden. What loves they are. But my cats say "Friends don't let friends get a dog."

I let go of being ready for the holidays long ago. One by one I cut out the obligatory stuff until I was left with my favorites: Lights outside the house (get some young adults to put them up) and a fragrant Christmas tree inside. No cards, no baking, no shopping marathons. I got the extended family to do a name draw so we only shop/make for one person each, and everyone is happy about that. Gifts for DH and adult kid are casual, celebrations are flexible.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Nov 24, 2021 02:39PM LivingIVlife wrote:

Golden- they are beautiful dogs . I love the picture. We had two Goldens before we rescued our sweet Abby from the shelter. Our one golden was very protective of our special son. The other one was a crazy character.

To all our American family have a Thanksgiving that is full of family, friends and food. Good vibes only!

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Nov 24, 2021 04:47PM Micmel wrote:

I love dogs.

My mouth is slightly improved thanks for whoever asked me. 💐

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/9/2016 AC Surgery 6/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Nov 24, 2021 08:54PM SeeQ wrote:

Lee - sorry about the progression. No time is good, but right at the holidays really sucks.

Goldens - love the picture!

Holiday stuff - this year, it's just not happening. After a three day drive (with fifth wheel) to our new home, my husband will rest up a few days, then leave on Christmas Eve for a 20 hour drive with a uhaul trailer to move my dd fairly close to where we're moving -- one way truck rentals are ridiculously expensive where she is. My dd was feeling bad about him "missing Christmas". I told her not to worry a bit, we won't get to the house until the 21st, with almost nothing unpacked and no food in the house. I'm not decorating and I'm not planning a meal, so he's not missing anything. We may plan a nice family dinner for sometime in January, and that will do. I don't think I'll make the drive with him. Partly because I'd have to kennel the dog - again - and partly because of the long drive - again. And, I'm looking forward to a few days of peace and quiet to unpack without...hmm..."help". Now, I just have to convince people that I'm really okay with being alone on this one Christmas. I'll just be thrilled to be in our new home at last.

And the best news before our move is that I'm still NED (my MO actually says "PET negative", but I'll take it). Now, I can live with the normal pace of getting set up with a new PCM and referred to a new MO without worrying about what's going on with the cancer.

Happy Thanksgiving to all the American ladies

Diagnosed de novo Stage IV; numerous liver mets; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Nov 25, 2021 04:58AM GoldensRBest wrote:

SeeQ - going through same thing with setting up new docs. I’m going to see a new internist on Monday. Have a call into the medical college of wisconsin breast care center - waiting for call back. Glad to hear you’re NED!

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Nov 25, 2021 05:15AM mara51506 wrote:

Shetland, sorry about you having to have surgery but really glad that the Thanksgiving meal is so low in fiber. That is better for you to be able to eat in tiny meals. Enjoy the meals and the pudding.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 25, 2021 05:45AM booboo1 wrote:

Goldens,

What beautiful dogs….and you are too! You look great!

Mara, I am sorry you are feeling down. I’m sending you hugs across the miles and some big love.

Shetland, I am so glad surgery is behind you. Blessings for a quick recovery.

Happy Thanksgiving to my American sisters. I am thankful for my family, especially my oldest sister whom I would not have been able to get through this MBC journey without her.

Love to all.


Laurie (aka Booboo) #metastaticbreastcancer Dx 3/1/2013, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Surgery 5/14/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 1/2017, DCIS, Left, 1cm, Stage 0, metastasized to bone/liver, Grade 2, 1/4 nodes, ER+/PR+, HER2- (FISH) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Chemotherapy AC + T (Taxol) Radiation Therapy 3DCRT: Breast
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Nov 25, 2021 08:34AM mara51506 wrote:

Thank you Laurie, Happy Thanksgiving.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 25, 2021 08:54AM illimae wrote:

Good morning all,

The turkey is in the oven and the appetizer is ready to enjoy. Have a great day!


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 25, 2021 10:09AM Elderberry wrote:

SeeQ: Yay on NEAD. Lt NED's conga line has another name. Happy dancing for you.

mae: Cheese. Oh yes!!


De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Nov 25, 2021 10:12AM illimae wrote:

Seeq, sorry I missed your results, congrats on NED 🎉

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 25, 2021 10:40AM moth wrote:

SeeQ , yay on the NED! The best present ever!!

Chemo day for me. I'm thankful I can get it. My wbc and neutrophils are normal. Liver enzymes are high across the board so that's weird and new and worrying but nothing I can do about it. Scans in December. The liver values aren't high enough to stop chemo so that's good.

Enjoy your day friends!


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Nov 25, 2021 11:26AM mara51506 wrote:

Well, that's just great. We all got a note yesterday that the new management needs to come in and test the fire alarm which the woman did. I knew her from when she worked for the last property managers. That was a total lie, they brought her in under the false pretense of testing the fire alarm in order to try and butter us up to agree to leave. I still find this deceptive and don't trust the building anymore.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Nov 25, 2021 03:06PM Katyblu wrote:

Hello ladies! Happy Thanksgiving to all my US friends. And a happy Thursday to everyone else. I hope the weather, company, and food are great!

SeeQ- congrats on the NED! That is so amazing!!!

I got my scan results and my MO said that all my lesions have decreased activity! That is best news I’ve had in a while.

Dx 5/3/2017, ILC, Right, 5cm, Stage IIIA, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 5/16/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 6/21/2017 AC + T (Taxotere) Dx 8/19/2021, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/10/2021 Arimidex (anastrozole) Targeted Therapy 9/10/2021 Ibrance (palbociclib) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Nov 25, 2021 03:39PM Kittykat9876 wrote:

Happy thanksgiving to my American friends, hi to everyone else. Congrats to Seeq on NED and Katyyblu yay on great scan results. Mara, they are really being sneaky, but at least you know your rights and they can't make you leave, I'm so sorry this is happening to you..

Well I think I'm about to join the bald brigade, my hair is coming out in chunks, time to shave it I think. Take care everyone ❤.

Surgery 5/23/2013 Lumpectomy Dx 10/31/2017, Left, 6cm+, Stage IV, metastasized to bone/lungs/other, Grade 3, 2/22 nodes Chemotherapy 1/28/2021 Navelbine (vinorelbine) Hormonal Therapy Targeted Therapy Afinitor (everolimus) Radiation Therapy External: Bone
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Nov 25, 2021 03:54PM illimae wrote:

Yay katyblu 🎉


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 25, 2021 04:02PM candy-678 wrote:

Katyblu and SeeQ- Woohoo !!!!

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Nov 25, 2021 04:32PM illimae wrote:

And here’s a fluffy youngster for ya, so cute!


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 25, 2021 04:49PM LivingIVlife wrote:

Katyblu and Seeq- Yay that is wonderful news!

Kittykat- bald is beautiful but cancer is shit

Mara- this person really is doing everything to make this matter ongoing. Stick to your guns girl!

Everybody full on turkey yet? I watched the Macy's parade on TV. Now the football games. Did get some more lights on outside. (in the drizzle but I'm persistent)

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Nov 25, 2021 04:51PM LivingIVlife wrote:

Mae- so cute and staying by mama

Deb Dx 5/1/2019, Right, Stage IV, metastasized to bone/other, 4/11 nodes, ER+/PR+, HER2+ Targeted Therapy 6/30/2019 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Nov 25, 2021 09:11PM Micmel wrote:

I hope everyone had a nice thanksgiving day.

Mae~too freaking adorable. Love it when you're at the cabin doing live reports From the wild . Love it.

SeeQ~ congrats on the Ned. Smiling ear to ear for that news.

Katyblu~ you too! Way to go. Happy dancing going on for my sisters.

Mara~ I'd love ten minutes with these people, I'll check the fire alarm, two millimeters away from their eardrums . Jerks. Don't be coming into your home under false pretenses, I'll kick their ass. People infuriate me. I've lost all patience with human kind at this point. It's all about the almighty dollar. Keep firm darling.

Love to Tanya and BooBoo! Goldens. I loved your pic lovely lady.

My DH looked at me yesterday and said hey do you want to get your nails done? It was so sweet. He knows how much I love having them done. It's been years. I always do them myself. He had this big smile. Because he knew. Sometimes I need to re think how I look at things and start living my life. Instead of waiting to die. I really need to work on this attitude shift in my mind. I guess sometimes the sadness of all I lost, is too heavy to carry. I can never put it down. I think you all can relate somehow.

Living~ you said it bald is beautiful and cancer is shit.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/9/2016 AC Surgery 6/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)

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