Nov 14, 2019 11:10PM - edited Dec 18, 2019 05:57AM by NicoleRod
Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.
Posted on: Apr 26, 2019 11:59PM - edited Sep 8, 2019 07:57AM by Moderators
This sounds kind of crazy but I'm tempted to try it, especially if standard treatments stop working:
Mods adding this link to a podcast from BCO: Podcast: What My Patients Are Asking: Can Dog Deworming Medicine Treat Breast Cancer?
Posts 2851 - 2880 (3,540 total)
Nov 14, 2019 11:10PM - edited Dec 18, 2019 05:57AM by NicoleRod
Nov 14, 2019 11:11PM - edited Dec 18, 2019 05:57AM by NicoleRod
Nov 14, 2019 11:12PM - edited Dec 18, 2019 05:57AM by NicoleRod
Nov 14, 2019 11:13PM - edited Nov 15, 2019 08:48AM by NicoleRod
Nov 14, 2019 11:30PM Husband11 wrote:
I hope you two had a wonderful evening!
Nov 15, 2019 12:02AM Olma61 wrote:
Gorgeous photos, love your dress! Glad you got to enjoy this, Nicole! : )
Nov 15, 2019 12:51AM santabarbarian wrote:
You make a gorgeous couple!
Nov 15, 2019 02:05AM BSandra wrote:
omg, dear Nicole... what can I say. You guys look so young and beautiful,congratulations on that!
Dear Mike, if you hear us, we are with you. May your wonderful angel rest in peace...
Dear Frisky, I cannot stop waiting for your PET results (sure, first you should get it). I have a a good feeling...
Nov 15, 2019 05:34AM Anotherone wrote:
you two look great ,Nicol!
Snooky , do you think it is a coincidence that the issue with healthcare has been resolved a day before headaches have resolved ?
Nov 15, 2019 08:29AM goldie0827 wrote:
Snooky, the mysteries of our bodies. Glad the headaches are gone and you got the Medicare.
Nicole, you look absolutely stunning and beautiful. And such a good looking couple.
Frisky, always anxious to hear results from everyone of us. I get scans on the 24th, but only nuclear bone, as I had CT in July.
I miss Sonya, just as the rest of you. Praying she is ok and only taking a break.
Nov 15, 2019 08:49AM NicoleRod wrote:
Thank you all for the sweet compliments. We had nice time the best part of the ball is watching the JR. Marines dance lol they make the ball fun. :)
Nov 15, 2019 09:35AM mysticalcity wrote:
Nicole--you look amazingly beautiful!!! (And very handsome husband.) I am so happy it was a great time. Keeping you in my daily prayers for the upcoming surgery and complete healing for you. --J.
Snooky so happy for your good news and the headaches ceasing!
Nov 15, 2019 09:36AM snooky1954 wrote:
Nichole, The two of you look so right together You are a beautiful young women I too, am happy that you made it to the ball, Must of been wonderful stress free night. (Odd, my younger brother was a 30 year lifer and I never heard one word about balls! Wishing you the very best this coming Monday,
Anotherone, Good question. I wondered the same. Stress can do odd things to you. And having cancer with no insurance is right up there on the stress level. I have an eye appt this afternoon, just covering all bases.
Happy Friday to all
Nov 15, 2019 12:22PM - edited Nov 15, 2019 12:24PM by Frisky
I have a Dec 3 Pet scan scheduled...so we'll soon find out what's up....
meanwhile I'm sitting here eating a delicious Italian ciabatta sandwich of fresh mozzarella cheese and Genova salami...my favorite comfort food...as I wait to get my Doxil infusion ...
The hospital is PACKED! Never seen it like this..there must be a cancer epidemic going on...
Nov 15, 2019 12:24PM snooky1954 wrote:
Frisky, I'm jealous. I want that sandwich. Hope your infusion goes well.
Nov 15, 2019 12:27PM - edited Nov 15, 2019 12:53PM by Frisky
It's so funny Snooky..I can only get it when I come to this hospital...the Italian delicatessen is right next door and the owner, a Sicilian man, told me that he loved me this morning...
I think he knows I'm coming in for treatment and it's his way to say he's sorry I'm so sick...I speak to him in Italian and his eyes get very big and moist from the joy ....
Nov 15, 2019 12:37PM - edited Nov 15, 2019 12:38PM by NicoleRod
FRISKY!!!!!!UGHHHHHHH I WANT THAT!!!!! I hope you ENJOY EVERY LITTLE MORSEL!!! :) Cant wait for your pet!
Thanks again ladies so sweet of you all.
Nov 15, 2019 01:27PM Anotherone wrote:
Frisky , so good we people can give and receive joy. I am looking forwards to tour report from your scan as you seem to have felt consistently better in the last few months xx
Nov 15, 2019 02:05PM Simone80 wrote:
I'm looking forward to seeing how your pet turns out too.
I hope your scan turns out to be good news too.
Nov 15, 2019 04:04PM - edited Nov 15, 2019 04:07PM by Frisky
thank you all for your good wishes...I'm finally back home...it turned out to be on all day affair, delays due to the dose lowering of Doxil...but I'm all pumped up on steroids with nowhere to go...I wish I had the ingredients for baking something fun, but that's not the case right now...unless I get REALLY CREATIVE
will have to see a cardiologist that might help explain the sudden dangerously lowering or raising of my BP....let me take a wild guess....hummm....after many thousands of $$$$$ worth of tests I'll be told to take salt pills whenever that happens...and to not eat salty things when it's up...
it's a once a month out of the blue phenomenon...( in my view associated with the damage of Doxil on my heart) but they don't admit se...not even the ones posted on the medication...
Disassociation is a wonderful coping mechanism....sometime I wish I could go back to that deep state of unconsciousness....
Nov 15, 2019 07:13PM - edited Nov 15, 2019 08:56PM by Frisky
The power of steroids...after a four hour long FaceTime with my best friend in Italy, I'm proceeding with the improvisation of baking something sweet...something unthinkable only yesterday...
Im starting with this....I'm not kidding I've had that squash for the past two months and didn't know what to do with it...I would get exhausted just looking at it...
I processed only half...didn't want to have to throw out too much food....
Twenty minutes of roasting with lemon juice, raisins, butter, stevia and water, and I then added goat cheese, sliced apples..nuts .and spices...
Ready to go in the oven for the finale...
I checked the lab results...nothing much has changed with the tumor markers...whatever I'm doing is keeping things in checks..I think the liver markers are deteriorating but not enough to get flagged...and I don't understand those numbers at all.. humm I smell the baked apples, cinnamon and butter...let's see what we have here...
Dinner time...I wish I could be sharing this experiment with you all!
Amazing results...somehow the lemon juice, the fat from the cheeses and the sweetness of the fruit and vegetables are all balanced...good enough for Le Bernadin..
I feel pleasantly full with no need to eat more which means this meal was well balanced, and although sweet and delicious is not raising my insulin levels....very good for me!
Nov 16, 2019 12:07AM - edited Nov 16, 2019 12:41AM by Frisky
"You'll never catch me dying": living with stage four cancer. | Jen Sot...
mind on steroids around midnight...
uplifting Ted Talk...not about MBC but about Metastatic deadly cancer and Immunetheraphy sweet/bitter results for this woman...and her coping mechanisms...
12.30 am still going strong...and watching that video became more satisfying while eating this yummy sandwich...You need to eat more vegetables my mind on steroids told me...but it all started with the visuals of the toasted sourdough bread...and the rest—like they say—was history!
I could get used to this....I might opt for weekly infusions next...
Nov 16, 2019 01:24AM JFL wrote:
Frisky, the squash/apple baked dish looks so good! As for the sandwich, I am amazed and impressed that THAT is the type of sandwich you throw together at 12:30 in the morning. I was assuming it was a slab of meat, cheese and bread, maybe some mayo (given the time). Wow, the sandwich looks so tasty and healthy as well. I have commenced my PET scan fast and am feeling hungry!
Nov 16, 2019 01:27AM Frisky wrote:
JFL...I prepared the roasted peppers day's ago....dressed with all the proper spices and put the jar in the refrigerator...there’s enough raw garlic in there to keep Dracula away...
Good luck tomorrow...everything will be alright!
You have plenty of time to eat something...pet is only a six hours fast...
Nov 16, 2019 08:12AM - edited Nov 16, 2019 09:07AM by Frisky
Dog medicine goes viral in South Korea over claims it cures human cancer
Interesting article about shortages of the FZ and how fears are mounting in the cancer medical complex over people dropping chemo for a $5 treatment....
Mind on steroids, slept between 4am and 6 am....good to go without coffee....
In anticipation of my Pet on Dec 3 I have decided to stop the doxycycline and switch to the FZ now...but will be taking 2gms 4 on 3 off because I'm afraid I'm going to runout and the gouging on amazon is insane...there are people asking $60 for one gram package...
Actually, I know what I'll do...when I runout, I will ask my primary physician to prescribe the menbendazole...or whatever it's called...that should up an end to the problem....
This morning I'm taking it after consuming a fatty breakfast of fried eggs and melted fresh mozzarella cheese that would make any dog extremely happy
Nov 16, 2019 09:11AM Simone80 wrote:
Good luck on your scan today!
Nov 16, 2019 09:45AM snooky1954 wrote:
Frisky, Petmeds.com has better prices but alas, they are sold out except for the 1gram packages which are 8.??
The odd thing about amazon, the prices are all over the place. And after they display all the sellers of Panacur, they go right into vit E and curmin which are also high priced.
There's also Safeguard which is also FZ that's somewhat less expensive.
Nov 16, 2019 11:19AM Frisky wrote:
Snooky, I have enough to last me for a while, but the signs of the times are upon us...
Nov 16, 2019 06:22PM Husband11 wrote:
Frisky, dare I say enjoy the energy burst. When my wife took prednisone she started an epic housecleaning.
Tumor markers steady is nothing to be sneezed at. The squash looks delicious. We grow spaghetti squash and butternut squash in our garden. If all else fails, those plants grown and produce.
Nov 16, 2019 06:49PM goldie0827 wrote:
JFL, good results on those scans!
Frisky, I've been getting mine from bestvetcare.com. They are in the UK I think.
Leaving tomorrow for a glamping trip to Moab, be back Wednesday afternoon.
Love and Huggles to everyone!
Thoughts are with Mike.