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Topic: Type 1 diabetes and being treated with Perjeta and Herceptin.

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Sep 20, 2019 03:14PM


Is there anyone out there in Stage 4 breast cancer Metastatic land that is being treated with Perjeta and Herceptin also have Type 1 Diabetes? I was diagnosed with cancer 6 1/2 years ago. I am in complete remission but have severe peripheral neuropathy. I've had diabetes since 2002 and the neuropathy started when I did the nasty lose your hair chemo at the beginning. Now, however it is severely affecting my legs and arms and hands. I am to the point where I fall and need a cane to go anywhere. My left arm and hand are very painful. I am wanting to stop the Perjeta and just continue with the Herceptin. What I am reading here though is that Herceptin could also be causing this. Just wondering if anyone else has had any experience with diabetes and these drugs?

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Sep 20, 2019 04:39PM Moderators wrote:


Welcome to the BCO community. We are sorry that you are having so much pain and difficulty. We are glad that you reached out here. While you are waiting for some of our members to share their experiences you may want to review some other topics here. They may lead you to other members to whom you can correspond via private message. Check out the Herceptin and Perjeta Thread, the Neuropathy thread and the Neuropathy thread in the stage 4 forum. Here is additional info about Herceptin from our main site. We hope that you will find support and helpful information here from others who can relate to your experiences. If you do not receive timely responses be sure to send us a private message so we can help you to navigate your way to some ideas.

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