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Topic: Metastatic breast cancer in my bones

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Oct 1, 2019 05:02PM - edited Oct 1, 2019 05:04PM by CarolV45

CarolV45 wrote:

I am having a hard time dealing with my new diagnosis that I had received in June of 2018. Originally I have had breast cancer in October of 2013 it was also in my lymph nodes and thyroid I was doing pretty well after the chemotherapy and radiation I was in remission for short amount of time and it has come back into my lymph nodes and then once it was out of my lymph nodes and has went to my pelvic bone and my tail bone so now they say that it is stage 4 bone cancer . It is very hard to handle something like this especially when it has to do with your bones I know it's a lot more risky and I know the treatments are going to be a lot harder I just wanted to know is there anyone else going through the same thing I am going through? I had just been signed up for a new trial for a chemotherapy pill that they believe will slow down the cancer it had already ate through my pelvic bone because it was diagnosed late and it is in my tailbone so I'm very sore and it's very hard to walk at times. I was just reaching out to see if anyone is going through the same thing and maybe can give me some insight on some of the things that they are going through or had went through the treatments for bone cancer to see if there is a light at the end of the tunnel thank you

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Oct 1, 2019 05:28PM - edited Oct 2, 2019 09:30AM by exbrnxgrl

Stage IV bone cancer is very different from stage IV breast cancer. It's a separate disease. Can you clarify? Perhaps stage IV bc with mets to bones

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Oct 1, 2019 08:31PM candy-678 wrote:

If you mean you have Stage 4 Breast Cancer with mets to bone, then here is a link to the Bone Mets Thread. Hopefully this will help.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 8/1/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Hormonal Therapy 9/4/2021 Zoladex (goserelin) Targeted Therapy 9/4/2021 Lynparza
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Nov 21, 2019 05:29AM ZZZAAAZZZAAA wrote:

i m mahmoud from egypt , i have my mother 72 years she is stage 4 have mets in bones and 2 spots to 1.5 mll in his livr she hav radiation and armidex and she can t take chimo , so the doctor decide to continue with armidex and zomita every month and after 9 months the doctor change the armidex by armosin 25 mg , so she have a pain in his body and his back ans she take a treatement for his pain but always tired and rest in his bed somtimes she have a slash hot and cold his ca 15 is 1550 is very high ,she don t eating good and she is tired every day .

so i m very scary to her and i need to know if you have some treatement for his pain she can take it or not ? or what is your advice to her ?

and with armosin it will be okay or not ?

please i m scary

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Nov 21, 2019 07:00AM Jewel259 wrote:

I am sorry ZZZAAAZZZAAA about your mother's diagnosis and discomfort and my prayers are for you also. My situation is different because my cancer has not spread and I was taking aromatase inhibitors for prevention. Your mother on the other hand is most likely to slow the progression. I had a rough time on them and my doctor changed me to tamoxifen. I still have pain, hot flashes, etc. and getting an MRI to r/o bone mets. In your mother's instance with her cancer spreading to her bone and liver, perhaps discussing with her doctor pain control, medication to improve her apetite, and turning the focus to quality of life instead of slowing the progression. I went through surgery and radiation and about the time I finished radiation my 83 year old mother was diagnosed with breast cancer. I discouraged her from taking aromatase inhibitors and discouraged her from radiation. After going through it myself I felt due to her age and other medical conditions the benefit would not outweigh the risks. This will have to be a personal choice, all of our circumstances, although similar, are different. I didn't want my mother to go through surgery and her doctor insisted. She almost didn't make it through. I am sorry you are scared.

Dx 5/2/2018, IDC, Left, 4cm, Stage IIA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Radiation Therapy 6/19/2018 Whole-breast: Breast Surgery 6/20/2018 Lumpectomy; Lymph node removal: Sentinel, Underarm/Axillary Hormonal Therapy 7/22/2018 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 6, 2020 06:32PM Janula wrote:

Hi Carol, i am sorry for your diagnosis. I can tell you my story and experience. I also had a BC in 2015, and 2018 I discovered bone mets in my pelvis, ribs, some back bones... I couldn't walk, I used crutches for 8 months, sometimes wheelchair. I received immediately radiation to my pelvic bone, which helped with pain a lot. I started injection Xgeva every 4 weeks and Tamoxifen (which I didn't take before), all helped a lot, I am relatively back to normal, occasionally in pain but Panadol is enough to help. My oncologist didn't do any chemo for bone mets, it doesn't help for that.... I am Er, Pr + Her2-. Also bone mets are actually easier than mets in soft tissues.

Hope this help and I wish you speed recovery and sending lots of positive energy.


Dx 8/21/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 3/9 nodes, ER+/PR+, HER2- Surgery 10/31/2015 Radiation Therapy 11/30/2015 Whole-breast: Breast, Lymph nodes Dx 4/1/2018, IDC, Stage IV, metastasized to bone Radiation Therapy 5/14/2018 Hormonal Therapy 1/31/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 15, 2020 02:51PM sherbear22 wrote:

Hi, Carol-

I'm sorry to hear about your diagnosis and struggles. I was depressed to learn my BC had spread to my spine, but then my radiation Onc told me that I can live longer with bone mets ONLY, as long as it doesn't spread to soft-tissue organs. She said we can live without healthy bones, but we can't live without functioning lungs, liver, brain, etc., and that makes sense. She said I might survive 8-10 years, and maybe in that time they will have a new med/treatment to help me live another 8-10 years. Pain management is a priority for bone mets patients, so please talk to your doctor about what they can offer you. I'm on Ibrance 125mg, Xgeva and Faslodex, and my pet scans have been excellent for a year now. The best advice I received was: Do what makes you happy! I wish you good luck, Carol.

Today's a Good Day to have a Great Day!
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Jan 15, 2020 03:38PM Moderators wrote:

Dear sherbear22,

Welcome to the BCO community. We are very grateful to you for sharing your story. It means a great deal to our community. We hope that you will stay active here and offer and receive the support that can benefit you and others. We look forward to seeing you around the boards.

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Jan 26, 2020 10:53AM KerryD wrote:

Just found out my Breast cancer has came back and set up home in my spine. The first time around with my diagnosis 11 and a half years ago was a big shock but this time around wasn't too surprised. Just waiting to get a biopsy and see where that goes. There's an old song called “Just Rolling With The Flow". One thing though I've found out when your rolling be sure to be your own best advocate!

Dx 10/2008, IDC, Right, 1cm, Grade 1, 5/18 nodes, ER+/PR+, HER2- Dx 10/2008, IDC, Right, 1cm, Stage IIA, Grade 1, 5/18 nodes, ER+/PR+, HER2- Dx 1/2020, Stage IV, metastasized to bone Surgery Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Surgery Lumpectomy Chemotherapy AC + T (Taxotere) Radiation Therapy Hormonal Therapy
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Jan 26, 2020 12:12PM - edited Jan 26, 2020 12:13PM by Moderators

KerryD, we're sorry to welcome you to this group, but glad you've found us! We're sure you will find plenty of support, guidance and encouragement here.

We send your our best wishes and hope that next treatment plan knocks the cancer back! Please let us know how it all goes. We're thinking of you!

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