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Oct 19, 2019 04:46PM
Similar thing happened to me.
Initial Pet scan showed a teeny tiny hotspot on my liver. They couldn't say what it was just from that, and the ct part of the pet didn't even register the spot. They then set me up with a liver MRI and it was there , at 5mm . It got more confusing because it had characteristics of it being a met, and characteristics that would say not a met. They couldn't biopsy it due to size and location , so they said chemo was the "litmus test" If it responded to chemo, as in got smaller, they said they would determine it was a met. The said if it got bigger, then it was a met. Their criteria for it to be declared something else, was that it had to be the same size and same appearance on the MRI after 3 rounds. So after my 3rd round I went to my MRI , and was told it was even more conspicous as it was the same size, but seemed more faded in the middle .
Pet was ordered and it did not light up at all that time. my breast was also clear after 3 rounds. and thus they said it was a met based on the fact it responded to treatment like my breast did . I'm still not 100 % convinced of what it was so I just focus on the fact that whatever it was , is gone and that's really what matters .
8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH)
9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil)
2/26/2019 Mastectomy: Left, Right
4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall
10/7/2021 Ibrance (palbociclib)
IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH)
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Prophylactic ovary removal
Abraxane (albumin-bound or nab-paclitaxel)