Join Us

We are 224,965 members in 83 forums discussing 163,804 topics.

Help with Abbreviations

Topic: Cancer in cerebrospinal fluid, share some hope?

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Oct 9, 2019 12:55PM

Heya24 wrote:

Hello, I would like to hear how others in this position are doing and maybe get some good news to hope for, if possible. Any news or even just some information to share would be appreciated beyond words!

I haven't logged on in forever (lurk a bit though) and am not entirely sure if this is the right forum, sorry. So, that said, this year the cancer went to my brain (it's stable there) and then into the cerebrospinal fluid (if I remember right I've got a bunch of floating nodules/little tumours and they're putting pressure on my nerves, causing pain and mobility problems. My memory's been crap through this as I'm still kinda shocked, please bear with me).

I'm bedridden. Can't move my legs except the ankles, am very numb and have little muscle control from my stomach down, both hands are very shaky and both arms are weaker than before, but while I can't lift my left arm (can move the rest of it though), my right one I still have full movement in (thank all the gods! I'd be completely helpless otherwise).

I've got an Ommaya Reservoir and am getting treated with methotrexate, I've had two injections so far. Here's to hoping this at least doesn't get any worse!

Thank you for your time!

Dx 6/2015, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 3, 6/6 nodes, ER+/PR+, HER2+ Dx 2/11/2019, IDC, Stage IV, metastasized to brain Dx 9/10/2019, Stage IV, metastasized to other
Log in to post a reply

Page 1 of 1 (5 results)

Posts 1 - 5 (5 total)

Log in to post a reply

Oct 9, 2019 03:06PM godisone wrote:

hey dear. Good morning to you. It's great to know that you have so much gratitude for everything despite the things happening around you. Chemotherapy should be a great option in your case. Talk to your doctor to tackle the side effects of the chemotherapeutic drug and also about how to deal with them. Hope you get well super soon. Keep us posted about your health dear.

Log in to post a reply

Oct 9, 2019 04:55PM Heya24 wrote:

Thank you so much!

Dx 6/2015, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 3, 6/6 nodes, ER+/PR+, HER2+ Dx 2/11/2019, IDC, Stage IV, metastasized to brain Dx 9/10/2019, Stage IV, metastasized to other
Log in to post a reply

Oct 10, 2019 04:06AM Olma61 wrote:

Here is a thread that might help you: https://community.breastcancer.org/forum/8/topics/869288?page=3#idx_65

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
Log in to post a reply

Oct 10, 2019 04:26AM Heya24 wrote:

That's great, thank you so much for this!

Dx 6/2015, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 3, 6/6 nodes, ER+/PR+, HER2+ Dx 2/11/2019, IDC, Stage IV, metastasized to brain Dx 9/10/2019, Stage IV, metastasized to other
Log in to post a reply

Oct 10, 2019 04:39AM Olma61 wrote:

You're welcome. Wishing good results for you! xo

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone

Page 1 of 1 (5 results)