Join Us

We are 224,992 members in 83 forums discussing 163,829 topics.

Help with Abbreviations

Topic: High CA 15-3, scans not showing tumors, MO wants me on Ibrance

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Oct 30, 2019 06:45PM

SerenitySTAT wrote:

I'm glad this new section has been created. I don't know where I fit in anymore. My CA 15-3 has been above normal for almost 2 years. It's been as high as 1386 and currently at 586. I've had multiple scans that haven't found any clear cancer. My latest scan was an abdominal MRI to evaluate an 8 mm lesion on my liver (seen on CT in Aug 2019) that was not present in Apr 2019. The results still weren't ready yesterday, so my MO asked them to read it (at 1 pm). Their response was "It's not straightforward." ??? My MO called this morning saying they didn't finish their reading until 7 pm. He actually disagrees with their findings. They think a spot in my bone needs more evaluation and my liver is ok. The bone area spot is where I've always felt pain from my sciatica that I've had before cancer, and itโ€™s been scanned multiple times. I don't have pain if I'm careful. My MO wants me to start on Ibrance and Xgeva (need insurance authorization first).

Am I Stage IV? Does it make sense to add these new meds? Has anyone seen anything like this? All these scans and tests have been overwhelming.

"Do not overlook the little joys!" (Hesse, 1905) ๐Ÿ’‰๐Ÿ’‰๐Ÿถโ˜•๏ธ๐Ÿ›€๐Ÿ–ผ๐Ÿฅ๐ŸŒฒ๐ŸŽญ Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Page 3 of 3 (69 results)

Posts 61 - 69 (69 total)

Log in to post a reply

Jun 19, 2021 04:41PM SerenitySTAT wrote:

Had my MO appointment yesterday after a month off all cancer meds due to my rash. Good news is that my blood labs are good. CEA is now in normal range. The CA 15-3 went up a few points, but I was worried it would double. Seeing it as measurement error. Bad news is the rash isn't all gone. I don't know what made the rash around my eyes worse. My MO also said my palms look red which I never noticed. I don't have any itchiness so that's good.

I can restart Exemestane, but Ibrance and vaccine are on hold. Next appointment is in 3 weeks.




"Do not overlook the little joys!" (Hesse, 1905) ๐Ÿ’‰๐Ÿ’‰๐Ÿถโ˜•๏ธ๐Ÿ›€๐Ÿ–ผ๐Ÿฅ๐ŸŒฒ๐ŸŽญ Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Jul 13, 2021 07:59PM SerenitySTAT wrote:

Saw my MO last Friday. After another 3 weeks off cancer meds, TMs rose a small amount. I restarted Exemestane on Saturday. My initial rash healed completely, but the remaining rash on my face has a different diagnosis. I don't recall (typical irritated skin rash), but the new ointments seem to help. Ibrance and vaccine still on hold though dermatologist said I could get the vaccine. MO and charge nurse want me to wait. I'll wait. I see dermatology again this Friday. I see MO in 6 weeks.


"Do not overlook the little joys!" (Hesse, 1905) ๐Ÿ’‰๐Ÿ’‰๐Ÿถโ˜•๏ธ๐Ÿ›€๐Ÿ–ผ๐Ÿฅ๐ŸŒฒ๐ŸŽญ Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Aug 23, 2021 04:51PM SerenitySTAT wrote:

Saw my MO today. We hadn't seen my TM numbers yet, but he said he wouldn't be surprised to see my CA 15-3 go into the hundreds since I've been off Ibrance for 3 months. I'm so glad he was wrong. Got home and saw it remained stable! ๐ŸŽ‰ CEA went up a little, but it was never as high as CA 15-3. I'll restart Ibrance 125 mg tonight and see him in a month. If my rash returns, I need to stop Ibrance.





"Do not overlook the little joys!" (Hesse, 1905) ๐Ÿ’‰๐Ÿ’‰๐Ÿถโ˜•๏ธ๐Ÿ›€๐Ÿ–ผ๐Ÿฅ๐ŸŒฒ๐ŸŽญ Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Sep 20, 2021 06:17PM SerenitySTAT wrote:

Had MO appt after completing Ibrance after 3 months off. The appt was done before getting any blood work results. TMs dropped! Neutrophils tanked. Waiting for a reply on whether to delay the next cycle.

After restarting Ibrance I had mild itchiness around my neck. During my off week I had some itchiness and redness in 2 areas. Good that I have a dermatology appointment tomorrow. MO said if the skin reactions continue he would switch me to another med. If my TMs drop into normal range, he would give me a med break. Said I'm not a normal case. Husband agreed too readily. ๐Ÿ˜’





"Do not overlook the little joys!" (Hesse, 1905) ๐Ÿ’‰๐Ÿ’‰๐Ÿถโ˜•๏ธ๐Ÿ›€๐Ÿ–ผ๐Ÿฅ๐ŸŒฒ๐ŸŽญ Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Sep 20, 2021 08:07PM NCYogi wrote:

Hi Serenity,

I just had labs done today too. Even though my TMs are in the normal range, my neutrophils tanked as well. i just had my week off of Ribo/Kisqali. I'll be curious to hear what your doctor decides about your next cycle. I'm holding for another week and will cross my fingers for both of us!

Dx 6/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant), Zoladex (goserelin) Targeted Therapy Kisqali
Log in to post a reply

Sep 20, 2021 09:06PM SerenitySTAT wrote:

Hi NCYogi,

He's ok with another week off of Ibrance. Yay!

I've been taking extra time off Ibrance this year without it having much effect on my TMs. They're lower now than last year.

๐Ÿคž

"Do not overlook the little joys!" (Hesse, 1905) ๐Ÿ’‰๐Ÿ’‰๐Ÿถโ˜•๏ธ๐Ÿ›€๐Ÿ–ผ๐Ÿฅ๐ŸŒฒ๐ŸŽญ Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Sep 20, 2021 10:47PM NCYogi wrote:

Thank you for letting me know. So if I end up with 3 weeks on, 2 weeks off on a regular basis, that's not the end of the world?? ;-)

Dx 6/2021, IDC, Right, 6cm+, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant), Zoladex (goserelin) Targeted Therapy Kisqali
Log in to post a reply

Sep 20, 2021 11:41PM SerenitySTAT wrote:

My MO has said a number of times that I'm not a normal case. ๐Ÿ˜Ÿ Your MO will monitor you to see what works, but you'll see other people here who have settled into a different schedule than typical.

I just finished my 18th cycle of Ibrance. In the first year I would take a few extra days off at the most. My TMs were dropping pretty well. Who knows if they would have dropped faster this year if I kept to the recommended schedule. But I had a rash to heal.

Hope you have great success with your current treatment!

"Do not overlook the little joys!" (Hesse, 1905) ๐Ÿ’‰๐Ÿ’‰๐Ÿถโ˜•๏ธ๐Ÿ›€๐Ÿ–ผ๐Ÿฅ๐ŸŒฒ๐ŸŽญ Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Oct 18, 2021 04:15PM SerenitySTAT wrote:

TMs up a bit, but MO agreed to lower Ibrance dosage to 100 mg. I haven't been fasting, so I need to get that started again. Blood counts are good considering it's the beginning of my off week.





"Do not overlook the little joys!" (Hesse, 1905) ๐Ÿ’‰๐Ÿ’‰๐Ÿถโ˜•๏ธ๐Ÿ›€๐Ÿ–ผ๐Ÿฅ๐ŸŒฒ๐ŸŽญ Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva

Page 3 of 3 (69 results)