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Topic: Looking for support

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Nov 28, 2019 06:10PM - edited Nov 30, 2019 05:35PM by Malinda815

Malinda815 wrote:

Hello, my name is Malinda. Am 30 years old and right now cancer has spread to my livers/right lung/brain/bones .I have lost half sensation of my teeth and my tongue and my voice . my half vocal paralysis. Any one here has similar symptoms? Will it getting any better? Everyday is struggling, it's so hard. When will it over?

Dx 11/2016, DCIS, Left, <1cm, Stage 0, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (IHC) Dx 9/25/2019, IDC, Left, 2cm, Stage IV, metastasized to brain/bone/liver/lungs, ER+/PR-, HER2+ Radiation Therapy Whole-breast: Brain Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab)
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Nov 28, 2019 06:27PM illimae wrote:

Hi Malinda, I haven’t had those symptoms yet but do a search for Brain Mets Sisters, that’s where us brainiacs share our brain stuff.

Heart

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Nov 28, 2019 09:38PM - edited Nov 28, 2019 09:39PM by Malinda815

Thank you illima. I have found the topic. Hopefully someone respond me.

Dx 11/2016, DCIS, Left, <1cm, Stage 0, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (IHC) Dx 9/25/2019, IDC, Left, 2cm, Stage IV, metastasized to brain/bone/liver/lungs, ER+/PR-, HER2+ Radiation Therapy Whole-breast: Brain Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab)
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Nov 29, 2019 03:23AM - edited Nov 29, 2019 03:24AM by Anotherone

hi malinda

I am sorry that you have to deal with it at 30 :(

Hugs


Primary in 2006, metastasis 2019. Sorry can lot log in diagnosis and treatment info properly - it gets jumbled. On Kadcyla now as had progression on H&P Dx 10/10/2006, IDC, Left, Stage IIIC, metastasized to lungs, Grade 3, 4/9 nodes, ER-/PR-, HER2+ Dx 7/1/2019, IDC, Stage IV, metastasized to lungs Chemotherapy 9/16/2019 Abraxane (albumin-bound or nab-paclitaxel) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy External: Chest wall Targeted Therapy Herceptin (trastuzumab)
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Nov 29, 2019 08:57AM Malinda815 wrote:

Hi Anotherone. I had it when I was 28. That was stage 1 and finished chemo I was on Herceptin for one year.. Now it’s back . very bad. Some time I think if I keep doing the Herceptin, it may not back. But it’s too late.

Dx 11/2016, DCIS, Left, <1cm, Stage 0, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (IHC) Dx 9/25/2019, IDC, Left, 2cm, Stage IV, metastasized to brain/bone/liver/lungs, ER+/PR-, HER2+ Radiation Therapy Whole-breast: Brain Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab)
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Dec 25, 2019 09:26PM AMLMom wrote:

Hi Malinda, I am stage I. I hope you don’t mind me posting. I have read some of your posts and I just wanted to tell you that I am very sorry that you are having to deal with all of this, particularly at such a young age. It’s not fair and my heart breaks for you. I wish you some relief from all that you are going through. I wish you peace, health, and happiness. Hugs

Dx 11/2018, DCIS/IDC, Left, 6cm+, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 2/13/2019 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes

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