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Topic: Afinitor and Aromasin

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Dec 6, 2019 09:52AM

Charlotte65 wrote:

Has anyone had experience with these two drugs? I was just prescribed them and the side effects sound quite serious.

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Dec 6, 2019 11:02AM ann273 wrote:

Hi Charlotte,

Afinitor is alkways scary in the beginning but I was on it for 3 years with minimal to no side effects once we adjusted the dose. Work with your MO to find a dose that works for you. I was on 7.5 mg even though 10mg is recommended. Take a probiotic everyday. Thats what completely cut down mouth sores for me. If you have a P13K and FGFR mutation, this is one of the most effective treatments. The side effect profile is scary but there is high possibility you will not have most of them. I led a normal life in complete remission those 3 years. Hope you have the same if not better luck with this treatment.

Hugs,

Ann

Dx 8/1/2013, IDC, 5cm, Stage IIIC, Grade 2, 11/23 nodes, ER+/PR+, HER2- Chemotherapy 9/1/2013 Halaven (eribulin) Chemotherapy 11/15/2013 FAC Surgery 2/12/2014 Hormonal Therapy 4/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/3/2015, IDC, Stage IV, Grade 2, ER+/PR-, HER2- Targeted Therapy 6/1/2015 Afinitor (everolimus) Hormonal Therapy 6/1/2015 Aromasin (exemestane) Targeted Therapy 7/31/2018 Ibrance (palbociclib)
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Dec 8, 2019 06:01AM Moomala wrote:

Hi Charlotte! I'm in month two of A/A and doing okay. I would say I'm adjusting to the drug a bit still. SE's for me are largely fatigue and GI issues at the moment. Pop up to the search bar and type in Afinitor/Aromasin 2013 and you'll find a nice long discussion thread about it. I am taking probiotic each day and just be sure you do the dexamethasone rinse as directed to avoid mouth sores. As far as fatigue, it's there but I'm also still working part-time and can continue all my activities. So it's not holding me down much. I'm on 10mg Afinitor so far. Hope to see you on the Afinitor thread!

Dx 3/1995, IDC, Right, 2cm, Stage IIB, Grade 1, 1/17 nodes, ER+/PR+ Dx 3/2019, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane) Targeted Therapy Afinitor (everolimus) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)

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