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Topic: Stage iv with new symptoms

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: May 12, 2020 09:03AM

DaveReger wrote:

My wife has had stage iv for 6 years now. Recently she has started sleeping a lot (18 to 20 hours a day) her pain level has also increased. The oncologist, who she trusts totally, says that there are no new tumours and the ones she has are the same as 6 years ago. I am so worried and she wont discuss it with me.

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May 12, 2020 12:54PM Moderators wrote:

Hi Dave, and welcome to,

First, we're so very sorry to hear of your wife's diagnosis, and her recent changes. We're glad you've found us though, as you'll see our Community is an incredible source of advice, information, and support -- we're all here for you both!

You're sure to get some responses here soon from our amazing Stage IV members. In the meantime, if you'd like, check out the For Family & Caregivers of Loved Ones With a Stage IV Diagnosis forum, where others who have a stage IV loved ones share their experiences, support each other and get support.

As well, for your privacy and security, we'd like to suggest that you consider editing your username to something a little more anonymous, rather than your first and last name, if that is the case. You can edit your username by clicking the Settings tab in the blue navigation bar on the left of your screen, or My Profile in the top right of your screen, and clicking Edit next to your username. Don't forget to save your changes and remember your new username for log-in.

We hope you get some support soon. Let us know if you need any help at all, and welcome again!

--The Mods

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May 12, 2020 07:59PM KBL wrote:

Hi, Dave. I see no one has responded yet, except for the moderators. I just wanted to say I’m sorry for what you’re going through. Could it be depression? I know my husband hates when he can’t fix things for me. I’m sure you want to help. Hopefully she’ll come around and let you know what she’s feeling.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/19/2021 Faslodex (fulvestrant) Chemotherapy 9/26/2021 Xeloda (capecitabine)
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May 12, 2020 11:09PM finallyoverit wrote:

Hi Dave,

I also wanted to chime in here.. I started a thread last night on the stage iv forums about feeling off kilter since all of this COVID-19 stuff started. Many folks have answered they feel the same way. Maybe she is just processing that in light of her diagnosis? I’ve noticed I’m more tired and want to sleep more. I think it’s self preservation for me.. I’m exhausted because this is all rattling around in my brain.. sleeping is a good way to pass time and not have to think about it. I hope she opens up to you but please know she may not be able to even explain it yet. I’m struggling putting what I’m feeling in words.

Welcome to the forums. There are a lot of very smart and caring people here.


Dx 10/2011, IDC, Stage IIA, 0/4 nodes, ER+/PR+, HER2- Dx 5/2017, Stage IV, metastasized to bone

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