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Topic: 9 years metastatic

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jun 1, 2020 02:29AM

gonegirl wrote:

I came on the board because I was freaking out about a pain in my rib. (Is it back? Oh, my god, I'm toast. This is it. I'm dead. Gotta give my stuff away. Find a new wife for my husband. You know the drill.)

Anyway, when I read through other people's posts I felt this weird thing, hope. So many have been going along, doing what needs to be done, surviving, living with metastatic breast cancer.

Then I thought maybe by talking about how I'm still still here 9 years later (first felt symptoms June 2011), I can do the same for someone else.

It's been a long road, sometimes smooth, sometimes rough. I was very lucky that the mets responded to Taxol and Herceptin - my liver was covered. Had a flare up maybe 18 months after Taxol when was just on Herceptin, then got 5 years out of Kadcyla. I only stopped Kadcyla when I began to react to the infusions. Now I'm on Herceptin and Perjeta.

Reading what others posted reminded me there are other drugs to try and I can deal with side effects, although I work hard to minimize those. So I think I'll take the personal ad I wrote for my husband down and chill a bit more. I really appreciate everyone's wisdom here. Peace to you all. We sure deserve it.

Susan

uppitycancerpatient.blogspot.com Dx 1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+ Targeted Therapy 2/9/2012 Herceptin (trastuzumab) Chemotherapy 2/9/2012 Taxol (paclitaxel) Surgery 11/5/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Targeted Therapy 12/7/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/6/2015 External: Bone Targeted Therapy 9/11/2018 Herceptin (trastuzumab) Targeted Therapy 9/11/2018 Perjeta (pertuzumab)
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Jun 1, 2020 10:36AM exbrnxgrl wrote:

Susan,

Good to see you and congratulations on your milestone! I’m almost at the nine year mark as well. We are called outliers or exceptional responder. I can’t wait for the day when we’re called typical or better yet, cured! Take good care

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Jun 1, 2020 07:45PM BevJen wrote:

Susan,

Thanks for posting your story. It is indeed a beacon of hope for everyone.

I can also add to hope for others as well. I was originally diagnosed in 2003. I had my first metastasis (single site, to my cervix) in 2006. I'm still here! No issues from 2006-2018, and only on letrozole,when my tumor markers started going up. In May 2019, I was diagnosed with mets to my liver and now also bone mets, but all is stable. And I'm still here!

I wish, as Exbrn Girl said, that we will all be cured.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Radiation Therapy for Bone Mets to Femur (Both sides) April 2021 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Jun 1, 2020 07:50PM gonegirl wrote:

BevJen. That's wonderful you've been doing so well

uppitycancerpatient.blogspot.com Dx 1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+ Targeted Therapy 2/9/2012 Herceptin (trastuzumab) Chemotherapy 2/9/2012 Taxol (paclitaxel) Surgery 11/5/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Targeted Therapy 12/7/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/6/2015 External: Bone Targeted Therapy 9/11/2018 Herceptin (trastuzumab) Targeted Therapy 9/11/2018 Perjeta (pertuzumab)
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Jun 2, 2020 04:40PM cowgal wrote:

You ladies are inspiring. Thank you to you and others on here that lead the way for us newer stage IV ladies who hope to also have success with treatments and hopefully a cure will come soon.

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Jun 2, 2020 05:35PM aprilgirl1 wrote:

You ladies are inspiring, thank you for posting! My goal is to be an outlier with you, and I am hoping and praying that a cure for us will come soon!

recurrence in lymph nodes (superclavicle/mediastinal)"You can do it like it's a great weight on you, or you can do it like it's part of the dance." Ram Dass Dx 11/7/2008, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 11/13/2019, IDC, Left, Stage IV, metastasized to other, ER+/PR+, HER2- Surgery Lumpectomy: Left Hormonal Therapy Femara (letrozole) Chemotherapy CMF Radiation Therapy Whole-breast: Breast Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Jun 5, 2020 03:55PM - edited Jun 6, 2020 01:12AM by GiGiL

This Post was deleted by GiGiL.
Dx 5/6/2011, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2-
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Jun 6, 2020 12:15AM exbrnxgrl wrote:

GiGiL,

Since this a thread celebrating gone girls 9 year anniversary, I’ll give you a quick description of how a PET goes.

- You may have some dietary restrictions before the scan and you will fast for a number of hours prior.

- You will receive an intravenous injection of the nuclear trace materials.

- My facility has patients lie down in a dark room for an hour. Every facility has some version of “quiet time”.

- Then s an itself takes about 20 minutes. The machine is quiet and the tube seems shorter than an MRI machine, so not too claustrophobic feeling.

You can pm me with questions but let’s stick to celebrating on this thread

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Jun 6, 2020 01:08AM - edited Jun 6, 2020 01:12AM by GiGiL

This Post was deleted by GiGiL.
Dx 5/6/2011, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2-
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Jun 6, 2020 09:10AM illimae wrote:

Congrats 🎉

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 14, 2020 07:14PM arissasmom wrote:

What a wonderful and inspiring story!! Thank you for sharing!

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Aug 15, 2020 08:58PM DivineMrsM wrote:

gonegal, just came across your post from June, it’s always good to “see” you and love hearing of your longevity living with this disease. Hope is a beautiful thing to share!


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Aug 17, 2020 11:21AM gonegirl wrote:

Divine, it is so good to see you too. I'm glad we're both still here.Smile


Susan

uppitycancerpatient.blogspot.com Dx 1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+ Targeted Therapy 2/9/2012 Herceptin (trastuzumab) Chemotherapy 2/9/2012 Taxol (paclitaxel) Surgery 11/5/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Targeted Therapy 12/7/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/6/2015 External: Bone Targeted Therapy 9/11/2018 Herceptin (trastuzumab) Targeted Therapy 9/11/2018 Perjeta (pertuzumab)
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Sep 24, 2020 08:22AM tulumsoto wrote:

Thank you for posting your story.

I have been diagnosed with stage iv breast cancer sept 23rd.

I have 4 small masses in my right breast, node in collar bone and several other nodes

found throughout body including one in a lung. It has spread to bone in several places.

No pain.

I feel like my life is over.

the dr said it is fast growing and nothing i could have done to discover it sooner.

i feel guilty for not getting routine mammos due to the pain they cause.

i feel like the diagnosis is my punishment for my lack of care to my self.

I am so scared. I feel lost. I feel defeated.

I get port in today and start chemo next week.

I read a post about "Carmelle's Success Stories thread has been a life saver!" from a

post I read and decided to post something because i am falling apart. i suffer with OCD

so as you can imagine, i am all over the place.

I am so scared.

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Sep 24, 2020 11:22AM Chicagoan wrote:

Tulumsoto,

I am glad you saw this thread and hope you feel encouraged by Gonegirl's 9 years of living so far with MBC. I can relate to your feelings. I was diagnosed 4 years ago with MBC and was at first angry with myself for not taking better care of myself. Well now all of that has changed. I feel much better now and have made taking care of myself a top priority in my life. If you like to read, I suggest this book. "Cancer as a Turning Point" by Lawrence LeShan. It has lots of encouraging stories and exercises to help you figure out how to change your life for the better after a cancer diagnosis.

I hope your treatment goes well. As soon as I could tell my treatment was working, I started to have a lot more hope and also felt better. None of us knows how much time we have but the book has helped me live the days I am given with more joy and peace. Best wishes to you. May God bless you.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/26/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/26/2016 Ibrance (palbociclib)
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Sep 24, 2020 12:37PM NineTwelve wrote:

Congratulations on nine years! Well done, and may you thrive another nine, and beyond!

12/15/20 - Progression to liver. Tx changed to Xeloda. Dx 9/12/2014, IDC, 4cm, Stage IV, Grade 2, mets, ER+/PR+, HER2- Hormonal Therapy 9/15/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 9/30/2014 Dx 7/2016, IDC, Stage IV, metastasized to bone/lungs Hormonal Therapy 8/15/2016 Faslodex (fulvestrant), Zoladex (goserelin) Targeted Therapy 8/15/2016 Ibrance (palbociclib)
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Sep 28, 2020 04:47PM gonegirl wrote:

This is terrifying stuff. Frankly, it took me a few years to finally just get tired of being scared and be at least less scared. I also got emotional support. I worked with a counselor but also contacted Imerman Angels and Sharsheret. They were pivotal. But there's so much more help out there.

I hope treatments are going well as they can go and you're finding some peace.

Susan

uppitycancerpatient.blogspot.com Dx 1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+ Targeted Therapy 2/9/2012 Herceptin (trastuzumab) Chemotherapy 2/9/2012 Taxol (paclitaxel) Surgery 11/5/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Targeted Therapy 12/7/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/6/2015 External: Bone Targeted Therapy 9/11/2018 Herceptin (trastuzumab) Targeted Therapy 9/11/2018 Perjeta (pertuzumab)
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Mar 15, 2021 11:06PM hoisholt wrote:

I’m new to this having been diagnosed with metastatic in April of 2020 one year after my mastectomy and a little less than five years from my lumpectomy (same breast). Ibrance and faslodex and the cancers have not grown although I may have a liver lesion but it’s too small to biopsy. I seem to be ahead of the game as far as side effects are concerned. But I am obsessed with this disease and trying hard not to be. My support is a wonderful daughter and I fear I will overwhelm her with my concerns so try not to involve her with every aspect. I see death at every turn so am grateful when I hear these stories of a life beyond a few months. I see my oncologist every two months when I get scans. Beyond that I have little support. It seems everyone including me would prefer not talking about it. Does it get easier as we live with this disease longer.

Targeted Therapy 5/17/2020 Ibrance (palbociclib)
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Mar 15, 2021 11:43PM moth wrote:

hoisholt, welcome to the forum. Are your mets only in your liver so far? We have a fairly active liver mets thread here https://community.breastcancer.org/forum/8/topics/...

there is also Mel's living room where we hang out https://community.breastcancer.org/forum/163/topic...

& many other threads to discuss all sorts of issues. There is lots of support here!

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Apr 2, 2021 04:29PM amontro wrote:

Gonegirl and tulumsoto -

I just came across these posts. I was diagnosed over 12 years ago, from, the start, with stage 4, mets to lung and spine. I started on herceptin and I'm still on it every three weeks. There have been no changes in my mets, so far. I had a major problem with Zometa (for bones), and you can read about it in other posts if you want.

Many of us question ourselves when we're first diagnosed and have been told we don't have long to live. We can only live each day as best we know how. Sometimes there is a purpose in our being here, and it is an interesting journey to find out why.

My best to you and my other fellow "outliers".


Dx 9/2008, Stage IV, Grade 3, mets, HER2+
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Apr 28, 2021 08:38PM Nonni2015 wrote:

Hello -

I was diagnosed with Triple Negative BC in January, 2019; had surgery (mastectomy, no reconstruction); 18 lymph nodes removed, chemotherapy (started w/Adriamycin but couldn't tolerate so had to change it up, had Taxol as well as methotrexate and florucidicile (may have spelled wrong) and then 6 weeks of 5 days per week radiation. I had a PET scan end of October 2019, Deemed cancer-free, no sign of disease, no metastasis. Now, 18 months later, recurrence. Surgery not an option, oncologist recommending oral chemo or oral immunotherapy, possibly combining both, that is IF the cancer has stayed local. Today, I had a PET scan to determine that...I pray with everything I have that it has, in fact, stayed local. The results are posted on my medical record in the patient portal. I just can't bring myself to look at it. I have another appointment with the doctor next week where he will go over everything. I can wait for the results until then, if I look now and it has spread elsewhere, I feel I will go crazy. I live alone and this is very hard to deal with.

For those that are experiencing metastatic bc and learning to live with it, how do you navigate life? I want so much to see my granddaughters grow up (one is 5, one is 9 months and the other is 6 months) Realistically, I know this is a stretch to think I might. I didn't tolerate the chemo well the first time, I really can't fathom having to deal with it again. If anyone would like to share their experience with living with metastatic breast cancer, I would greatly appreciate it. Thank you.

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Apr 28, 2021 08:46PM gonegirl wrote:

Oh, Nonni. I am so sorry you are going through this. Besides the disease, the biggest challenge for me has been how to stay sane in the middle of all of this, especially in the uncertain scan times. I've learned to schedule the doctor visit for just after the scans, maybe 2 days later. The other thing I do is call for support (friends, counselors, my Imerman Angel), do what I can to distract myself with activities, make every effort to just deal with the moment of that day (one minute at a time), and use Ativan as needed. As Pete Davidson said on SNL once, ain't no shame in the medicine game.

I'm praying your news is better than expected and I'm just so sorry you are going through this.

Susan

uppitycancerpatient.blogspot.com Dx 1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+ Targeted Therapy 2/9/2012 Herceptin (trastuzumab) Chemotherapy 2/9/2012 Taxol (paclitaxel) Surgery 11/5/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Targeted Therapy 12/7/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/6/2015 External: Bone Targeted Therapy 9/11/2018 Herceptin (trastuzumab) Targeted Therapy 9/11/2018 Perjeta (pertuzumab)
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Apr 28, 2021 09:05PM moth wrote:

nonni, I hope your PET scan news is good & that's it stayed local and not spread anywhere. I'm a mTNBC & the sad fact is, metastatic TNBC is one of the suckiest of all diagnoses. If that ends up your dx, I suggest popping into the Triple Neg Stage IV thread. The thing is, even though we're not statistics, our tumor profiles guide our treatments (and also do tend to predict our prognosis).

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Jun 24, 2021 07:24PM - edited Jun 24, 2021 07:37PM by Positive2strong

gone girl

Thanks for the encouragement. I was just diagnosed Stage IV liver lungs bone

Today they did a liver biopsy

Still waiting on the biopsy results but I can't not put any weight on my right leg

Now they say there is a tumor there and I will get radiation tomorrow.

My primarily meeting with onc after ct scan she said they are so many new therapies in last 2 years,

Said I would get a shot and be put on pills and of course radiation.

I have told my son but no one else

I have read stage IV at the beginning has beeper data at longer survival

My pain leg started Jan and just got worse

I started so many cleaning out projects then and then couldn't complete them y house is like a war zone

I wonder too about picking out a gravesite, and inquiring about inheritance tax and throwing out so much paperwork just have been at the cancer center every day

I so congratulate the anniversaries of the woman . It gives me hope

Linda

Dx 8/23/2016, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 10/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/22/2021, Stage IV, metastasized to bone/liver/lungs, ER+ Radiation Therapy
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Jun 24, 2021 07:35PM gonegirl wrote:

Positive2, it is overwhelming. I hope the radiation helps with the pain.

For me I had a Will and advance directive before diagnosis - a lot of death in my family prompted me.

I also did a lot of death cleaning but had to stop at a certain point because it was depressing me. Still... I know how you feel. Maybe call the folks at Imerman Angels to get a mentor. Or call LBBC or other organizations that provide support. This is rough and getting help is key.


Susan


uppitycancerpatient.blogspot.com Dx 1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+ Targeted Therapy 2/9/2012 Herceptin (trastuzumab) Chemotherapy 2/9/2012 Taxol (paclitaxel) Surgery 11/5/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Targeted Therapy 12/7/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/6/2015 External: Bone Targeted Therapy 9/11/2018 Herceptin (trastuzumab) Targeted Therapy 9/11/2018 Perjeta (pertuzumab)
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Jul 24, 2021 08:06PM a-friend wrote:

Just started this new journey about a month ago. I have it in my eye, brain and lung. Came from breast cancer in 2014. Not real savvy with chat sites, but I’m excited to find people to talk to so I cannu

Linda Amendt Dx 6/2021, Left, Stage IV, metastasized to brain/lungs/other, Grade 3, ER- Dx 6/17/2021, Left, 1cm, Stage IV, metastasized to brain/lungs/other, Grade 1, PR- Radiation Therapy 7/12/2021
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Jul 24, 2021 08:31PM - edited Jul 24, 2021 10:19PM by exbrnxgrl

a-friend,

Welcome, though sorry that you're joining us. To help you get familiar with bco, here are a few tips:

-Make your signature line public. This will allow anyone who reads your posts to know about your bc treatments so far which can help others respond to you as they will know your background.

- Check out the entire stage IV forum. There are existing, active threads on almost every stage IV topic you can think of. We have very active threads for brain and lung mets.

- Do check the date of the last post made to a thread before responding. Some threads have been inactive for years and if you are asking a question of a member, there is a chance they are no longer active on bco. You can also check the latest activity date to see if the member has been active lately.

This thread was started by a member who has been living with mbc for 9 years. I hope you reach that mark and many more! Take care.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Jul 24, 2021 08:39PM a-friend wrote:

Thank you .


Lind

Linda Amendt Dx 6/2021, Left, Stage IV, metastasized to brain/lungs/other, Grade 3, ER- Dx 6/17/2021, Left, 1cm, Stage IV, metastasized to brain/lungs/other, Grade 1, PR- Radiation Therapy 7/12/2021

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