Join Us

We are 224,976 members in 83 forums discussing 163,816 topics.

Help with Abbreviations

Topic: Pls help. Happy words needed 😊

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Jun 20, 2020 02:07AM

dlittkemann wrote:

I am writing because... long story short I have bone mets and have had severe pain jus this past

Week. MO said this is very concerning for me. I said we'll always hope and this is first try for any Des for bone mets. He depressed me so much

On morphine for pain now. Also MO told me that w immunotherapy things get worse before better I just need hope. Pls. From dlittkeman

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
Log in to post a reply

Page 1 of 1 (3 results)

Posts 1 - 3 (3 total)

Log in to post a reply

Jun 20, 2020 10:05AM cyathea wrote:

dlittkemann I’m sad to hear you have bone mets and pain. I pray that you will have strength and hope. These treatments are hard and no trite sayings about fighting this will help.

Know that we hear you and empathize with what you feel today and hope things get better.

Sometimes we hide our struggles in order to spare our friends and family from our troubles and this is a generous thing to do, but this forum is a place to share these burdens and get renewed from the love and comfort of sisters who can exactly relate.

A very good friend of mine is a retired doctor (psychiatrist). She has suffered from constant pain for many years. She is a poet and somehow she still manages to write and have hope. Judy’s poem linked below is a beautiful way to express the sense of loss that we can sometimes feel when pain, physical or emotional, can cloud our lives that others may never see because they only see our postcard outer-selves

Notes on a Postcard

I love that she ended the poem with a statement that in the midst of everything, hope can survive.

no divining from this postcard— 
its impressions in May— 
what dreams got lost, how hope survived.
Dx 6/17/2019, DCIS/ILC, Right, 5cm, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2+ (FISH) Targeted Therapy 8/1/2019 Perjeta (pertuzumab) Chemotherapy 8/1/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 10/8/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 10/10/2019 Herceptin (trastuzumab) Surgery 3/17/2020 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 4/15/2020 Other Radiation Therapy 5/31/2020 3DCRT: Breast, Lymph nodes, Bone Hormonal Therapy 8/20/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
Log in to post a reply

Jun 20, 2020 11:33AM orangeflower wrote:

I'm thinking about you and wishing you relief from pain. People care about you, even strangers. <3

Dx 1/29/2020, DCIS, Left, 4cm, Stage 0, Grade 2, ER+/PR+, HER2- Dx 1/29/2020, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Dx 1/29/2020, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 2/25/2020 Mastectomy: Left, Right Surgery 6/14/2020 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Log in to post a reply

Jun 21, 2020 08:49PM cookie54 wrote:

I am so sorry that you are suffering with bone pain from mets. I pray you get relief soon. Sending hugs and positive thoughts your way. <3

Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/13/2016 Mastectomy; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Chemotherapy 10/13/2016 AC Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine) Surgery 10/18/2020 Lymph node removal: Right Radiation Therapy 11/22/2020 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy Xeloda (capecitabine)

Page 1 of 1 (3 results)