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Topic: Anxiety and tired of “waiting”

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Sep 7, 2020 06:49PM - edited Sep 7, 2020 06:50PM by Mquara

Mquara wrote:

I just cannot get it out of my head that my battle is not over. I know this is crazy, I acknowledge that it is not healthy. My psychiatrist knows I am having a hard time moving on.

I still go for full checkups every three months and every three months there's OF COURSE the relief that everything looks good, but there's always a small bit of frustration maybe, I don't know how to describe it, that I have to continue to wait longer for round two.

I was diagnosed at 46, almost 47. My mom was the only other person I know that battled cancer(and lost) and in my head this is how this goes. She was diagnosed at Stage IV with brain Mets at the age of 52 and she passed away 2 years later at 54.I am now 50.

In addition to cancer, I have struggled my entire life weigh my weight and am morbidly obese.

Since December I have lost 46 lbs. literally with zero effort and no exercise at all. In fact I just had Lumbar nerve ablation the end of July because I was in so much pain I just moved when I had to..from car to chair, chair to chair etc.

Now here I am wondering WTF is going on. I am half excited at this weight loss, it's the most weight I have ever lost in my life, otherwise I feel fine.... now I am upset that I basically “wished"(?) Myself into a met, recurrence, secondary cancer. Ugh.

The mental struggle is very very real. Yes I am medicated :) it's just hard. Being the daughter of a stage IV and only knowing that pattern and then being diagnosed yourself. It's just so hard.

Anybody have any experience with any of this? The unexplained weight loss with no other obvious symptoms? The mental struggle of thinking it's not over or focusing more on somebody else's battle and thinking that is how your battle will go as well? Ugh.

Dx 2/3/2017, IDC, Right, 4cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR+, HER2- Surgery 2/22/2017 Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 3/28/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/26/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/13/2017 Femara (letrozole)
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Sep 24, 2020 01:56PM Still-me40 wrote:

hi mquara,

I used to have some of the feelings you describe about waiting for the cancer to return. For me it became disruptive to me and was stopping me from living my life. I did seek the help of a psychologist. In this whole cancer battle seeing the psychologist has been the best. I’ve learnt not to dwell on the past or the what if’s and my anxiety no longer controls me. I hope you can find someone or something that helps you too.

For me I try to remember that I walk my own path. My life is for me to live and I don’t know when the end will come. But I do know I’m not wishing for it to end just yet.

Wishing you well xo

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Sep 24, 2020 03:38PM Spookiesmom wrote:

Not to sound flip, nobody has an expiration date stamped on forehead. We just don’t know. You could get hit by a bus, or have a heart attack today.


You could live for a very long time cancer free.

And IF it does come back, you will deal with it. In the mean time, don’t let cancer take anything more away from you than it already has. Start a new hobby. Get a pet. Volunteer somewhere. You can do this.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3

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