Feb 19, 2021 10:51PM moth wrote:
Hi, sorry you find yourself here. That really sucks, esp when you're so close to the 5 yr mark when the recurrence risk for tn supposedly goes down :(
I think you don't necessarily need brain scans unless you're symptomatic. I had one only because I enrolled in a trial and they wanted one - otherwise I wouldn't have had one.
I think my questions would be about staging & whether they consider this a localized recurrence (fingers crossed nothing else on the PET scan); whether they'd consider a wider excision + radiation as treatment; whether you qualify for immunotherapy + chemo. Immunotherapy (tecentriq, keytruda or trodelvy are essentially the best bet for triple neg if your tumor expresses PD-L1. This might be the test they're waiting for).
I think further than that would be getting ahead of yourself. You need to know your scan results and where they're staging you now as that will determine a lot of the decisions.
hang in there
Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the OddsDx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone