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Topic: TN breast cancer returned have questions

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: Feb 19, 2021 10:11PM

Brneyegrl6608 wrote:

I am almost 4 years out from original TN diagnosis. I had a lump on my cancer side in September of 2020 that I had an ultrasound on and it was diagnosed as a sebaceous cyst. It grew a little so I had my dermatologist remove it. Turns out it’s TN breast cancer again. I’m waiting for a PET scan to see if it is anywhere else. I’m in absolute shock and so scared right now. I guess my question is what to expect? What questions should I be asking? Besides PET scan, should I be doing a brain MRI too? They will do genetic testing on my tumor so I will know what chemotherapies will work best. I just want to be prepared on what I should be asking at my appointment

"Life is eternal. We have stopped for a moment to encounter each other, to meet, to love, to share. This is a precious moment. A little parenthesis in eternity." Dx 3/29/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 4/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy AC + T (Taxol)
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Feb 19, 2021 10:51PM moth wrote:

Hi, sorry you find yourself here. That really sucks, esp when you're so close to the 5 yr mark when the recurrence risk for tn supposedly goes down :(
I think you don't necessarily need brain scans unless you're symptomatic. I had one only because I enrolled in a trial and they wanted one - otherwise I wouldn't have had one.

I think my questions would be about staging & whether they consider this a localized recurrence (fingers crossed nothing else on the PET scan); whether they'd consider a wider excision + radiation as treatment; whether you qualify for immunotherapy + chemo. Immunotherapy (tecentriq, keytruda or trodelvy are essentially the best bet for triple neg if your tumor expresses PD-L1. This might be the test they're waiting for).

I think further than that would be getting ahead of yourself. You need to know your scan results and where they're staging you now as that will determine a lot of the decisions.

hang in there

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone

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