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Topic: Back pain that get worse at night

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

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Posted on: Mar 25, 2021 03:37PM

RubySlips wrote:

Good morning everyone. It’s been years since I’ve been active on this site, and honestly was hoping it would stay that way. Unfortunately a combination of symptoms and google have paralyzed me with fear yet again.

I was hoping anyone that has had metastasis to the spine could tell me about their experience. As for me, I woke up about a week ago with an aching in my lower right back. I thought kidney and maybe kidney stones, but it got better throughout the day. Then over the next few days it was sometimes worse, sometimes better. Mainly just hut with certain movements like twisting. However, the last two mornings I’ve been woken up by the pain and it’s way intense and leaves me with shortness of breath. Then it gets better when I get up to walk around, and again only hurts when I twist and stuff. Google told me that’s nocturnal back pain and probably from a spinal tumor. Anyone else have similar symptoms that indicated metastasis?

I have a call in to my doctor’s office to start the testing procedures, but I know what a waiting game that can be. I’m trying not to freak out but...well...it’s what I do

Dx 3/28/2016, IDC, Left, 2cm, Stage IIB, ER+/PR+, HER2+ Chemotherapy 4/11/2016 AC + T (Taxol)
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Mar 25, 2021 06:11PM moth wrote:

It could be so many things....I know the worry is always with you but I'd not panic yet. Fwiw, all the times I've had pain, including severe lower back pain that barely responded to muscle relaxants and I was sleeping with heating pads and propped in one position because if I moved I got shooting pains.,...all that was not mets & it improved following physio and massage.

My actual spinal met showed up on a scan and I have never had any pain from it. I mean that doesn't mean anything though - some people's spinal mets DO cause pain so I really don't think you can extrapolate much from our experiences here.

btw, kidney stones can present like what you're saying so they're in the game too - movement affects them.

See your doctor and let's see what they say. Stay busy as much as you can! I hope you don't have to wait long!


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Mar 27, 2021 01:40PM RubySlips wrote:

Thank you so much for taking the time to reply. I did get in to my doctor Thursday and have an MRI scheduled for Monday and follow-up doctor appointment Tuesday. It feels very fast, just like it did when I got my initial diagnosis almost 5 years ago to the day (March 28th!) Like they already know. 😣

Dx 3/28/2016, IDC, Left, 2cm, Stage IIB, ER+/PR+, HER2+ Chemotherapy 4/11/2016 AC + T (Taxol)

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