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Topic: Tumor growth during chemo

Forum: Stage IV/Metastatic Breast Cancer, Open to All To Contribute —

Topics here are started by members with a Stage IV/Metastatic Breast Cancer diagnosis, but open to all members to contribute to discussions. Please note that there is a separate forum, Stage IV/Metastatic Breast Cancer ONLY, where topics are open only to those members.

Posted on: May 15, 2021 09:17AM

CaroB wrote:

I was initially diagnosed as stage 3. After surgery and chemo, I went for scans to prepare for radiation - and a new tumor was found in a sub clavicle node. This was not on original scans . I was reclassified to stage 4, although the BC nurse said that it was borderline, as some onc view subclavicle as a distant metastasis and others don’t - but my insurance company accepted this at review. My onc who was amazing, said that this indicated the chemo didn’t work as there should be no change during treatment and this was not apparent in per treatment scans- a 1 in a thousand occrence She felt that this was a really serious setback. I then emigrated to a different continent. 7 years later I still have 6 monthly scans. But my onc here, whom I also think is amazing, stated that while my treatment was exactly what he would have indicated he is certain that the sub clavicle node was present prior to starting chemo and was missed. I truly don’t know if I am stage : or stage 4 and while it shouldn’t matter - I’d love to know what I’m up against. Has anyone else a) had a sub clavicle met NOT classified as stage 4 and b) had a new tumor during chemo ( note that radiation blasted it to smithereens!

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May 15, 2021 09:40AM Moderators wrote:

Hi CaroB, and welcome to Breastcancer.org!

We're sorry to hear of your diagnosis, but really glad you've found us. You're sure to find our Community an amazing source of advice, information, encouragement, and support -- we're all here for you!

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May 15, 2021 12:17PM MSWife wrote:

a subclavicular node on the same side as your cancer is typically classified as stage 3. I agree there is a reasonable chance that it might have been missed initially and it would be hard for anyone to go back and compare scans ifyou’re living on a different continent now.

Your post indicates you’re 7 years out? That is great news and probably indicative of ‘cure’ with your initial treatment if your surveillance scans are all clear.

Hope this helps!

A member to gather info for my husband ❤️ Dx 3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, 18/20 nodes, ER+/PR+, HER2- (IHC) Surgery 3/25/2021 Lymph node removal: Left, Sentinel; Mastectomy: Left Chemotherapy 4/26/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 8/19/2021 Lymph node removal: Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall

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