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Sep 25, 2021 10:10PM
Sep 25, 2021 10:17PM
Yes, KBL, hopefully your new drugs will put you back to eating normally and giving you a good long time of nothing going on.
Nina, reading that nothing showed on your FES PET made me think of some clinical trials like this one:
ClinicalTrials.gov Identifier: NCT00602043
"This phase II trial is studying how well F-18 16 alpha-fluoroestradiol (FES) imaging works in predicting response to first-line hormone therapy in women with hormone receptor-positive metastatic breast cancer. Diagnostic procedures, such as FES imaging, may help predict how well patients will respond to hormone therapy and may help plan the best treatment."
I believe this is the theory they are testing: If this patient's cancer does not show on FES PET, it might not be estrogen-driven (even if ER+ on pathology), so hormonal therapy might not work. So I'm thinking maybe the results you got may provide some useful input for the discussion about what treatment to use next. You might mention that trial to your onc.
2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2-
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)