Topic: Covid-19?

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Mar 11, 2020 10:31PM

Posted on: Mar 11, 2020 10:31PM

yuuki wrote:

Increasingly, it's feeling like the elephant in the middle of the room. So, I thought I would open a thread where we can air our concerns, frustrations, fears, and nervous humor about the SARS-CoV2 virus and give each other support. Do you work, and can you work from home? Kids in school? Are you practicing "social distancing" and to what degree? Are your family members and caregivers doing the same? What are the practical considerations and concerns you deal with on a daily basis? Is there an outbreak near you?

I'm hoping we can come here to support each other, commiserate, and get through it together. It would certainly help me.

Blessings and waves - from 6 feet away - to all of you.

Yuuki

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Mar 13, 2020 08:52AM erento wrote:

There is something wrong with the site when I load it. It drops Italy, Iran and S. Korea and shows a steep decline in cases. Not sure if everyone seeing the same.

Survived an unexplained sudden cardiac arrest b/w surgery and chemo (while attending a chemo info session at the hospital). Code blue, CPR, induced coma, ICU, ICD. Escaped alive with heart and brain unscathed! Dx 12/8/2014, IDC, Left, 2cm, Stage IIIA, Grade 3, 6/13 nodes, ER+/PR+, HER2- Surgery 1/12/2015 Lumpectomy; Lumpectomy (Left) Chemotherapy 3/20/2015 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 7/23/2015 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 8/4/2015 Breast, Lymph nodes
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Mar 13, 2020 09:03AM missouricatlady wrote:

thank you for that link. We have a case now in Springfield, MO, where my dad lives. He drives delivering drugs to hospitals (he is 84 years old) and my stepmom has told him to use alcohol wipes on his hands before eating his sandwich for lunch. Our local college has closed, classes are all online, no visitors to campus allowed. I work with a lot of people who are just beginning to realize the situation is real.

diagnosed at 55, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Lumpectomy, 4/29/19 anastrozole (name-brand at CVS with a GoodRX coupon), 6/3/19 Rads, HP done 1/8/20, complete response to neoadjuvant therapy Chemotherapy 7/11/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 4/29/2019 Arimidex (anastrozole)
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Mar 13, 2020 09:36AM melissadallas wrote:

The Johns Hopkins site is not completely current. Dallas County, Texas now has five cases and they are not reflected on the map.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
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Mar 13, 2020 09:45AM flashlight wrote:

This report is from a local hospital. According to the chief epidemiologist of the Chinese Centers for Disease Control and Prevention Beijing, Zunyou Wu, MD, PhD, the transmission rate of COVID-19 was 1%-5% among 38,000 Chinese people in close contact with infected patients. The rate of spread to family members – the driver of the infection in China – was 10% early in the outbreak, but fell to 3% with quicker recognition and isolation. The overall numbers are lower than might have been expected, and an important insight for clinicians trying to contain the outbreak in the United States.

Patients were most infectious at the onset of symptoms, when they spiked a fever and started coughing, but their ability to spread the infection dropped after that. Transmission from pre-symptomatic people is rare; shedding persists to some degree for 7-12 days in mild/moderate cases, but 2 weeks or more in severe cases.

Dr. Wu said the numbers in China are moving in the right direction, which means that containment efforts there have worked. Essentially, the entire population of China (more than a billion people) was told to stay home for 10 days to interrupt the transmission cycle after the virus spread throughout the country in a few weeks, and almost 60 million people in Hubei were put behind a cordon sanitaire, where they have been for 50 days and will remain "for a while," Dr. Wu said.

It's led to a steep drop in new cases and deaths in China since mid-February; both are now more common outside China than inside, and international numbers are lower than they were at the peak in China.


Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Radiation Therapy Whole breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Left
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Mar 14, 2020 06:52AM marijen wrote:

Underlying medical conditions that may increase the risk of serious COVID-19 for individuals of any age.

  • Blood disorders (e.g., sickle cell disease or on blood thinners)
  • Chronic kidney disease as defined by your doctor. Patient has been told to avoid or reduce the dose of medications because of kidney disease, or is under treatment for kidney disease, including receiving dialysis
  • Chronic liver disease as defined by your doctor. (e.g., cirrhosis, chronic hepatitis) Patient has been told to avoid or reduce the dose of medications because of liver disease or is under treatment for liver disease.
  • Compromised immune system (immunosuppression) (e.g., seeing a doctor for cancer and treatment such as chemotherapy or radiation, received an organ or bone marrow transplant, taking high doses of corticosteroids or other immunosuppressant medications, HIV or AIDS)
  • Current or recent pregnancy in the last two weeks
  • Endocrine disorders (e.g., diabetes mellitus)
  • Metabolic disorders (such as inherited metabolic disorders and mitochondrial disorders)
  • Heart disease (such as congenital heart disease, congestive heart failure and coronary artery disease)
  • Lung disease including asthma or chronic obstructive pulmonary disease (chronic bronchitis or emphysema) or other chronic conditions associated with impaired lung function or that require home oxygen
  • Neurological and neurologic and neurodevelopment conditions [including disorders of the brain, spinal cord, peripheral nerve, and muscle such as cerebral palsy, epilepsy (seizure disorders), stroke, intellectual disability, moderate to severe developmental delay, muscular dystrophy, or spinal cord injury].
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    Mar 14, 2020 09:05AM reckless wrote:

    We are WFH on an alternate weeks starting Monday, on a split team basis. 50% WHF during week 1, then from the office during week 2. I did not have chemo or rads. But I had lupus and took immunosuppressants for 10+ years, so have a compromised immune system, I think. I am going to ask to WHF 100%. I work in finance in NYC, use subway to commute to work.

    💉💉💉 Dx 3/4/2016, IDC, Right, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 4/19/2016 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Hormonal Therapy 6/19/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/11/2016 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 11/14/2017 Hormonal Therapy 6/20/2018 Arimidex (anastrozole)
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    Mar 14, 2020 12:06PM etnasgrl wrote:

    I am starting chemo this coming Thursday, so yea....I'm a little concerned. But I refuse to panic or live in fear. (It's not going to do me any good!)

    I do work full-time and my goal is to continue with that while in treatment. To the best of my ability anyway. My job just recently announced that it will begin to get all employees set up to work remotely, but will do it in stages, to fix any kinks or issues that may arise.
    My boss told me yesterday that I will be in the first group of employees scheduled to work at home, due to chemo. She has chosen those in the high risk pool to start working at home first, which in my opinion, is very wise and I so appreciate that!
    She said that they hope to have me fully set up to be remote by the end of this coming week. I'm all for that! I worked from home at my last job, so I already have a home office set up and have the discipline to get work done without getting distracted. Of course, this is temporary, but if I can work from home during most of my chemo, I will be very grateful! This way, I won't have to miss much, if any, time away from my job because I'm not feeling well.

    Other than that, I'm just sticking to the basics.....washing my hands, (what a concept!), staying away from people who are sick, and avoiding crowds, if at all possible. The rest is in God's hands!

    Diagnosed at 41. Diagnosed 2nd time at 45. Dx 11/5/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/12/2016 Whole breast: Breast Hormonal Therapy 2/17/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/13/2020, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2+, Surgery 2/23/2020 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 3/18/2020 Taxol (paclitaxel) Targeted Therapy 3/18/2020 Herceptin (trastuzumab) Surgery 8/20/2020 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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    Mar 15, 2020 01:37AM - edited Mar 15, 2020 01:48AM by wc3

    I live in a densly populated area but just happened to be out of town when the outbreak there began to ramp up. I do not do well with influenza; it puts me in bed for the duration with a fever in excess of 103F and I relapse or develop pneumonia. Genetic susceptibility I guess. Influenza A landed my mother in the hospital. My WBCs also remain supressed 1.5 years PFC and I have had breathing/lung issues in the past. So anyway I doubt I would be able to weather COVID-19 . I have not returned home yet and am holed up in a 400 square foot apartment with two other adults right now with no toilet paper and 9 days of tamoxifen left. I guess I could have the prescription transfered but I'm not sure that I could reasonably stay here for the duration of the outbreak. It could be months and this virus could stay with us.



    Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2- Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
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    Mar 15, 2020 07:58AM flashlight wrote:

    WC3, Do you have to fly to get home? They said on the news that they might be halting some domestic flights this week. You won't be on an international flight. I would do everything I could to protect myself and go home. Being in a 400 sq ft condo doesn't sound healthy either. My brother said when he got on the plane he was given antibacterial wipes to wipe down his seat/tray/knobs. The airlines are doing a better job of cleaning between flights.

    Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Radiation Therapy Whole breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Left
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    Mar 15, 2020 04:26PM minustwo wrote:

    WC3 - Call your doc or send a My Chart and ask for a new 'one time' prescription for the closest pharmacy to where you are. But I'd call the pharmacy first and make sure they have the meds. On the other hand, with no toilet paper already, you're not in for a good time where you are.

    If you are prepared at your house to stay close or inside, I agree with flashlight - consider going home. Domestic flights are really pretty empty. San Francisco to Boston non-stop today had something like 25 passengers. Yes, the airports are a consideration, but maybe one you should think about braving.

    Please let us know what you decide.

    2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

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