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Topic: Important BCO links: What you need to know about COVID-19

Forum: All things COVID-19 or coronavirus —

A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Mar 21, 2020 05:23AM - edited Jan 13, 2021 04:17AM by Moderators

Moderators wrote:

Please let us know if these resources are helpful, and what we can do to help!

Important articles from BCO:

Special Report: COVID-19's Impact on Breast Cancer Care

Coronavirus: What People With Breast Cancer Need to Know

Breastcancer.org Podcasts:

Understanding the COVID-19 Vaccines

Weslinne's Story: Diagnosed With Breast Cancer During COVID-19

Flu Vaccines and Holiday Safety During the COVID-19 Pandemic

COVID-19 Testing Confusion

COVID-19 and Breast Cancer Care: Follow-Up Questions

Quarantine Fatigue: How to Stay Vigilant About Your Safety During the COVID-19 Pandemic

COVID-19 and Metastatic Breast Cancer


COVID-19 Insurance and Financial Issues for People With Breast Cancer

Staying Active During Quarantine

Breast Surgery and Reconstruction During COVID-19

COVID-19 and Breast Cancer Treatment

COVID-19 and Breast Cancer: What We Know Now


Managing Loneliness and Anxiety During This Time of Social Distancing

Special Report Series: Staying Well During COVID-19

Breast Cancer, COVID, and the Holiday Season: Advice for Safely Connecting With Loved Ones

How to Fight 'Caution Fatigue' and Stay Vigilant About COVID Safety

Quarantine Hacks From the Breastcancer.org Community: Tips for Coping With Anxiety and Isolation

How to Stay Active During Quarantine

Breast Cancer Caregiving During COVID-19

Videos featuring Dr. Marisa Weiss, Breastcancer.org Founder and President
:


COVID-19 & Breast Cancer: Should Surgery be Delayed?

COVID-19 & Breast Cancer: Are Loved Ones Allowed in Treatment Centers?

Is Radiation Therapy Safe During the COVID-19 Pandemic?

COVID-19: How to Protect Yourself in Healthcare Facilities

Breast Cancer Treatment & COVID-19: Safety First With Loved Ones, Caregivers

More important information:

Breastcancer.org Webinar: COVID-19 and Breast Cancer Care Town Hall

WHO (World Health Organization) Coronavirus disease advice for the public: Myth busters

ASCO (American Society of Clinical Oncology) COVID-19 Patient Care Information

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Apr 18, 2020 04:46AM - edited Apr 18, 2020 07:44AM by BCat40

I watched the videos about whether surgery can be delayed and find it very concerning that they stated that those with ER+ tumors can be pushed back because those patients can start ET therapy, when it is well known that ET is only effective in about ~50% of cases. That is giving women false assurances that they will be fine waiting when it is really a flip of a coin.

Dx at 40. Did not tolerate hormone deprivation treatment. Dx 2/4/2020, LCIS/ILC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/25/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/2/2020 Whole-breast: Breast
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Apr 21, 2020 03:03AM Moderators wrote:

Hi BCat40 and thanks for your feedback! This video was intended to provide general information about what's happening with breast surgeries during the Covid-19 pandemic, and is not intended as medical advice. All breast cancer situations are different, and as Dr. Weiss suggests in the video, hormonal therapy may be an option for some people, but you should always consult with your doctor about what the best decision is for you.

Please let us know if you hear it differently.

Best,

The Mods

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Jun 1, 2020 04:04PM gonegirl wrote:

This is all helpful. So little advice was given about caring for yourself with COVID I gathered advice from medical professionals and wrote a guide. I couldn't find one source that did this -Susan

Caring For Yourself When You Have COVID-19, April 2020, uppitycancerpatient.blogspot.c...
uppitycancerpatient.blogspot.com Dx 1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+ Targeted Therapy 2/9/2012 Herceptin (trastuzumab) Chemotherapy 2/9/2012 Taxol (paclitaxel) Surgery 11/5/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Targeted Therapy 12/7/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/6/2015 External: Bone Targeted Therapy 9/11/2018 Herceptin (trastuzumab) Targeted Therapy 9/11/2018 Perjeta (pertuzumab)
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Jun 1, 2020 04:22PM Peregrinelady wrote:

Thanks, gone girl. Very detailed and helpful!
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 5/17/2015 Mastectomy: Left Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/18/2016 Mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/31/2016 Arimidex (anastrozole) Hormonal Therapy 7/19/2020 Femara (letrozole) Hormonal Therapy 3/3/2021 Arimidex (anastrozole)
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Jun 1, 2020 04:31PM gonegirl wrote:

Thanks peregrinelady. The advice of go home and call us when you can't breathe was scaring the bejeebies out of me

Collecting that info gave me comfort

uppitycancerpatient.blogspot.com Dx 1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+ Targeted Therapy 2/9/2012 Herceptin (trastuzumab) Chemotherapy 2/9/2012 Taxol (paclitaxel) Surgery 11/5/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Targeted Therapy 12/7/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/6/2015 External: Bone Targeted Therapy 9/11/2018 Herceptin (trastuzumab) Targeted Therapy 9/11/2018 Perjeta (pertuzumab)
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Aug 9, 2020 03:56AM wacha wrote:

Hello!

I´ve been wondering about this... If in my last PET (7 months after radiation treatment) I have a lung wit ground-glass opacities, would it be a greater risk in regards of COVID-19?

I haven´t found any info about this, and I have to go this month for another PET.

Tank you!

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Aug 9, 2020 04:08AM Moderators wrote:

Dear wacha,

We are not sure if this will be helpful but it is hot off the press: Covid 19 Town Hall

The Mods

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Aug 9, 2020 11:33AM MinusTwo wrote:

wachca - I had "ground glass opacity" after all my treatment were through. Just the name freaked me out. Over two years it "resolved" & is completely gone.

Since you said your last PET was 7 months ago, I assume you're finished with active treatment? If you'll go to My Profile and fill in your prior diagnosis & treatment it will be easier to answer your questions. My docs have told me I'm far enough past treatment that BC isn't a risk factor. However I'm in the targeted age group and have mild COPD - so...... I'm pretty much staying at home.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 5, 2020 08:57PM CarolWCline wrote:

This is all helpful..Thanks

MamaFacts
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Sep 6, 2020 10:27AM MinusTwo wrote:

Sad to say wachca never came back or posted again. Hope she is OK

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

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